Hello ....
Hope this rant finds everyone well ... happy, content .... choose any defining adjective you would like for your own individual attitude today.
Thursday, 1/28/10 - My morning was extremely productive ... my afternoon ....pure hell and aggravation!!!
I was basically "stood up" by upper management when this person didn't show up for a scheduled meeting. I waited 15 minutes past scheduled time, called, left a voice mail ... 12:50 still no response, I am growing increasingly more irritated .... I decide ... "F'it" .... and run out for 20 minutes to put gas in my car and grab a diet coke .... come back to a voice mail message on my phone .... still, the irritation grows with what was in my opinion a lame message, especially as I could hear laughing in the background. I call my boss/mentor/friend .... she tells me she knows/feels my pain ... LOL .... I so believe her as she has been and/or is being put through the tests as well. She proceeds to tell me I am my own best advocate and to do what I feel I need to, and maybe I should go home for the rest of the day ... chill out ....
I stayed until 3 PM ... packed up my stuff .... and drove to the facility where boss girl hangs her hat ... oh .... melt down big time when a bumper sticker in front of me brought me to tears. "Maybe the hokie pokie is what it's all about." I was freakin' balling ... then laughing ... so hard I thought I was going to have an "accident" and I'm not talking car!!! Let's just say .... I felt a little better, but still not happy, economy or not, that I was SHAFTED!! Really ... how many "promises" is one to believe when one keeps putting out the work, given more and more responsibility, taken on that responsibility with a pretty good attitude ... before one says ... this is BS!!! First of all ... I am not a big fan of promises .... reminds me of my marriage .... don't make them if you have no intention of keeping them, or you do not have the ability to follow through on them. I prefer to say to you, I will give you my all, and I will do my best. Been my experience, that not too many "promises" ever really get followed through on.
In any event, Thursday past, Friday came. I had to go to Phoenix on Friday morning for a doctor appointment with my neurologist. That went very well, with the exception I have to go back in 6 weeks as opposed to my normal 3-4 months. I then met up with my friends, J&P and we did lunch. P and I went to the mall afterwards to do some shopping and search for some new crocs ... hahaha ... in the matter of 2 hours I got sick .... hard!! I was in the restroom and checked my BG as I was sweating profusely, nauseated, along with a couple of other issues ... got to a point very quickly where the room was spinning and I became very weak. I have NEVER felt like this before, nor this quickly. We chocked it up to food poisoning as I was the only one who had the shrimp, and I had not had anything to eat since the day prior. Needless to say, I spent the remainder of the afternoon and early evening rolled up in a ball, trying to make it back and forth to the bathroom without taking out a wall. As usual, another adventure filled visit with J&P. I felt better yesterday morning .... totally weird.... and scary as I was unaware of what could have been going on when it all came on so quickly. We decided that seeing I blew our plans of going to the movies Friday night, that we would just rent a couple and hang out inside ... that way I could stay in my comfy jammy pants..... :D
Saturday came .... time for me to head back up north. I left Phoenix about noon, got home about 4:00pm as I made a couple of quick stops to pick up a couple of items to do my taxes. All in all ... we had a pretty decent 24 hours!! I often feel that as happy as they are to see me ... they are often just as happy to see me go!!! They are the best of the best!!! and can we ever laugh .... and at that particular point in my week .... if I didn't laugh, I was going to explode, melt down, and just cry.
Here it is Sunday ... time to get ready for another week. I need to readjust, regroup, make my priority me, and do the best I know how with my job status without making myself sick with worry about how I am going to make this all work. I need to go shower, vac, finish the dishes that my daughter was to have taken care of while I was away..... that will be another story, as I told her I don't want to live as a college student!!! Then I have to go take my father to the store .... another major irritation in my life ....
Wishing you all a wonderful day and an excellent week!!
PS: No word yet on when the scheduled visit will be. This week made the two week mark for the transplants that were done .... so "HOPEFULLY" this week I will get my call to schedule!!
Peace and Light
et
Thursday, January 28, 2010
Tuesday, January 26, 2010
Something that may just open your eyes to the facts
Watch the video on this link.
http://www.thediabetesproject.org/
For those that find they are not comfortable donating to my individual cause; I have donated my body, to the research and hopes that there is a CURE on the very near horizon for the next generation of children. This video will have you on the verge of tears, or perhaps ... in tears. It is one of the best presentations I have seen come to light in a long time..... and their cause .... the same as mine, to find a cure for their daughter.
Watch .... and if you find you can't help me to help those that will come after me, then think about supporting the JDRF ... they have been researching this since before I was diagnosed in 1972 and have made tremendous progress. All funds that are left after my transplant process will also go directly to the JDRF. Am I going to benefit, well, I certainly hope so, but I am not just doing this "donation of my body" for me, but for the research that promises no other kid will have to grow up too fast, feel different, fight with the so-called demons of difference in the world, the ignorance of some people, and the love of those who care for them/us/me.
Watch ... be touched ... and think .... help me get to this opportunity not only for me to extend my life, but to HOPEfully prevent the next generation from ever knowing what Type 1 diabetes is.
I pray that nothing like this ever effects another child, another family, and I do so with hopes of it coming in the very near future.
Thank you !!!
Peace and light ..... and so much love to the support I have received already.
et
PS: Hillary has braclets ordered for our cause; she did ours in gray (which was the color to indicate Diabetes; like pink for breast cancer) with the logo of HOPE ..... for a cure. Just means now you have a choice :D
http://www.thediabetesproject.org/
For those that find they are not comfortable donating to my individual cause; I have donated my body, to the research and hopes that there is a CURE on the very near horizon for the next generation of children. This video will have you on the verge of tears, or perhaps ... in tears. It is one of the best presentations I have seen come to light in a long time..... and their cause .... the same as mine, to find a cure for their daughter.
Watch .... and if you find you can't help me to help those that will come after me, then think about supporting the JDRF ... they have been researching this since before I was diagnosed in 1972 and have made tremendous progress. All funds that are left after my transplant process will also go directly to the JDRF. Am I going to benefit, well, I certainly hope so, but I am not just doing this "donation of my body" for me, but for the research that promises no other kid will have to grow up too fast, feel different, fight with the so-called demons of difference in the world, the ignorance of some people, and the love of those who care for them/us/me.
Watch ... be touched ... and think .... help me get to this opportunity not only for me to extend my life, but to HOPEfully prevent the next generation from ever knowing what Type 1 diabetes is.
I pray that nothing like this ever effects another child, another family, and I do so with hopes of it coming in the very near future.
Thank you !!!
Peace and light ..... and so much love to the support I have received already.
et
PS: Hillary has braclets ordered for our cause; she did ours in gray (which was the color to indicate Diabetes; like pink for breast cancer) with the logo of HOPE ..... for a cure. Just means now you have a choice :D
Sunday, January 24, 2010
UCSF link off to the right
A small excerpt from an article on the website in the patient's story section of the transplants.
This is stuff I have been ready about for years ... I wish my mom were here, she would be so totally pumped about this advance with the stem cells. She was a huge fan and advacate for the use of this sort of research. I was raised Catholic .... unfortunately, regardless of religion, one must come to their own conclusions and decisions of such usage in science. Personally, I feel that until a disease such as diabetes, Parkinson's, a spinal injury and so many other prospective benefactors, you will not get a clear picture of the impact.
Please read ... keep an open mind..... and please help me prove that the science will work ... and the next generation of drugs will be a "kinder, gentler genie" .... lol ..... Thanks !!!
GGRRRRR ... it won't allow me to copy and paste it ... go to the following link ... personal patient profiles ... this story was written in 2006 on Ivan ??? (cant' remember his last name) .... I know for a fact, that the research has improved, and they continue to make promising strides to a cure.
This is stuff I have been ready about for years ... I wish my mom were here, she would be so totally pumped about this advance with the stem cells. She was a huge fan and advacate for the use of this sort of research. I was raised Catholic .... unfortunately, regardless of religion, one must come to their own conclusions and decisions of such usage in science. Personally, I feel that until a disease such as diabetes, Parkinson's, a spinal injury and so many other prospective benefactors, you will not get a clear picture of the impact.
Please read ... keep an open mind..... and please help me prove that the science will work ... and the next generation of drugs will be a "kinder, gentler genie" .... lol ..... Thanks !!!
GGRRRRR ... it won't allow me to copy and paste it ... go to the following link ... personal patient profiles ... this story was written in 2006 on Ivan ??? (cant' remember his last name) .... I know for a fact, that the research has improved, and they continue to make promising strides to a cure.
Guest Bloggers ??
Before I hang it up for the night. .... I had one taker to think about guest blogging for me.
Come on people .... I know there are a few of you out there that encountered me in one of my episodes .... 4 come to mind right off the bat and recently, but we could, perhaps go back even further.
Come on ... give it a shot. There really is nothing to this writing stuff. You sit down and let it rip.
I just sit here typing away sometime, drives Hillary crazy. The faster I type, the more she knows I am on a thought and will not stop until it is all out. .... LOL .... she loves to make fun of me and pick on me every chance she gets. I have been told, by many over the years ... and regularly from friends, that I am an easy target, that it is just so easy to do ... guess it is a good thing I don't take this or myself too seriously hey?? Hell..... I kill myself laughing at myself most times ... I just baffle myself with some of the dumb things that I do ... or just not so graceful as I once was.
Anyway .... Second call for guest bloggers. Think about it!!!
Everyone have a GREAT week !!!
Peace
et
Come on people .... I know there are a few of you out there that encountered me in one of my episodes .... 4 come to mind right off the bat and recently, but we could, perhaps go back even further.
Come on ... give it a shot. There really is nothing to this writing stuff. You sit down and let it rip.
I just sit here typing away sometime, drives Hillary crazy. The faster I type, the more she knows I am on a thought and will not stop until it is all out. .... LOL .... she loves to make fun of me and pick on me every chance she gets. I have been told, by many over the years ... and regularly from friends, that I am an easy target, that it is just so easy to do ... guess it is a good thing I don't take this or myself too seriously hey?? Hell..... I kill myself laughing at myself most times ... I just baffle myself with some of the dumb things that I do ... or just not so graceful as I once was.
Anyway .... Second call for guest bloggers. Think about it!!!
Everyone have a GREAT week !!!
Peace
et
MAGGIE"S 1'ST BIRTHDAY
If you check out my Facebook page you can see some photos of Maggie's first year.
She has been a wonderful pup for the first year, given what she could have done, I will take the leash chewing, and toy busting over things that she could have done ... and in a big way!!
I took one of her this morning ... a birthday pic ... will post it later. She is sleeping now, been grazing with Mama in the kitchen ... she loves peppers!!
Enjoy !!
et
She has been a wonderful pup for the first year, given what she could have done, I will take the leash chewing, and toy busting over things that she could have done ... and in a big way!!
I took one of her this morning ... a birthday pic ... will post it later. She is sleeping now, been grazing with Mama in the kitchen ... she loves peppers!!
Enjoy !!
et
Morning everyone !!!
Happy Sunday to all!!
Well ... last night I discovered what the smell was in the washroom. The carpet got soaked, so I pulled that up and tossed it only to find that the wind-driven rain had come through the bottom of the door and now I need to replace the threshold portion. I am thinking hard about how I should go about that. I am pretty sure that I can make it better then it was. I so should have been a dude. The guy that apparently "fixed" it when we first bought the house 16 months ago, according to Hilly (I wasn't watching him) only replaced the gap with a piece of molding he took from somewhere else. WHY .... can't people do their jobs right the first time!!!??? I am so totally broke .... but it needs to be fixed correctly. That just irks the you know what out of me!!! I love the Home Depot and Lowe's, could spend a good part of my day in there, but .... I rarely have the money to do so. I have a piece of granite on the counter out in the kitchen .... what I am going to rebuild with when the house that came in on wheels needs remodeling. My theory is that .... I am never going to get my log, loft, small home on a hill overlooking water .... lol.... and Hillary won't be here forever, she wants a home that "didn't come in on wheels" and sits on a real foundation .... LMAO .... she will get hers, I just know it. For me, this is most likely it, so I will make the very best of it. It just bothers me that people don't take any real pride in their work anymore, and feel the need to do things as cheaply as possible. It has been my experience, and my mother's words of years gone by, that you not only get what you pay for, but if you invest properly the first time, (like a good quality jacket, classic skirt, higher grade carpet) you will have them for years and they will pay for themselves in the long run. So I guess in order to get that, I need to do the freakin' job myself!!!! I love that hole tool-time thing .... sure, I like to sew, which I need to do to get my bathroom complete, but I would so rather play with the big-boy tools. Nothing makes me laugh harder than going into the tool area and blowing off what I NEED to the guy that thinks he can sell me shit I DON'T.
Anyway ..... I have a terrible sore throat this morning ... I think it might be from the heat, gets so dry ... I like just the dry... not the extra dry. I have a lot of cleaning up to do around here before travel begins for this venture. I try not to think about how to get it done or I would be so overwhelmed I was cry. I am going to go finish up the laundry and Maggie is sitting here talking to me ... LOL .... yelling at me .... So I have stuff to keep me VERY busy today before returning to the grind in the early morn. I often wish there was more time in a day, but then someone would just fill it with something THEY need done and I still wouldn't get my stuff done. "Stuff" .... one of my absolute favorite George Carlin routines.
Have a great day !!!
peace and light !!
et
Happy Sunday to all!!
Well ... last night I discovered what the smell was in the washroom. The carpet got soaked, so I pulled that up and tossed it only to find that the wind-driven rain had come through the bottom of the door and now I need to replace the threshold portion. I am thinking hard about how I should go about that. I am pretty sure that I can make it better then it was. I so should have been a dude. The guy that apparently "fixed" it when we first bought the house 16 months ago, according to Hilly (I wasn't watching him) only replaced the gap with a piece of molding he took from somewhere else. WHY .... can't people do their jobs right the first time!!!??? I am so totally broke .... but it needs to be fixed correctly. That just irks the you know what out of me!!! I love the Home Depot and Lowe's, could spend a good part of my day in there, but .... I rarely have the money to do so. I have a piece of granite on the counter out in the kitchen .... what I am going to rebuild with when the house that came in on wheels needs remodeling. My theory is that .... I am never going to get my log, loft, small home on a hill overlooking water .... lol.... and Hillary won't be here forever, she wants a home that "didn't come in on wheels" and sits on a real foundation .... LMAO .... she will get hers, I just know it. For me, this is most likely it, so I will make the very best of it. It just bothers me that people don't take any real pride in their work anymore, and feel the need to do things as cheaply as possible. It has been my experience, and my mother's words of years gone by, that you not only get what you pay for, but if you invest properly the first time, (like a good quality jacket, classic skirt, higher grade carpet) you will have them for years and they will pay for themselves in the long run. So I guess in order to get that, I need to do the freakin' job myself!!!! I love that hole tool-time thing .... sure, I like to sew, which I need to do to get my bathroom complete, but I would so rather play with the big-boy tools. Nothing makes me laugh harder than going into the tool area and blowing off what I NEED to the guy that thinks he can sell me shit I DON'T.
Anyway ..... I have a terrible sore throat this morning ... I think it might be from the heat, gets so dry ... I like just the dry... not the extra dry. I have a lot of cleaning up to do around here before travel begins for this venture. I try not to think about how to get it done or I would be so overwhelmed I was cry. I am going to go finish up the laundry and Maggie is sitting here talking to me ... LOL .... yelling at me .... So I have stuff to keep me VERY busy today before returning to the grind in the early morn. I often wish there was more time in a day, but then someone would just fill it with something THEY need done and I still wouldn't get my stuff done. "Stuff" .... one of my absolute favorite George Carlin routines.
Have a great day !!!
peace and light !!
et
Saturday, January 23, 2010
Saturday Updates ...
Hi everyone!!
What a mess it has been this week. Traveling, the yard, work, dad, Hilly, etc. We have had rain, snow, sleep, hail, lots and lots of water, ice, flooding, you name it. I am so totally exhausted. I had to take Hilly to work this morning as she is afraid to drive her truck in the snow/ice since the last storm when she slid off the road, spun around and landed in a ditch that required being winched out of. I don't think the kid was breathing halfway to town this morning. ... LOL. Not that I really blame her, people out here take all the fun out of driving in the snow. They do things so half-assed sometimes I often wonder what happened to common sense???
I have a load of wash in ... I need to go pay some bills for both myself and dad. I have to go back into town (Prescott) to take Dad to the store, I figure I will make him feed me dinner and I will just hang out at his house until 7 and go pick Hilly up at the hospital so I need not have to make two trips. I got 4 hours of work in this morning at the office. I have to put some hours in here for work tomorrow as I will be taking Friday off for a doctor appointment in Phoenix, and Tuesday Maggie has to go to the vet, so I will have to make up some time there. I will spend Friday night with the best friends, J&P, and of course Hannah!! We don't get to see each other a lot so I try to stop in when I go to the valley, and it usually turns into an over-night or weekend trip. I would stay the weekend, but Hillary freaks if she has to watch Maggie for any length of time. If I was just going down, I would take Maggie with me, but doctor appointments and such, not really a good idea.
I am looking forward to hearing and setting dates for the first trip to get the ball rolling. It is a feeling I am having a hard time describing. People keep asking me if I am scared. I really am not scared, more excited, a little anxious I guess, but really excited about just taking part in the whole research project and the potential outcome. I really don't know what to expect, I know, that there is going to be pain, no doubt some yaking involved, and pain, and LOTS of black and blue marks. But, on the other hand, I have the opportunity to teach. Those that want to travel with me over the process (still looking for that special someone to make the actual transplant trip) to learn as much about me and my disease, as about themselves and what they are capable of doing. That would be a weird sort of definition for me at this point, but I do know what I am trying to say. There are people who think, "Oh, I could never do that" or "I don't like that sort of stuff" to the whole travel companion thing. I know that some of us will travel much better together than others, but I really am hoping that because these people want to be with me, experience the process with me, that they are able to dig within themselves to help in the "health" department should it be needed and to discover the strength they too hold to conquer in a stressful, potential life threatening situation. Now, is that where I want the focus, not really. I do think the whole experience is going to just be fantastic, pain and all !!!!
In thinking about it yesterday after a conversation with a coworker, I don't know what life is like without an organ on a string attached to my body, or a bag full of syringes, a package with meters, strips, sugar backup, the whole process of thinking ahead, making sure I am prepared for any sort of situation, (which I must admit, have not been on occasion). Has always seemed that when I am not prepared, is when something off the wall occurs. I have been in Phoenix and had my pump malfunction, and because I was only going to stay the one night, was without backup. Stupid. I had an issue at work one time where my pump malfunctioned and I had the needles, but forgot the insulin in my bag. Hillary had to come rescue me as I feel into DKA and couldn't walk, fought with Hillary to just take me home. I was apparently belligerent, nasty, and so completely incoherent, she knew what to do, and she took care of it with little to no guidance from myself. She often times will bark, "who is the parent here?" .... she is very adult, and maybe in part, due to having to live with me all these years, but I don't think I can take all the blame. :)
Ok well ... I have a ton of stuff to accomplish here in the rest of today. There never seems to be enough time, or enough me to get everything done. My back door seems to have been leaking with all the wind-driven rain and now something stinks out in my laundry room, a lovely combination of dog, wet, mud, and perhaps some mildew combined with dirty feet (HMT's not mine). So ... guess I better get on that one too!!! Would be nice to have a little man around sometime .... hehehehe ... ya know, to take care of those little irritations. :P
I wish everyone a wonderful evening and a peaceful Sunday !!
Peace and Light
et
OH .... Deb S.... (crap) that won't work either as Deb (MA) and Deb-Deb (AZ) both have the same last initial !!! I will post the disappointing news when I think it out in my head ... it is work related and revolves around $$ ... hehehe ... so don't fret your pretty little head !!
What a mess it has been this week. Traveling, the yard, work, dad, Hilly, etc. We have had rain, snow, sleep, hail, lots and lots of water, ice, flooding, you name it. I am so totally exhausted. I had to take Hilly to work this morning as she is afraid to drive her truck in the snow/ice since the last storm when she slid off the road, spun around and landed in a ditch that required being winched out of. I don't think the kid was breathing halfway to town this morning. ... LOL. Not that I really blame her, people out here take all the fun out of driving in the snow. They do things so half-assed sometimes I often wonder what happened to common sense???
I have a load of wash in ... I need to go pay some bills for both myself and dad. I have to go back into town (Prescott) to take Dad to the store, I figure I will make him feed me dinner and I will just hang out at his house until 7 and go pick Hilly up at the hospital so I need not have to make two trips. I got 4 hours of work in this morning at the office. I have to put some hours in here for work tomorrow as I will be taking Friday off for a doctor appointment in Phoenix, and Tuesday Maggie has to go to the vet, so I will have to make up some time there. I will spend Friday night with the best friends, J&P, and of course Hannah!! We don't get to see each other a lot so I try to stop in when I go to the valley, and it usually turns into an over-night or weekend trip. I would stay the weekend, but Hillary freaks if she has to watch Maggie for any length of time. If I was just going down, I would take Maggie with me, but doctor appointments and such, not really a good idea.
I am looking forward to hearing and setting dates for the first trip to get the ball rolling. It is a feeling I am having a hard time describing. People keep asking me if I am scared. I really am not scared, more excited, a little anxious I guess, but really excited about just taking part in the whole research project and the potential outcome. I really don't know what to expect, I know, that there is going to be pain, no doubt some yaking involved, and pain, and LOTS of black and blue marks. But, on the other hand, I have the opportunity to teach. Those that want to travel with me over the process (still looking for that special someone to make the actual transplant trip) to learn as much about me and my disease, as about themselves and what they are capable of doing. That would be a weird sort of definition for me at this point, but I do know what I am trying to say. There are people who think, "Oh, I could never do that" or "I don't like that sort of stuff" to the whole travel companion thing. I know that some of us will travel much better together than others, but I really am hoping that because these people want to be with me, experience the process with me, that they are able to dig within themselves to help in the "health" department should it be needed and to discover the strength they too hold to conquer in a stressful, potential life threatening situation. Now, is that where I want the focus, not really. I do think the whole experience is going to just be fantastic, pain and all !!!!
In thinking about it yesterday after a conversation with a coworker, I don't know what life is like without an organ on a string attached to my body, or a bag full of syringes, a package with meters, strips, sugar backup, the whole process of thinking ahead, making sure I am prepared for any sort of situation, (which I must admit, have not been on occasion). Has always seemed that when I am not prepared, is when something off the wall occurs. I have been in Phoenix and had my pump malfunction, and because I was only going to stay the one night, was without backup. Stupid. I had an issue at work one time where my pump malfunctioned and I had the needles, but forgot the insulin in my bag. Hillary had to come rescue me as I feel into DKA and couldn't walk, fought with Hillary to just take me home. I was apparently belligerent, nasty, and so completely incoherent, she knew what to do, and she took care of it with little to no guidance from myself. She often times will bark, "who is the parent here?" .... she is very adult, and maybe in part, due to having to live with me all these years, but I don't think I can take all the blame. :)
Ok well ... I have a ton of stuff to accomplish here in the rest of today. There never seems to be enough time, or enough me to get everything done. My back door seems to have been leaking with all the wind-driven rain and now something stinks out in my laundry room, a lovely combination of dog, wet, mud, and perhaps some mildew combined with dirty feet (HMT's not mine). So ... guess I better get on that one too!!! Would be nice to have a little man around sometime .... hehehehe ... ya know, to take care of those little irritations. :P
I wish everyone a wonderful evening and a peaceful Sunday !!
Peace and Light
et
OH .... Deb S.... (crap) that won't work either as Deb (MA) and Deb-Deb (AZ) both have the same last initial !!! I will post the disappointing news when I think it out in my head ... it is work related and revolves around $$ ... hehehe ... so don't fret your pretty little head !!
Thursday, January 21, 2010
See the email ....
Hi Eliza,
Sorry I did not reply to your e-mail sooner. We are transplanting two people this week and when that happens we rarely get a moment to do anything else. I will look at your logs and let you know, but everything looks like it's in and everything looks good..
I think we are ready to look at possible dates for you to meet us, sign consent and have your first screening visit.
Debbie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The above email was received by me this morning ... sent last night after 10 PM!!
I am so excited to finally be coming in on the final stretch of actually going to meet this wonderful team. Debbie has been a true joy to work with via telephone and email over the last six months. Yes ... it is a long process, but am very happy that I have kept my own files of my medical records and results. That made my process much shorter in that I was told the entire process of screening paperwork could take up to a year!! I did it in 6 months!!! I also had the support of all my doctors in this venture. A very supportive group of professions I have acquired ... not without some weeding out of course. It takes a special breed to deal with me!!
(I am so totally laughing out loud at this comment, as it is without a doubt the truth :D )
My anxiety level is high ... but it is a good anxiety as I have great hope that this will advance not only my life, but the lives of so many kids that have been diagnosed. The actual participation excites me beyond belief. I realize that it will not be a pleasant ride, as I have some of the worlds worst portals for introduction or removal of anything!! (I am referring to veins). Over the years I have been known to hold up an operating room, and multiple procedure schedules due to the fact that they have a difficult time accessing a line. I have been sedated (or sedation attempted, Valium don't do ANYTHING to me) lines have been placed in my groin, my neck, strange areas on my upper arms, and even my thumb!!! I give each person three shots to get in, then they are out, I have been told this is pretty generous, but ... there are people who are very good at what they do and to those.... I LOVE YOU !!!! I try very hard to practice all that calming crap, the breathing, the visualization, etc., but there have been times, like the ER visit in which I was unaware of where I was and Hillary at the top of the bed, stroking my forehead telling me "Mom, go to your happy place," and me responding, at the top of my lungs apparently, that "I don't have a F'ing happy place!!!" ... All the poking get to be very stressful and at times, I have lost it. When hospital staffs are taking bets in the hallway as to who may get lucky and get the line in.... well .... that adds a whole new dimension to the process. I try to keep the humor about me, as I have found that it also eases the outlook of the staff doing all the pain poking searches. They get very stressed out as well sometimes, at the fact they are doing their very best to not cause any more pain, and my body just does not respond. I have to feel for them too!! Only on a few occasions has someones ego gotten in the way, in those cases, they only got one shot!!!
Take your ego and don't let the door hit you in the ass on your way out !!!
Anyway ... This is VERY promising news. Am I ready, absolutely not. I don't own a suitcase ... LOL ... always used my mom's, which fell apart on vacation 2 years ago when Hilly and I went to VA to visit my brother and his wife. ..... I may have to invest 50 bucks....LOL.
Please stay with me ... as this is going to be a very exciting process. I have been so very blessed with the support and encouragement I have had from you. It means more than my words could ever express as I so totally feel the compassion and honest, heartfelt concern for my well-being. THANK YOU!! and I hope you all know who you are, as you really are the best the world had to offer !!!
Ok ... well ... Northern AZ is in the midst of a winter storm. It is a mess!! These people take all the fun out of driving in the snow......LOL..... it is so much safer to just stay put. Which I am doing today. I will work from home today, Hillary's classes were cancelled so she went back to bed. I spent 40 minutes this morning at 5 AM chasing Miss Maggie around the neighborhood in the dark while she explored new found snow. I was really getting irritated with her and it was my own fault as I let her off leash. She SO needs some real training. She chewed through the Halti last night ..... while it was on her !!! I was so pissed!! This little princess of mine chews through things that are designed to allow me control ... you should see my right wrist again!! Black and blue from my mid-thumb to past my wrist bone (2 inches) ! Looks like I am in an abusive relationship .... and the same wrist in which I had the weed-whacker incident last spring and tore the tendon ... ggrrrr ... it is a bitch to get old .... LOL ..... like my mother used to say "Getting old isn't for sissies" ..... could thing I am a tough cookie.
Ok my faithful follower .... I need to do the paying sort of work now. I am all prepared to be stranded for the most part until Saturday when this storm system is suppose to break. I am so hoping it isn't holding the 3 feet plus of snow it is calling for ... I am on call for the hospital this weekend and really am not looking forward to it if the roads are bad.
Talk soon and I will definitely post any new word on a date for the trip !!!
Get ready Deb-Deb ... this is going to be a trip you will never forget !!!
Peace and Light
et
Sorry I did not reply to your e-mail sooner. We are transplanting two people this week and when that happens we rarely get a moment to do anything else. I will look at your logs and let you know, but everything looks like it's in and everything looks good..
I think we are ready to look at possible dates for you to meet us, sign consent and have your first screening visit.
Debbie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The above email was received by me this morning ... sent last night after 10 PM!!
I am so excited to finally be coming in on the final stretch of actually going to meet this wonderful team. Debbie has been a true joy to work with via telephone and email over the last six months. Yes ... it is a long process, but am very happy that I have kept my own files of my medical records and results. That made my process much shorter in that I was told the entire process of screening paperwork could take up to a year!! I did it in 6 months!!! I also had the support of all my doctors in this venture. A very supportive group of professions I have acquired ... not without some weeding out of course. It takes a special breed to deal with me!!
(I am so totally laughing out loud at this comment, as it is without a doubt the truth :D )
My anxiety level is high ... but it is a good anxiety as I have great hope that this will advance not only my life, but the lives of so many kids that have been diagnosed. The actual participation excites me beyond belief. I realize that it will not be a pleasant ride, as I have some of the worlds worst portals for introduction or removal of anything!! (I am referring to veins). Over the years I have been known to hold up an operating room, and multiple procedure schedules due to the fact that they have a difficult time accessing a line. I have been sedated (or sedation attempted, Valium don't do ANYTHING to me) lines have been placed in my groin, my neck, strange areas on my upper arms, and even my thumb!!! I give each person three shots to get in, then they are out, I have been told this is pretty generous, but ... there are people who are very good at what they do and to those.... I LOVE YOU !!!! I try very hard to practice all that calming crap, the breathing, the visualization, etc., but there have been times, like the ER visit in which I was unaware of where I was and Hillary at the top of the bed, stroking my forehead telling me "Mom, go to your happy place," and me responding, at the top of my lungs apparently, that "I don't have a F'ing happy place!!!" ... All the poking get to be very stressful and at times, I have lost it. When hospital staffs are taking bets in the hallway as to who may get lucky and get the line in.... well .... that adds a whole new dimension to the process. I try to keep the humor about me, as I have found that it also eases the outlook of the staff doing all the pain poking searches. They get very stressed out as well sometimes, at the fact they are doing their very best to not cause any more pain, and my body just does not respond. I have to feel for them too!! Only on a few occasions has someones ego gotten in the way, in those cases, they only got one shot!!!
Take your ego and don't let the door hit you in the ass on your way out !!!
Anyway ... This is VERY promising news. Am I ready, absolutely not. I don't own a suitcase ... LOL ... always used my mom's, which fell apart on vacation 2 years ago when Hilly and I went to VA to visit my brother and his wife. ..... I may have to invest 50 bucks....LOL.
Please stay with me ... as this is going to be a very exciting process. I have been so very blessed with the support and encouragement I have had from you. It means more than my words could ever express as I so totally feel the compassion and honest, heartfelt concern for my well-being. THANK YOU!! and I hope you all know who you are, as you really are the best the world had to offer !!!
Ok ... well ... Northern AZ is in the midst of a winter storm. It is a mess!! These people take all the fun out of driving in the snow......LOL..... it is so much safer to just stay put. Which I am doing today. I will work from home today, Hillary's classes were cancelled so she went back to bed. I spent 40 minutes this morning at 5 AM chasing Miss Maggie around the neighborhood in the dark while she explored new found snow. I was really getting irritated with her and it was my own fault as I let her off leash. She SO needs some real training. She chewed through the Halti last night ..... while it was on her !!! I was so pissed!! This little princess of mine chews through things that are designed to allow me control ... you should see my right wrist again!! Black and blue from my mid-thumb to past my wrist bone (2 inches) ! Looks like I am in an abusive relationship .... and the same wrist in which I had the weed-whacker incident last spring and tore the tendon ... ggrrrr ... it is a bitch to get old .... LOL ..... like my mother used to say "Getting old isn't for sissies" ..... could thing I am a tough cookie.
Ok my faithful follower .... I need to do the paying sort of work now. I am all prepared to be stranded for the most part until Saturday when this storm system is suppose to break. I am so hoping it isn't holding the 3 feet plus of snow it is calling for ... I am on call for the hospital this weekend and really am not looking forward to it if the roads are bad.
Talk soon and I will definitely post any new word on a date for the trip !!!
Get ready Deb-Deb ... this is going to be a trip you will never forget !!!
Peace and Light
et
Sunday, January 17, 2010
Sunday
Hey to all !!
Ok .. almost 11 AM here in AZ ... nice day overall. I guess there is a ton of rain coming our way this week ... always makes for a nice muddy mess, in spite of the fact I know us desert rats need our rain. Some day ... sooner rather than later, I hope my yard gets landscaped to the point of my comfort..... $$ is short all around so that is sort of a luxury at the moment. I tired and seem to dislocate bones and pull things rather easily, so ... tomorrow me and Hillary plan on shoveling the rest of this rock around to fill Maggie's pen and complete what Hillary has turned into a circular driveway for her truck. I am thinking Hilly will do most of the shoveling, and I will do the prep work and pulling of the weeds in Maggie's pen and perimeter. Once it rains, it will be so much easier to pull some of the remaining tumbleweeds ... I hate that stuff!!
I am REALLY hoping to hear from the team this week. I faxed off some logs this past week, even though I was told to wait until the steroids and infection cleared. I sort of want them to have enough information in all possible situations on me. Seeing how my body has NEVER played by the books or the rules. Sometimes I find this fact amusing, others, it is just down-right painful. So ... I will work on another log for them beginning the end of this week, complete with bolus, basal, and what I stuffed in this pretty little mouth of mine, maybe, including the fact that I have not been on my pump the last day and one-half, which, BTW, SUCKS !!! I am already on my second bag (10) of syringes and "pricking" every two hours ... just trying to stay on top of it.
I went out to pick up after the dog this morning (tomorrow is trash day) and I was in a sweat within 20 minutes ... was not sure what the deal was. Like I stated yesterday, it has been 12 years since I combined two types of insulin together ... not sure how to explain this sort of existence for you. As a younger adult, prior to my pump, the long and short of it all .. (hahaha ... get it??) was that the insulin had "peak" periods ... which meant if I hadn't eaten, or was doing something rather than sitting on my ass, that the highs and lows were so totally unpredictable. So .. In the time I have to be on the stick this week, (I am so hoping that they get here in a day or so) it is going to be a pretty time consuming process as there seems to be much more involved in staying within range. The fact I have digestive complications was a pretty large part of my going on the pump, it offered a fine tuning control in the event I was not to eat. It is always a juggling act ... and sometimes, with all lives other issues that we deal with on a daily basis, my balls have a tendency to hit the floor.
Anyway ... got myself an AWESOME chowder going in the slow cooker, am going out to do some more paper work and take care of some business for my father. I also have to complete a project for work before my boss slaps me silly for multiple reasons!! (Love you Tina !!! :P )
To all ... have a great day !!
For all who get tomorrow off .... enjoy !!
Peace and Light ~~
et
Ok .. almost 11 AM here in AZ ... nice day overall. I guess there is a ton of rain coming our way this week ... always makes for a nice muddy mess, in spite of the fact I know us desert rats need our rain. Some day ... sooner rather than later, I hope my yard gets landscaped to the point of my comfort..... $$ is short all around so that is sort of a luxury at the moment. I tired and seem to dislocate bones and pull things rather easily, so ... tomorrow me and Hillary plan on shoveling the rest of this rock around to fill Maggie's pen and complete what Hillary has turned into a circular driveway for her truck. I am thinking Hilly will do most of the shoveling, and I will do the prep work and pulling of the weeds in Maggie's pen and perimeter. Once it rains, it will be so much easier to pull some of the remaining tumbleweeds ... I hate that stuff!!
I am REALLY hoping to hear from the team this week. I faxed off some logs this past week, even though I was told to wait until the steroids and infection cleared. I sort of want them to have enough information in all possible situations on me. Seeing how my body has NEVER played by the books or the rules. Sometimes I find this fact amusing, others, it is just down-right painful. So ... I will work on another log for them beginning the end of this week, complete with bolus, basal, and what I stuffed in this pretty little mouth of mine, maybe, including the fact that I have not been on my pump the last day and one-half, which, BTW, SUCKS !!! I am already on my second bag (10) of syringes and "pricking" every two hours ... just trying to stay on top of it.
I went out to pick up after the dog this morning (tomorrow is trash day) and I was in a sweat within 20 minutes ... was not sure what the deal was. Like I stated yesterday, it has been 12 years since I combined two types of insulin together ... not sure how to explain this sort of existence for you. As a younger adult, prior to my pump, the long and short of it all .. (hahaha ... get it??) was that the insulin had "peak" periods ... which meant if I hadn't eaten, or was doing something rather than sitting on my ass, that the highs and lows were so totally unpredictable. So .. In the time I have to be on the stick this week, (I am so hoping that they get here in a day or so) it is going to be a pretty time consuming process as there seems to be much more involved in staying within range. The fact I have digestive complications was a pretty large part of my going on the pump, it offered a fine tuning control in the event I was not to eat. It is always a juggling act ... and sometimes, with all lives other issues that we deal with on a daily basis, my balls have a tendency to hit the floor.
Anyway ... got myself an AWESOME chowder going in the slow cooker, am going out to do some more paper work and take care of some business for my father. I also have to complete a project for work before my boss slaps me silly for multiple reasons!! (Love you Tina !!! :P )
To all ... have a great day !!
For all who get tomorrow off .... enjoy !!
Peace and Light ~~
et
Saturday, January 16, 2010
Long weekend
Hi everyone !!
Well ... I get a long weekend.... woohoo!!
Maggie yanked my wrist out again last night .... am seeing another cortisone shot in my future ... which I will try to put off as long as possible. Being of steroid makeup, we all know what that does to the BGs. I just finished the round of methylprednisone the beginning of this week, using up pump supplies faster than the norm. Now I only have one set left and am still waiting delivery of my supplies. Which means that as of today, I went back on the needle. My endocrin gal was not thrilled with my decision to go this route with the steroids, but supplies are very pricey and with the new year, comes a very large deductable. Got to do what you got to do.
Anyway ... it has me a little nervous as well requiring more finger sticks to monitor being on two different insulin, a long acting, and a short, fast acting. Usually, my pump runs continuously on a fast acting (Humalog) with a basal rate and I bolus on meals and corrections. This method of being on the needle does not give me the sort of control we like to have. Not only that, it runs the risk of even greater lows if eating does not coincide with meals, exercise, etc. So ... at least until Monday night, (I will place my last set, lasting 3 days) I will be a human pincushion, "pricking" my finger every 2 hours, and multiple shots 8 or more to keep a stable BG throughout a 24 hour period. It is the sleeping area that most concerns me, because many times, even with my pump, I roll over and think it is just a hot flash. I have not used a long acting insulin in over 12 years ... that too, raises concerns, but this is the sort of protocol that is used in the event of a pump malfunction ... I would have no choice without a backup pump. So .... I hope my supplies are here by Tuesday afternoon.
I stumbled upon that website WWW. sciencedaily.com from the JDRF website earlier today.
(See attached video clip and article posted earlier today) They have some very cool, very promising reading in regard to islet transplant, stem cell usage, and the future of not only Type 1, but several other diseases that will benefit from stem cell usage. (This is an area I really miss my mom for conversation, she was very interested in the science and progression of research on behalf of type 1, and had been for many years). I know she is with me on this venture. She had always been an advocate for me. With her fight with Parkinson's in the last years of her life, I just know she is smiling down on me ... go get 'em!! Show us what they will do. For her, she felt she was too old to pursue it, and her ability to do much was depressing and debilitating. I understood her position, but don't think for one minute I wouldn't want her here with me to see this project through. She went on to do wonderful things as well by her body donation and I feel this was the ultimate gift of unselfishness to better the world in the riddance of deadly, debilitating diseases. I hope to play my small part as well.
So ... that is it for tonight ... I am wiped out with not much sleep last night.
G'night to all !!
et
Well ... I get a long weekend.... woohoo!!
Maggie yanked my wrist out again last night .... am seeing another cortisone shot in my future ... which I will try to put off as long as possible. Being of steroid makeup, we all know what that does to the BGs. I just finished the round of methylprednisone the beginning of this week, using up pump supplies faster than the norm. Now I only have one set left and am still waiting delivery of my supplies. Which means that as of today, I went back on the needle. My endocrin gal was not thrilled with my decision to go this route with the steroids, but supplies are very pricey and with the new year, comes a very large deductable. Got to do what you got to do.
Anyway ... it has me a little nervous as well requiring more finger sticks to monitor being on two different insulin, a long acting, and a short, fast acting. Usually, my pump runs continuously on a fast acting (Humalog) with a basal rate and I bolus on meals and corrections. This method of being on the needle does not give me the sort of control we like to have. Not only that, it runs the risk of even greater lows if eating does not coincide with meals, exercise, etc. So ... at least until Monday night, (I will place my last set, lasting 3 days) I will be a human pincushion, "pricking" my finger every 2 hours, and multiple shots 8 or more to keep a stable BG throughout a 24 hour period. It is the sleeping area that most concerns me, because many times, even with my pump, I roll over and think it is just a hot flash. I have not used a long acting insulin in over 12 years ... that too, raises concerns, but this is the sort of protocol that is used in the event of a pump malfunction ... I would have no choice without a backup pump. So .... I hope my supplies are here by Tuesday afternoon.
I stumbled upon that website WWW. sciencedaily.com from the JDRF website earlier today.
(See attached video clip and article posted earlier today) They have some very cool, very promising reading in regard to islet transplant, stem cell usage, and the future of not only Type 1, but several other diseases that will benefit from stem cell usage. (This is an area I really miss my mom for conversation, she was very interested in the science and progression of research on behalf of type 1, and had been for many years). I know she is with me on this venture. She had always been an advocate for me. With her fight with Parkinson's in the last years of her life, I just know she is smiling down on me ... go get 'em!! Show us what they will do. For her, she felt she was too old to pursue it, and her ability to do much was depressing and debilitating. I understood her position, but don't think for one minute I wouldn't want her here with me to see this project through. She went on to do wonderful things as well by her body donation and I feel this was the ultimate gift of unselfishness to better the world in the riddance of deadly, debilitating diseases. I hope to play my small part as well.
So ... that is it for tonight ... I am wiped out with not much sleep last night.
G'night to all !!
et
Tuesday, January 12, 2010
Guest Bloggers Wanted
Okay ... well .... how daring do you think this request is???
I have been trying to get Hillary to do some guest blogging for me in hopes that when I am "under the weather" and really can't be doing it to update or enlighten, that she could sort of fill in. You know ... give the updates and perhaps share some of her experiences as a so called "witness to the destruction." She has many I know ... and often times in telling these stories gets some huge laughs at my expense. I have a friend/coworker whose husband (also a friend) also has type one and they have been caught sharing stories and fears of lows.
So .. if there is anyone out there who knows me and perhaps has witnessed an usual event, or saved my sorry a$$ on a couple of occasions, please share it with the rest of my followers. I just think it may give another perspective of how I live and what I have coped with all these years. I can think of a couple of people off the top of my head who have been around that long .... LMAO ... and yet still refer to me as a close friend. :D
If you are up for the challenge, past or present episodes ... please send me a note and perhaps an email contact, or email me with a word document with your story ... I promise not to edit anything from your original stories ... I just may not publish them if you make me look like a complete idiot!!! ..... but to be honest .... I don't think it could any worse in that department than I have presented of myself here with my coworkers, and friends in the past couple of years. They have been pretty off the wall on a couple of occasions .... I know the issue is not funny, but I would so kill for some operating room videos of me being put under having been told of what I am like under the influence, or Hillary telling the story of me landing in the ER last year the night before her birthday and screaming that I didn't have an "F'ing Happy Place" .... and me ... not really recalling much of anything, or how long I had actually been in the hospital ... only to freak when coming to and finding myself in ICU!! I would also like you to include how these episodes may have made you feel at the time, fearful, anxious, unknowing of what to expect or do. I know that to be thrust into the situation can be frightening, but .... I am also hoping my friend "P" will share her initiation episode as well ... she certainly jumped to the plate by slapping me.... or at least that was what I remembered as I was totally caught by surprise in telling her (or thought I was trying to tell her, "J-U-I-C-E" ..... LMAO .... again, I know it isn't funny, but this is how I have dealt with this sort of stuff all these years. Shit happens, got to deal with it .... might as well do it with a smile and some laughter. ..... right?
So .... you up to the challenge? ... share you knowledge and how you may have helped ... or how I may have ruined a good time do to moodiness/attitude beyond belief, and what maybe you know now that you didn't know then. I sure would appreciate some input ... and I know that some of you are getting sick of me complaining about everyday happenings dealing with family.... cause that never seems to take a break ... just lulls for a bit.
Thanks for taking this request under consideration. I look forward to seeing/reading what you have to offer the public. :P .
I have been trying to get Hillary to do some guest blogging for me in hopes that when I am "under the weather" and really can't be doing it to update or enlighten, that she could sort of fill in. You know ... give the updates and perhaps share some of her experiences as a so called "witness to the destruction." She has many I know ... and often times in telling these stories gets some huge laughs at my expense. I have a friend/coworker whose husband (also a friend) also has type one and they have been caught sharing stories and fears of lows.
So .. if there is anyone out there who knows me and perhaps has witnessed an usual event, or saved my sorry a$$ on a couple of occasions, please share it with the rest of my followers. I just think it may give another perspective of how I live and what I have coped with all these years. I can think of a couple of people off the top of my head who have been around that long .... LMAO ... and yet still refer to me as a close friend. :D
If you are up for the challenge, past or present episodes ... please send me a note and perhaps an email contact, or email me with a word document with your story ... I promise not to edit anything from your original stories ... I just may not publish them if you make me look like a complete idiot!!! ..... but to be honest .... I don't think it could any worse in that department than I have presented of myself here with my coworkers, and friends in the past couple of years. They have been pretty off the wall on a couple of occasions .... I know the issue is not funny, but I would so kill for some operating room videos of me being put under having been told of what I am like under the influence, or Hillary telling the story of me landing in the ER last year the night before her birthday and screaming that I didn't have an "F'ing Happy Place" .... and me ... not really recalling much of anything, or how long I had actually been in the hospital ... only to freak when coming to and finding myself in ICU!! I would also like you to include how these episodes may have made you feel at the time, fearful, anxious, unknowing of what to expect or do. I know that to be thrust into the situation can be frightening, but .... I am also hoping my friend "P" will share her initiation episode as well ... she certainly jumped to the plate by slapping me.... or at least that was what I remembered as I was totally caught by surprise in telling her (or thought I was trying to tell her, "J-U-I-C-E" ..... LMAO .... again, I know it isn't funny, but this is how I have dealt with this sort of stuff all these years. Shit happens, got to deal with it .... might as well do it with a smile and some laughter. ..... right?
So .... you up to the challenge? ... share you knowledge and how you may have helped ... or how I may have ruined a good time do to moodiness/attitude beyond belief, and what maybe you know now that you didn't know then. I sure would appreciate some input ... and I know that some of you are getting sick of me complaining about everyday happenings dealing with family.... cause that never seems to take a break ... just lulls for a bit.
Thanks for taking this request under consideration. I look forward to seeing/reading what you have to offer the public. :P .
Sunday, January 10, 2010
After thoughts ....
LOL... because with me, the lights always go on when there is no one around :D
In thinking after my last post ....
I opened a Facebook account and am hoping that in the transplant travels with my cohorts and caretakers ... that we will be able to post videos and photos of some of the area, as well as how bad I can really look on any given day ... lol. Also, we could use some ideas/help in the fundraising dept. This is a really bold request on my part (or at least that is my opinion), but ... we are going to try and see what we can do about planning another big sale in the next 4-6 weeks now that the days are getting a little longer and still warmer. I have had suggestions that the Facebook page will help in this manner, but I still don't know how??? So ... anyone who would like to help or make suggestions as to what we may be able to do would be so very much appreciated.
So far, with individual contributions from long-time friends and family together with the 900.00+ we made on the yard sale, we are pretty secure for the first 4-5 day trip. I am hoping the gas prices stop going up as they have been. California, although I have never been there, is a pretty expensive area from what I have been told. I have had people who work at the clinic with me introduce themselves and tell me they have friends and/or relatives in the SF area ... I think that is a grand gesture, but am a little uncomfortable about placing myself in a situation of not knowing someone and the possibility of creating havoc on someones peaceful existence ..,. even if only for a day or two. I just have no real idea of what to expect so am thinking on the what if this happens side ...
Not that the above is amusing ... but I do find some of the "recaps" of my being "stupid" as totally amusing. I know they often times scare the living crap out of those that witness these episodes .... which is why I am trying to get a couple of people, Hillary being the most animated story teller .... with her inflection of irritation with me .... LOL ... to be "GUEST BLOGGER" here on the blog and tell their experiences and feelings to the episodes and what happens, and what was done to get me back. Remember ... in every bad situation comes a small form of amusement and that is my motto and I am sticking to it!!
Ok ... well .... something for my followers to ponder on.
Thanks in advance for any suggestions and/or help that may be offered.
Peace and light to all !!
et
In thinking after my last post ....
I opened a Facebook account and am hoping that in the transplant travels with my cohorts and caretakers ... that we will be able to post videos and photos of some of the area, as well as how bad I can really look on any given day ... lol. Also, we could use some ideas/help in the fundraising dept. This is a really bold request on my part (or at least that is my opinion), but ... we are going to try and see what we can do about planning another big sale in the next 4-6 weeks now that the days are getting a little longer and still warmer. I have had suggestions that the Facebook page will help in this manner, but I still don't know how??? So ... anyone who would like to help or make suggestions as to what we may be able to do would be so very much appreciated.
So far, with individual contributions from long-time friends and family together with the 900.00+ we made on the yard sale, we are pretty secure for the first 4-5 day trip. I am hoping the gas prices stop going up as they have been. California, although I have never been there, is a pretty expensive area from what I have been told. I have had people who work at the clinic with me introduce themselves and tell me they have friends and/or relatives in the SF area ... I think that is a grand gesture, but am a little uncomfortable about placing myself in a situation of not knowing someone and the possibility of creating havoc on someones peaceful existence ..,. even if only for a day or two. I just have no real idea of what to expect so am thinking on the what if this happens side ...
Not that the above is amusing ... but I do find some of the "recaps" of my being "stupid" as totally amusing. I know they often times scare the living crap out of those that witness these episodes .... which is why I am trying to get a couple of people, Hillary being the most animated story teller .... with her inflection of irritation with me .... LOL ... to be "GUEST BLOGGER" here on the blog and tell their experiences and feelings to the episodes and what happens, and what was done to get me back. Remember ... in every bad situation comes a small form of amusement and that is my motto and I am sticking to it!!
Ok ... well .... something for my followers to ponder on.
Thanks in advance for any suggestions and/or help that may be offered.
Peace and light to all !!
et
Back to the grind
Hello everyone !!
Just a "quickie" to let you all know that I am still a little out of it .... (talking the feeling good dept) but will be returning to my second floor office with a window in the morning, and so looking forward to it. I have been in sweatpants all week except for the three hours at the doctor's and dad's on Monday. I am looking forward to getting back to it. I seem to get sort of lazy when I feel like crap. All this afternoon napping with Maggie on the couch has been relaxing and all, but it's time. The night before last, I actually broke my own Cardinal Rule .... I allowed her to sleep ON the foot of my bed !!! Neither one of us felt good ... ya ... and I can be a softy type sucker too!! Hillary nearly popped an eyeball when she saw us emerge from the bedroom yesterday morning .... together. All I could do was grin .... hehehe ... we don't call Hillary the "Enforcer" for nothing. She just mumbled ... "she's creating a monster." Whatever ... she keeps an eye on me and she was very well behaved.
Ok ... well ... going to tidy up my kitchen and prep something for my days worth of grazing tomorrow. I wish you all a FANTASTIC week!! I have a good feeling about the next couple of weeks ... even though I look and feel like $&*!.
Peace and light !!
et
Just a "quickie" to let you all know that I am still a little out of it .... (talking the feeling good dept) but will be returning to my second floor office with a window in the morning, and so looking forward to it. I have been in sweatpants all week except for the three hours at the doctor's and dad's on Monday. I am looking forward to getting back to it. I seem to get sort of lazy when I feel like crap. All this afternoon napping with Maggie on the couch has been relaxing and all, but it's time. The night before last, I actually broke my own Cardinal Rule .... I allowed her to sleep ON the foot of my bed !!! Neither one of us felt good ... ya ... and I can be a softy type sucker too!! Hillary nearly popped an eyeball when she saw us emerge from the bedroom yesterday morning .... together. All I could do was grin .... hehehe ... we don't call Hillary the "Enforcer" for nothing. She just mumbled ... "she's creating a monster." Whatever ... she keeps an eye on me and she was very well behaved.
Ok ... well ... going to tidy up my kitchen and prep something for my days worth of grazing tomorrow. I wish you all a FANTASTIC week!! I have a good feeling about the next couple of weeks ... even though I look and feel like $&*!.
Peace and light !!
et
Friday, January 8, 2010
UCSF
Hello ...
I did hear from Debbie, the transplant RN today. My application is complete and is being reviewed again by Dr. Posselt. I was asked to do another 7 day intensive log and then informed today that I should wait another week so that I am done with the steroid titration and the URI has cleared as both will disrupt BGs tremendously. Like I had stated before this was a six day titration and my pump has been running at 150% of the norm that entire time. That means changing out my site every 48 hours (approximately) as opposed to the usual 72.
Just an FYI .... as soon as I muzzle this dog ... I have some more work to try and accomplish here. (Trying to make up some hours at home). I can't wait to get back to the office for the quiet that allows me to focus on the work.
Will keep you posted on any other new developments. Maybe more definite news coming next week.
Enjoy the weekend!!!
et
I did hear from Debbie, the transplant RN today. My application is complete and is being reviewed again by Dr. Posselt. I was asked to do another 7 day intensive log and then informed today that I should wait another week so that I am done with the steroid titration and the URI has cleared as both will disrupt BGs tremendously. Like I had stated before this was a six day titration and my pump has been running at 150% of the norm that entire time. That means changing out my site every 48 hours (approximately) as opposed to the usual 72.
Just an FYI .... as soon as I muzzle this dog ... I have some more work to try and accomplish here. (Trying to make up some hours at home). I can't wait to get back to the office for the quiet that allows me to focus on the work.
Will keep you posted on any other new developments. Maybe more definite news coming next week.
Enjoy the weekend!!!
et
Thursday, January 7, 2010
Connections
Hey all ....
Well ... the application is complete .. and .... stress/anxiety levels are high on many fronts.
I am awaiting the next step. I have a good gut feeling that my first trip will come in the next few weeks .... (my gut is saying less than a month??)
I am prepared to work hard, on all fronts. Dedicating myself to the future of a life with great promise and hope ... LOL .... that word gets tossed around a lot lately. Without the hope and my faith that I can make a difference, I really have not much of anything.
I am going to focus on my job responsibility ... which requires much continued education. I am hoping to further my education if the transplant goes as I hope. I enjoy the college atmosphere ... the diversity of people and what brings them together.
After much prodding by several people, I opened a Facebook account last night. LMAO .... just what I need .... another learning page .... seems sort of busy for me, but I will give it a try. I am just hoping that ALL the people I saw on there and how quickly the page started to fill up with my life from past, present, and I guess .... the future .... LOL ... was sort of overwhelming. I have become quite accustom to my quiet, under the radar existence. :D So cut me some slack, I will get to viewing all the photos I have been asked to see, catch up with people, etc. I am hoping that my blog, the transplant journey, portals to networking opportunity etc. will spread amongst us. Help if you can ..... share the knowledge and wisdom with those who may want or need it and enjoy some laughs. If nothing else, I am hoping that I can post photos and video clips from my transplant travels on the site to share and invite discussion.
Until then .... I have work to accomplish here at home, both work-related and personal. Maggie has to be scheduled to go to the vet for an ear infection that is being somewhat persistent, and I have to go take my dad out to tend to a couple of matters.
Be well .... stay warm and dry, and enjoy the day !!
et
Well ... the application is complete .. and .... stress/anxiety levels are high on many fronts.
I am awaiting the next step. I have a good gut feeling that my first trip will come in the next few weeks .... (my gut is saying less than a month??)
I am prepared to work hard, on all fronts. Dedicating myself to the future of a life with great promise and hope ... LOL .... that word gets tossed around a lot lately. Without the hope and my faith that I can make a difference, I really have not much of anything.
I am going to focus on my job responsibility ... which requires much continued education. I am hoping to further my education if the transplant goes as I hope. I enjoy the college atmosphere ... the diversity of people and what brings them together.
After much prodding by several people, I opened a Facebook account last night. LMAO .... just what I need .... another learning page .... seems sort of busy for me, but I will give it a try. I am just hoping that ALL the people I saw on there and how quickly the page started to fill up with my life from past, present, and I guess .... the future .... LOL ... was sort of overwhelming. I have become quite accustom to my quiet, under the radar existence. :D So cut me some slack, I will get to viewing all the photos I have been asked to see, catch up with people, etc. I am hoping that my blog, the transplant journey, portals to networking opportunity etc. will spread amongst us. Help if you can ..... share the knowledge and wisdom with those who may want or need it and enjoy some laughs. If nothing else, I am hoping that I can post photos and video clips from my transplant travels on the site to share and invite discussion.
Until then .... I have work to accomplish here at home, both work-related and personal. Maggie has to be scheduled to go to the vet for an ear infection that is being somewhat persistent, and I have to go take my dad out to tend to a couple of matters.
Be well .... stay warm and dry, and enjoy the day !!
et
Wednesday, January 6, 2010
Hump Day
Hello all ....
Okay ... well .... breathing is much better, sounding not so pretty, but much better.
My boss doesn't want me around people sounding this rattly so I will work from home for the rest of the week and return to my office on Monday.
I got an email this afternoon from the transplant nurse. my "application is complete" and she was to have the transplant doctor, (his name is escaping me at the moment) review the documentation when he returned from clinic this afternoon. So ....... not sure how long this guy takes to make the big decision, but I am hoping .... nervously awaiting .... for a word to come in the next few days .... (the end of this week would be nice :). I don't know what is going on in the world but I feel the stars are moving quickly and in so many different directions. I seem to be drawn towards old family and friends, those who are held near and dear, always with the silent cheering.
Not much else going on new, I am trying to recoup and regain the energy needed to plow ahead. Dad is feeling a little under the weather still, Hilly made a store run for him this afternoon. She is pumped to start classes in the nursing program at the end of the month despite not having all the required materials yet ..... it all works out at some point. I keep telling myself that .... can only do what you have the power to control ... the rest is up to the man upstairs ... and the stars ... hehehhe ... Cosmic Baby !! :D
I am going to try and get some work in here tonight, make my bed with clean sheets and fresh pillows and hopefully sleep like a baby tonight.
Rest well my friends .... and stay warm (to those located back east) !!
et
Okay ... well .... breathing is much better, sounding not so pretty, but much better.
My boss doesn't want me around people sounding this rattly so I will work from home for the rest of the week and return to my office on Monday.
I got an email this afternoon from the transplant nurse. my "application is complete" and she was to have the transplant doctor, (his name is escaping me at the moment) review the documentation when he returned from clinic this afternoon. So ....... not sure how long this guy takes to make the big decision, but I am hoping .... nervously awaiting .... for a word to come in the next few days .... (the end of this week would be nice :). I don't know what is going on in the world but I feel the stars are moving quickly and in so many different directions. I seem to be drawn towards old family and friends, those who are held near and dear, always with the silent cheering.
Not much else going on new, I am trying to recoup and regain the energy needed to plow ahead. Dad is feeling a little under the weather still, Hilly made a store run for him this afternoon. She is pumped to start classes in the nursing program at the end of the month despite not having all the required materials yet ..... it all works out at some point. I keep telling myself that .... can only do what you have the power to control ... the rest is up to the man upstairs ... and the stars ... hehehhe ... Cosmic Baby !! :D
I am going to try and get some work in here tonight, make my bed with clean sheets and fresh pillows and hopefully sleep like a baby tonight.
Rest well my friends .... and stay warm (to those located back east) !!
et
Tuesday, January 5, 2010
UHG
Morning ....
Slept pretty well last night with the first day of steroid dosing (the biggest dose starts it off) and the Vicodin for the pain. I sit here now sweating profusely just breathing as I can feel everything starting to loosen up and therefore rattle, which makes me cough hard, pulling that muscle repeatedly and elevating the BG. Running the pump at 150% of normal intake. Okay .... enough with the bitching.
I hauled my happy ass out of the house yesterday afternoon and to the cardiologist's office where he proceeded to tell me that I was "normal" in all aspects as far as heart function. I was thrilled!!!! My heart rate and rhythm often have caused an issue since my early 30s. I got a copy of the report for my records, and stood there and watched as the woman behind the desk faxed that last piece of documentation to Debbie, the transplant coordinator. (Lots of Debbie's in my life :D) I don't know if she works today, but I know she is in on Wednesdays as that is the day the team meets to review potential recipients. (I have my fingers crossed). I am so hoping .... I have tried my very best to keep an upbeat, positive attitude in regard to the future, but with all that is going on in the world it is starting to have a domino effect on me directly.
In the statement above, I am referring to my declining health status, my job status, the economy, etc. I am low on supplies, my budget is on the bottom line, I have invested a large sum in my education towards a better position with the promise of being compensated, only to read an email yesterday stating that due to Arizona's lack of a budget, and climbing deficit that there will be not only a hiring freeze, but a rate freeze, and possible second cut in reduction of staff. I was promised that compensation upon my certification, which I acquired in November, I was placed in this job August 1st, that was the first promise of increase. Now I realize that the economy sucks, and that the clinic is funded by state and federal funds, but I have taken on three-fold responsibilities since taking this position, and have worked REALLY hard, sometime at the cost of my health status to accommodate and prove I am capable of doing the job and the hope of furthering my education to perfect it. Maybe I am worrying too much, but I can't afford to lose my job, as then I will lose my house, my car, and ultimately my life as I am too old now to live in a box under the overpass, warm weather or not.
Last night I shut my eyes, took slow deep breaths, tried to clear my head of any thoughts what-so-ever .... and was pretty successful ..... for a time .... but then I open my eyes and reality is still sitting there looking me in the eye. The kid is all stressed out, with her lack of financial aid, student loans, working full-time, going to school full-time (14 credit hours) and despite what she says on the surface, I know she is worried about me. I can only do the best for me, to alleviate the fear on her. I have voiced my feelings on many occasions. That I did not give birth to this glorious child so that I would have a caretaker in my so-called old age. Never my intent. I was thrilled to have been blessed with a creature that was not only a wonderful baby, but a fun toddler, a little adventurer in our plight to stay safe on all levels. We have always made a great little team. She would refer to the three generations as the "3 Amigos" ..... and we were a twisted group!!! LOL .... now we are minus the Amigo with all the wisdom to show us, or at least reassure us, that things always work out as they should. It is just beginning to feel like the blocks are stacking against us yet again. Sometime it is very difficult to place all the pressing matters into the appropriate compartments, and deal with them one at a time. I can honestly say that I have done this for so long, that I am starting to feel like I am losing my touch.
OK .... well .... my breathing has become calm again. My inhaler has kicked in ... the heat radiating from underneath all this hair is cooling .... I am going to keep my activities light today in hopes of going back to work tomorrow instead of projected Thursday as instructed.
Thanks so much for the continued support, prayers, good thoughts and light!! I do feel them flying my way ... anyone from the east coast interested in a trip to San Fran ... LOL .... I was instructed again yesterday by my endocrinologist that I am in no way to be traveling alone. (she had concerns about the steroids and my unstable BGs, lack of awareness, working, driving, etc., as was the cardiologist, both having asked if I had been working while sick these past few weeks ..... DAH!! ). Another fear in the back of my head. That at some point, (sooner rather than later) someone of these doctors is going to suggest I hand in my license. (That was a proposed threat back in 1997 on the East coast given the unawareness). I will make the world's worst dependent person!! I am used to doing for myself, I just recently learned how to accept help, and still am working on the whole asking aspect of it. I would give the shirt off my back to someone who needed help I could offer, I am just so not very good about asking for it myself. I have always preferred to put up the good front. This getting older and wiser shit is for the birds sometimes. Hillary tells me that I am very good in stressful, chaotic situations with an ease for making others more comfortable in a bad situation. Not my own I guess .... LOL.
Again ... I have some dishes to clean up while my baby-dog takes her morning nap. Hillary left for work over an hour ago so it will be a long day trying to stay calm and breathe to regain my energy and light for the new tomorrow. I will keep you all posted as to news I may get from San Francisco. I was reading last night about the drug that will be used in this trial and it is very promising. The FDA accepted the application for making it available in September .... 3 months after my application went to trial team. So I can't think of a better time to get in on this research. My faith in the FDA is not really that deep, seeing as I take a medication at times for my digestive track which is not even available in this country ... in large part, (again, my opinion, but can be backed up) due to the fact the patent ran out on the US being able to make any real money off the drug. I was told about this drug back in the mid-90s and here we are almost 20 years later, and still have to go outside the US to get it and it can help so many people with motility issues. I don't get it, other then the politics involved. I am not a big fan of politics either .... political correctness is not one of my strong points ... Most of you know ... if you don't want to know the truth, don't ask me cause I often just spout off what I see .... LOL ......
I am going to go chill out and sip on some tea, maybe slip back under the covers for a couple of hours, sort of chilly here this morning, and get a short rest in before my next dose of "roids."
Hope everyone has a great day !!
et
Slept pretty well last night with the first day of steroid dosing (the biggest dose starts it off) and the Vicodin for the pain. I sit here now sweating profusely just breathing as I can feel everything starting to loosen up and therefore rattle, which makes me cough hard, pulling that muscle repeatedly and elevating the BG. Running the pump at 150% of normal intake. Okay .... enough with the bitching.
I hauled my happy ass out of the house yesterday afternoon and to the cardiologist's office where he proceeded to tell me that I was "normal" in all aspects as far as heart function. I was thrilled!!!! My heart rate and rhythm often have caused an issue since my early 30s. I got a copy of the report for my records, and stood there and watched as the woman behind the desk faxed that last piece of documentation to Debbie, the transplant coordinator. (Lots of Debbie's in my life :D) I don't know if she works today, but I know she is in on Wednesdays as that is the day the team meets to review potential recipients. (I have my fingers crossed). I am so hoping .... I have tried my very best to keep an upbeat, positive attitude in regard to the future, but with all that is going on in the world it is starting to have a domino effect on me directly.
In the statement above, I am referring to my declining health status, my job status, the economy, etc. I am low on supplies, my budget is on the bottom line, I have invested a large sum in my education towards a better position with the promise of being compensated, only to read an email yesterday stating that due to Arizona's lack of a budget, and climbing deficit that there will be not only a hiring freeze, but a rate freeze, and possible second cut in reduction of staff. I was promised that compensation upon my certification, which I acquired in November, I was placed in this job August 1st, that was the first promise of increase. Now I realize that the economy sucks, and that the clinic is funded by state and federal funds, but I have taken on three-fold responsibilities since taking this position, and have worked REALLY hard, sometime at the cost of my health status to accommodate and prove I am capable of doing the job and the hope of furthering my education to perfect it. Maybe I am worrying too much, but I can't afford to lose my job, as then I will lose my house, my car, and ultimately my life as I am too old now to live in a box under the overpass, warm weather or not.
Last night I shut my eyes, took slow deep breaths, tried to clear my head of any thoughts what-so-ever .... and was pretty successful ..... for a time .... but then I open my eyes and reality is still sitting there looking me in the eye. The kid is all stressed out, with her lack of financial aid, student loans, working full-time, going to school full-time (14 credit hours) and despite what she says on the surface, I know she is worried about me. I can only do the best for me, to alleviate the fear on her. I have voiced my feelings on many occasions. That I did not give birth to this glorious child so that I would have a caretaker in my so-called old age. Never my intent. I was thrilled to have been blessed with a creature that was not only a wonderful baby, but a fun toddler, a little adventurer in our plight to stay safe on all levels. We have always made a great little team. She would refer to the three generations as the "3 Amigos" ..... and we were a twisted group!!! LOL .... now we are minus the Amigo with all the wisdom to show us, or at least reassure us, that things always work out as they should. It is just beginning to feel like the blocks are stacking against us yet again. Sometime it is very difficult to place all the pressing matters into the appropriate compartments, and deal with them one at a time. I can honestly say that I have done this for so long, that I am starting to feel like I am losing my touch.
OK .... well .... my breathing has become calm again. My inhaler has kicked in ... the heat radiating from underneath all this hair is cooling .... I am going to keep my activities light today in hopes of going back to work tomorrow instead of projected Thursday as instructed.
Thanks so much for the continued support, prayers, good thoughts and light!! I do feel them flying my way ... anyone from the east coast interested in a trip to San Fran ... LOL .... I was instructed again yesterday by my endocrinologist that I am in no way to be traveling alone. (she had concerns about the steroids and my unstable BGs, lack of awareness, working, driving, etc., as was the cardiologist, both having asked if I had been working while sick these past few weeks ..... DAH!! ). Another fear in the back of my head. That at some point, (sooner rather than later) someone of these doctors is going to suggest I hand in my license. (That was a proposed threat back in 1997 on the East coast given the unawareness). I will make the world's worst dependent person!! I am used to doing for myself, I just recently learned how to accept help, and still am working on the whole asking aspect of it. I would give the shirt off my back to someone who needed help I could offer, I am just so not very good about asking for it myself. I have always preferred to put up the good front. This getting older and wiser shit is for the birds sometimes. Hillary tells me that I am very good in stressful, chaotic situations with an ease for making others more comfortable in a bad situation. Not my own I guess .... LOL.
Again ... I have some dishes to clean up while my baby-dog takes her morning nap. Hillary left for work over an hour ago so it will be a long day trying to stay calm and breathe to regain my energy and light for the new tomorrow. I will keep you all posted as to news I may get from San Francisco. I was reading last night about the drug that will be used in this trial and it is very promising. The FDA accepted the application for making it available in September .... 3 months after my application went to trial team. So I can't think of a better time to get in on this research. My faith in the FDA is not really that deep, seeing as I take a medication at times for my digestive track which is not even available in this country ... in large part, (again, my opinion, but can be backed up) due to the fact the patent ran out on the US being able to make any real money off the drug. I was told about this drug back in the mid-90s and here we are almost 20 years later, and still have to go outside the US to get it and it can help so many people with motility issues. I don't get it, other then the politics involved. I am not a big fan of politics either .... political correctness is not one of my strong points ... Most of you know ... if you don't want to know the truth, don't ask me cause I often just spout off what I see .... LOL ......
I am going to go chill out and sip on some tea, maybe slip back under the covers for a couple of hours, sort of chilly here this morning, and get a short rest in before my next dose of "roids."
Hope everyone has a great day !!
et
Sunday, January 3, 2010
ER visit
Well .... I tried .....
Was up most of last night with this dry hacking cough which in turn pulled or popped something in my lower left abdomen (or the Michelin ...LOL). By 5:30 this morning I couldn't take it anymore and drove myself to the emergency room. It was hard to get a full breath and with each cough came the doubling over from the pain. Anyway ... spent four hours in ER, was one of my more flawless trips, BGs were stable on arrival, did bloodwork, chest X-ray, put me on O2 and gave me a breathing treatment. I dozed off ...... when it was all over I was told the upper respiratory infection had triggered an asthma attack which in turn pulled a muscle deep in my lower ab. (not exactly my idea of isolating a muscle group for a nice 6-pack!) It is so percise, I hope that it is in fact just a muscle. So .... I am now out ... the next 3 days of work, $50 bucks for drugs, god only knows how much towards this years deductable and I still feel like crap. I am to begin a 7 day titrating steroid run in the morning for the inflamation from the URI which is going to throw the BGs into all out chaos. (steroids are SO not good in the eyes of a diabetic). I will go off my pump for this round, as I have been having tissue issues....LOL.... sounds cute but it really isn't. The tissue can only take so much for so long before it starts to break down. I have been on my pump now for 11 years, and with the limited areas of rotation at 3 days tops for a site, tissue breaks down and absorption becomes a problem. So I will go back on the needle for this round. I can hardly wait ... I am so tired, wiped, just exhausted, I just want to rest and recoup. So with the worry of all this ... the med run and out of whack BGs, I get to worry about missing 3 days of work, and what sort of backup this will cause, we are already overworked and maxed out in the who does what department. I can't afford to became anything other than an asset to the company.
Ok .... just a quick update .... off to the bedroom.
Be well ..... I am hoping for good things, hoping for good things, hoping for good things!! :D
et
Was up most of last night with this dry hacking cough which in turn pulled or popped something in my lower left abdomen (or the Michelin ...LOL). By 5:30 this morning I couldn't take it anymore and drove myself to the emergency room. It was hard to get a full breath and with each cough came the doubling over from the pain. Anyway ... spent four hours in ER, was one of my more flawless trips, BGs were stable on arrival, did bloodwork, chest X-ray, put me on O2 and gave me a breathing treatment. I dozed off ...... when it was all over I was told the upper respiratory infection had triggered an asthma attack which in turn pulled a muscle deep in my lower ab. (not exactly my idea of isolating a muscle group for a nice 6-pack!) It is so percise, I hope that it is in fact just a muscle. So .... I am now out ... the next 3 days of work, $50 bucks for drugs, god only knows how much towards this years deductable and I still feel like crap. I am to begin a 7 day titrating steroid run in the morning for the inflamation from the URI which is going to throw the BGs into all out chaos. (steroids are SO not good in the eyes of a diabetic). I will go off my pump for this round, as I have been having tissue issues....LOL.... sounds cute but it really isn't. The tissue can only take so much for so long before it starts to break down. I have been on my pump now for 11 years, and with the limited areas of rotation at 3 days tops for a site, tissue breaks down and absorption becomes a problem. So I will go back on the needle for this round. I can hardly wait ... I am so tired, wiped, just exhausted, I just want to rest and recoup. So with the worry of all this ... the med run and out of whack BGs, I get to worry about missing 3 days of work, and what sort of backup this will cause, we are already overworked and maxed out in the who does what department. I can't afford to became anything other than an asset to the company.
Ok .... just a quick update .... off to the bedroom.
Be well ..... I am hoping for good things, hoping for good things, hoping for good things!! :D
et
Saturday, January 2, 2010
Off and Running
Hello !!
I hope everyone survived their New Years celebrations. I was in bed and out cold by 9:00!! The neighbors apologized for any noise they may have made, told them no worries, I heard nothing. I am still sick, am now thinking this isn't a cold. Been fighting this now for about three weeks, and now breathing has not only become an effort, but, it is keeping me awake and tiring to accomplish along with things like walking and talking. Hillary went down the night before last with the beginning effects, and my father is also down with some sort of bug. I just came in from running into town to pick stuff up for him to tend to himself with instructions that he was NOT to push it. If he felt tired, sleep, and to hydrate, preferably with water. He drinks soda and coffee. I can't for the life of me get him to realize that water does wonders and being elderly, they don't realize how easy it is to become dehydrated, especially here in Arizona where the atmosphere is so dry to start with. (Ya never really sweat, it evaporates when its really hot). This time of year, is just hard to drink as much H20 because it is not really hot, it is just mild (40-60 degrees during the day).
Anyway .... I see one of my doctors on Monday afternoon so I will have it looked into. Hillary called in sick for today as she is down too. Something is going around and landing people on multiple rounds of antibiotics and/or hospital stays for pneumonia. I don't need that right now, but am thinking I may be there or at least well on my way as with every cough I feel like a lower internal organ is coming to the surface.....LOL .... not my idea of a great way to acquire 6-pack abs. :D I have been pumping the water, the supplements, tea, and the Mucinex which has helped, but it doesn't really seem to be going away.... it is better, but not near gone.
I am trying very hard, and coaching Hillary too, on being more optimistic for this coming year. It is not always easy when your blocks are already stacked pretty high against you to be positive, but I do believe it can be done..... and I am holding out exceptional hope!! So I see this doctor on Monday, he will review the results of my echo and send off the results (hopefully he did this already, but in this particular case, I won't hold my breath) and then UCSF should be contacting me within a week, ten days top. I am trying to keep my anxiety level at a minimum, one not feeling good, it plays a role, and two, I have to try and maintain my focus, which has been pretty much all over the map in recent weeks, months I guess. I just can't believe that it is 2010!!!
So ... I am trying to do a few things without getting totally winded, but I am about to go lie down for a while seeing as I did my good "care-taker" tasks, two loads of wash, took the trash out, the dog out, and now the dishwasher is running .... sounds like a good plan for me to go elevate my lungs .... and breathe in that smell of Vicks .... sexy hey ?? ;D ..... LOL ....
Enjoy the rest of the weekend and be well !!!
et
I hope everyone survived their New Years celebrations. I was in bed and out cold by 9:00!! The neighbors apologized for any noise they may have made, told them no worries, I heard nothing. I am still sick, am now thinking this isn't a cold. Been fighting this now for about three weeks, and now breathing has not only become an effort, but, it is keeping me awake and tiring to accomplish along with things like walking and talking. Hillary went down the night before last with the beginning effects, and my father is also down with some sort of bug. I just came in from running into town to pick stuff up for him to tend to himself with instructions that he was NOT to push it. If he felt tired, sleep, and to hydrate, preferably with water. He drinks soda and coffee. I can't for the life of me get him to realize that water does wonders and being elderly, they don't realize how easy it is to become dehydrated, especially here in Arizona where the atmosphere is so dry to start with. (Ya never really sweat, it evaporates when its really hot). This time of year, is just hard to drink as much H20 because it is not really hot, it is just mild (40-60 degrees during the day).
Anyway .... I see one of my doctors on Monday afternoon so I will have it looked into. Hillary called in sick for today as she is down too. Something is going around and landing people on multiple rounds of antibiotics and/or hospital stays for pneumonia. I don't need that right now, but am thinking I may be there or at least well on my way as with every cough I feel like a lower internal organ is coming to the surface.....LOL .... not my idea of a great way to acquire 6-pack abs. :D I have been pumping the water, the supplements, tea, and the Mucinex which has helped, but it doesn't really seem to be going away.... it is better, but not near gone.
I am trying very hard, and coaching Hillary too, on being more optimistic for this coming year. It is not always easy when your blocks are already stacked pretty high against you to be positive, but I do believe it can be done..... and I am holding out exceptional hope!! So I see this doctor on Monday, he will review the results of my echo and send off the results (hopefully he did this already, but in this particular case, I won't hold my breath) and then UCSF should be contacting me within a week, ten days top. I am trying to keep my anxiety level at a minimum, one not feeling good, it plays a role, and two, I have to try and maintain my focus, which has been pretty much all over the map in recent weeks, months I guess. I just can't believe that it is 2010!!!
So ... I am trying to do a few things without getting totally winded, but I am about to go lie down for a while seeing as I did my good "care-taker" tasks, two loads of wash, took the trash out, the dog out, and now the dishwasher is running .... sounds like a good plan for me to go elevate my lungs .... and breathe in that smell of Vicks .... sexy hey ?? ;D ..... LOL ....
Enjoy the rest of the weekend and be well !!!
et
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