Saturday, May 11, 2013

One of my favorites

Hi ..

While packing my belongings I came across some long put away CDs ...
and began to listen while attempting to look fluid.  James Taylor is probably one of the only artists I have ever seen ... (many times, 1st in 1977 @ Harvard Stadium .. (anyone remember this?) and he had a whole LOT more hair); he sounds better in person than on any album!!!

This particular tune has been a favorite of mine for many, many years. Along with that, JT's music speaks from the heart ... and for that, I have always found him soothing in times of ... well ... in a lot of times. :P 

http://www.youtube.com/watch?v=uokWBMU02Ug

Recorded in Rotterdam ... in one of my favorite countries too!!!

ENJOY .... and a wonderful weekend to all!!!
If you love 'em, tell 'em!!!

Peace and Light
~et~

Friday, May 3, 2013

This is SUCH a promising story

I love this story!!
This is facinating science/medicine and I wish Hannah all the best life has to offer!!!

http://www.nytimes.com/2013/04/30/science/groundbreaking-surgery-for-girl-born-without-windpipe.html?pagewanted=all&_r=1&


and with this posting, I too, am moving forward to attempt a new life ... a new way of life, and it is far from over due for me to move on. Threads have been severed, my time has come to finish them and wear my threads proudly.


Photo: The Omnipresent Soul

Enjoy the weekend!!
Peace and Light
~et~

Tuesday, April 30, 2013

It's all free-falling from here

Good Evening ... world;

What a difference 24 hours can make in ones life.
I got hit a multiple of times ... sort of like getting hit behind the knees ( who remembers doing this to others? haha) I'm still moving and I know I am sitting down.

I can't begin to explain some of the happenings in just the past week ... then add today, which apparently began at 7:50 with a process server.  Then a brain therapy session, (i'm still not sure what the hell we are suppose to be accomplishing here)

I'm going to hit the pillows after a deep, deep shut off of my brain and hope for a better day tomorrow.
My mantra through this entire "ride" has been, if the opportunity is given to me to awake each morning, the least I can do is give the world my best shot. However ..... (you'll all just have to wait for the series) ... my right hand (dominant mind you) may be permanently damaged in my function.  Hmmmm .... chock up another one for the "systems."

On that note ... I am going to lay my head down and envision big, warm, solid arms to hold me in rest.

Peace and Light to all!!
Be good to each other ... please.
~ et ~

Sunday, April 28, 2013

I'm wondering ....

Hello,

Found this cool, interesting (for the parts I got) article on the inflamatory response.
All I can wonder is ... especially if you see BOTH of my poor lil hands today :(
They resemble midgit catchers mitts .... it has been another morning of dropping s$%^!!

http://www.sciencedaily.com/releases/2012/04/120402162546.htm

I SO NEED to pump up my "stemmie" supply!!! I hate it when it is your own body rendering attack.

Wishing all a peaceful and stress free week!!!
Peace and Light
  ~ et ~

Saturday, April 27, 2013

I'm thinking the time has come ...

Hey All!

Now, for most, the below task would be fairly simple.
I just tossed the flipping thing as my right hand, my right eye, my brain ....
I have no clue what is wired to what these days ...
In any event, I have done nothing but drop things today ... (may have overdone yesterday) and my right hand/forearm/ and today, all the way up into my shoulder .... which means only one thing ....

I can't wait for justice to prevail, I will be calling my all time favorite ortho guy on Monday.  I guess it's time for me to pay through the nose for someone to talk to me in that southern charm tone ... LOL .... yeah, Go ahead, cut into me, make me scream in pain, lol ... just allow me to use a better portion of my hand before the nerve damage takes over and I lose function all together. I trust this man explicitly .... I am right-handed after all, and these past few months, each day I lose more of the function, and the burning pulling of something in there that shoots clean up to my shoulder, escepally at night.

Anyway ... I'm going to kick my task list to non-existent today and just be my new found ADD-self!!!
At least I am laughing .... I have too, I can't believe some of the completely stupid things I am finding myself doing .... peanut butter in the freezer ... something else that should have been in cupboard, was in the closet .... crazy and frustrating as I waste a lot of time roaming around looking for stuff .... at least I get my exercise.  So .... let's play ... you can chime in with your "humorous comments" .... wonder how many of you would say the same things I tell me and then bust out laughing .....



Riding the wave ....
Peace, Light and a Great weekend to all.
et


Tuesday, April 23, 2013

This STOKES my enthusiasm

Hi ~

I just wanted to post this news article on my friends with StemGenex ....
Collaboration is how it gets done folks. 

http://www.prnewswire.com/news-releases-test/stemgenex-on-exciting-new-adult-stem-cell-based-therapies-for-auto-immune-diseases-204279071.html

Just makes me feel good, restores some of my fallen faith in humanity. Enjoy the read ~
Peace, Light and Love
et

Friday, April 19, 2013

Prayers for my hometown

Please pray for Boston, my hometown.

Yes, I was born and bred in the Boston burbs.
Today's situation has my loved ones, and friends in a lock down mode, within less than a mile of what is happening today.  The entire situation just breaks my heart. I have many, many memories of our Boston Marathon outings, the family fun. I worked, played, and have many friends and loved ones right in this area of current danger ..... The victims of this tragedy are in my thoughts and prayers for strength and faith that they will survive these horrible acts.

My heart is in Boston, as you can take the girl out of the city, but you can't take the city out of her heart.

In Peace and Light
et

Thursday, April 18, 2013

I don't get too excited about much these days

Greetings to my readers, and trolls alike.

This link is to the DRI - BioHub webcast a couple of weeks ago.
Not only did I really enjoy the webcast live, I am going to look forward to watching it again.
This is such an amazing collaboration of passion and science.

http://www.diabetesresearch.org/BioHub-Webcast?srctid=1&erid=1301700&trid=e7b69380-ce0d-4c3e-ae26-fbf0662cbdcc

Enjoy the read!!
In continued peace and light
et

Sunday, April 14, 2013

Please, don't define my life as "tragic"

Good Sunday to all!!

Again, I apoligize for lack of posting. I am doing my very best to move forward, in life, in recovery from my injuries, as well as trying to maintain some sort of control in regard to my T1.

In conversation with a family member the other day, and a friend or 2 over the past few months, it has been stated that my life appears "tragic" to many. I can't help myself but chuckle at statements like this. My life is not tragic, but any means of the definition ... at least not in my opinion.  As a middle schooler, others made similar comments to my daughter, regarding life with me .... again, and she stated this, "she lives with it ... it does not define her!"  Out of the mouths of babes. 

In relation to the past 12-14 months ... my life has taken a turn that I had never imagined for myself. A complete transformation of sorts ... but in my heart and soul, I am the same person I have always been, just with a weeeeeee bit more challenge.  I am doing my best to work my way through all these changes ... and to be honest with you, it is sort of a liberating experience.  I am allowing myself the time, and the failures of such, to make my way.  I don't know how to put a price on the things I have lost ... that is not my main objective ... I DO, however, want those holding the cards, even though these individuals have done and been in the wrong, i.e., at fault .... to do what is right. I am skeptical at best.

I have learned even more about who I am, and what I am capable of and my compass to aim me in the appropriate direction so that I may move forward in a positive, serene, sort of manner. I know what I like, I know how to enjoy those around me ... and have chosen to surround myself with those who WANT to know me and what makes me get up in the morning .... lol .... I guess what some call "tragic", I call character strengths ... hehehe ... I am looking forward to being able to put my book project into some sort of tangible sort of income and look to helping move the stem cell science to the front of today's healthcare issues.  I am sick to death, no pun intended, of the wrong sorts of folks calling the shots on my life ... last time I checked, I did reside in a "free country" .... and I don't feel my take on it, is completely off base. 

Anyway ... I am going to take today and tomorrow rather easy ... just trying to finalize some of the last things to rid my surroundings of.  I am no different from you, I put my pants on the same way, cope with the same sort of self-doubt, and questions about the future many do, I just do it with obstacles of Type 1, the chronic, potentially fatal disease in which I have lived and dealt with my entire life ... or at least 40 of the last 50, and a brain injury inflicted on me by an individual who thought his actions apparently are of no fault of his own, and that my status has nothing to do with him or his actions.  I move forward ... regardless of my "status".  I have some really great people in my corner, excellent therapists, going beyond what I believe if the scope of involvement, wanting "what's right" .... and looking out to make sure I am, at least taken care of in terms of covering my expenses in the medical area alone, never mind the "pain and suffering" of it all. I don't know how to put a price on anything like that.

I am off to do some packing of my worldly possesions ... hehehe ... wishing you all a comforting, happy, and relaxing sort of day.

Peace and light
et

Monday, April 1, 2013

Interesting Article on Gene research and Type 1

I am not going to knock where the science is moving forward faster.
It is a collaborative effort on so many levels, and world-wide attention is bringing
some of the US scientists to light ...

Enjoy the read.

http://www.abc.net.au/news/2013-03-08/wa-researchers-crack-diabetes-testing-code/4560306?section=wa


Peace and Light
et

Sunday, March 31, 2013

Already in Clinical Trials

This is going to be one to watch.
This could be very promising, and is very interesting.

http://www.rctherapy.net/diabetes-alternative-treatments/

Hope everyone enjoyed a day of uplifting peace.
Peace, Love and Light
et

Tuesday, March 26, 2013

One step forward .... to a big leap!!!

Hi,
Check out this video from the DRI and the information on the BioHub which is an amazing collaboration of science and medicine. THANK YOU to the DRI .... I like to refer to them as my "Dream Team" .... a passion to find a cure.

http://www.diabetesresearch.org/BioHub

Amazing, inspiring, and with my continued hope.
Peace and Light
et

Sunday, March 24, 2013

WSJ Article

I am not a science fiction fan, not a trekkie, etc.
This is beyond.....and so totally amazing!!!

Enjoy the read.

http://online.wsj.com/article/SB10001424127887323699704578328251335196648.html

peace and light
et

There is a season ....

Hello,
Happy Palm Sunday to those who celebrate the faith.

It is, as written, a season of rebirth .... Spring brings new growth, a new outlook.
The dead, die off, the shedding of skin, the leaving of the nest, etc ... all sorts of metaphoric type statements. You get the idea.

I'm sorry I haven't made many "personal" posts in the past months ... not even sure how many it's been.
Here ... is just a tidbit of what my life consists of these days:

Vision therapy
Cognitive therapy
Psychotherapy - to learn and cope with all the life-changing things that occurred in this accident.
Not to mention - I must remain as compliant as possible with doctors I saw all along, my endocrine, my neurologist, my "lady" doc, and an occasional PCP visit. Oh wait, let's add on the loss of my job, my health insurance, my home, my income as of 2 weeks ago, and my baby girl moving away. This happening sent a couple of my providers into a major tizzy.  Oh NO ... she is all alone with only the supervision of her dog!!!!  The "SYSTEM" in which we are too reside ... sucks!!! From the top down. I have, in a nutshell, become a statistic .... people are being expected to do things, big things, everyday committments, with NOTHING, and it isn't a place I plan to hold for much longer.  I am at a point in my life, like the season, in which I must let go of all the things I have NO control over ... and start anew.  I must let go of those who hinder my recovery, hold on to bad vibes in those I have, again, no control over, and most, is of no fault of my own. 

 I am SO completely and totally blessed with the souls that inhibit my life .... and the memories of those who had, but now are only memories, guiding me in a sense, from the other side. It is a place in which I am not afraid to venture, I am not ready yet, but for which I have already been there and back ... it is clear, that my presence on this plane is not complete. I must find my direction, and I am SO very grateful to the people who love me, care about me,  and the therapists who have placed in my path to help me learn a new way to get by.  Maybe not the way I hoped of a year or so ago .... but .... have I ever really had a plan???? Not really. In hindsight ... been winging it my entire life. Maybe now, I will have a goal, a place in which I hope to land, and reap a quiet, inner reward of peace and contentment.

and .... there goes the illustrious new "brain fart" (a daily irritating occurrence)... the thoughts are gone. So with that, I wish peace, love, contentment, light and a positive outlook. Miracles can and do happen .... we must believe and use the knowledge, compassion, love and light to move forward to better and more beautiful things this spring season. 

Have a peaceful day!!!!
Be good to you, be good to each other.
With love and light
et

Wednesday, March 13, 2013

Absolutely NO direction

Hi Everyone,

Well ... I really do wish I could write more :(
I have no real direction ... concept of time, most times, down right lost, empty.
So ... I don't know how I am doing it, as I am beyond exhausted ... I'm not sure I have ever felt as I do in recent months. At least, when I had a "terrible life experience" ... ( this sort of comment makes me laugh, thinking only I knew what went on behind closed doors ), I had my brain to help guide my heart. My brain, doesn't play well without some serious direction ... really....?? This is what I ask myeslf as well. 

Anyway ... today, I am blank ... my head is full ... as in congested, and I can't afford, on any level to get sick where I would have to seek the ER .... not on my agenda!!!!!!! It's not written in my planner .... no where .... if it ain't there ... it ain't happenin' .... I have a hard time even LOL these days.  I have to do some packing ... today is auction day :/ .... not sure what tomorrow holds ... but then, I just want to get through today ... rest, fluids, and a couple (hopefully) of needed to do tasks here in the house.

Thanks to all who continue to follow me, my antics, the research which is making great progress in coming to the forefront of the science/medical brain children. I am grateful to these souls, world-wide for their efforts and passions of finding cures ... not just Band-Aids, i.e., pill pushers .... at exuberant costs to us poor, hard-working stiffs.  We really should look hard at socialized medicine ... an honest pro-con approach. Then sum it up .... wonder if I will live long enough to see something positive come from this great nation.

Have a wonderful day!!
Peace and Light
et

Tuesday, March 12, 2013

What soothes me

http://www.youtube.com/watch?v=NoJoHRnogbc


How ever many years it's been since his passing .... his voice, on so many levels,
gospel ... rock ... soothes me still. This tune in particular, been running in my truck.
enjoy ...

He is holding my place with the angels ... 'cause there is a helluva party gathering.

Peace, Light, and Love ~ Be good to each other.
et


Monday, March 11, 2013

Just Because ....

I am drained
mentally, physically, and emotionally .... it is dark.

Yet, I remain hopeful .... for my future, my friends and loved ones,
Prayers for those who hold out hope ... that the world will change.
... for the better.


Peace, Light and Love


Monday, March 4, 2013

VERY EXCITING NEWS!!!!!!!

PLEASE ~
Check out the links below. I am so very much looking forward to some point tomorrow reading a very promising piece of announcement. It is SO much closer than I ever thought we would get thus far.

http://www.sacbee.com/2013/03/03/5229742/can-stem-cell-treatment-cure-type.html

And: The Diabetes Dad Blog (He also has a FB page) and always interesting, real writes.

http://diabetesdad.org/2013/03/04/this-could-be-it-what-we-have-been-waiting-for-since-diagnosis/

Have a wonderful, peaceful evening!
Peace and Light
et

Friday, March 1, 2013

More exciting stuff from CIRM and UCSF

Happy Weekend to All!

Check out this video clip. Totally amazing stuff happening in this venue.

http://cirmresearch.blogspot.com/2013/03/a-little-white-board-magic-turns.html

Peace and Light
et

Saturday, February 23, 2013

Stem cell news 2-13

Hello ... hope everyone is well.

http://www.fightaging.org/archives/2013/02/an-example-of-the-future-of-stem-cell-therapies.php

A link to some very cool reading.
Have a wonderful weekend!!

Peace and Light
et

Tuesday, February 19, 2013

A clarification

Good Day Mates!!!

I just wanted to make a statement in regard to my post on the "Lymph node Saga."

My issue with "pissed off lymph nodes" had nothing to do with my ASC treatments.  I had the issue come to light after a couple of cardiac catheterizations, and an alleged "hernia", which as it turned out, was the lymph nodes in my right groin. 

I just wanted to make that known, as I see that is one of my posts that seems to get "hit" frequently, and I know that cancer is often a side effect of certain treatments involving stem cells and antirejection medications.  I am firm believer that without my treatments, I would truly not be here today to speak of the positive impression treatment has had on my life.  My life, has tested the limits .... hehehehe .... and I hope to continue testing the limits in my search for a cure.

Today, holds back-to-back therapy appointments which means my brain will be pretty overwhelmed by days end. :/

Have a wonderful day.
Peace and Light
et

Monday, February 11, 2013

Everyday another step forward

Good Morning, and
Happy Monday,

I am sick with this stomach bug, again, 2nd time in a month or so.
Have had some "tissue issues" past couple of months. I am not sure why, perhaps ...
40 years of poking has caught up with me ... LOL ... I am running out of places to rotate my pump effectively.  I have changed cannula lengths ... using 9mm and 6mm, depending on where I "stick it."

In past few months I have been diagnosed with both B12 deficiency and low D values.  This last one baffles me ... I live in the Valley of the Sun ... how do you go Vitamin D deficient?? Both ordered and diagnosed by my neurologist. I don't know if these things are related to the head injury or not? and if so, why? Any opinions ... hahaha ... really? I am open to suggestions from those who hold more memory.

Check out this link on another exciting step towards the T1D cure.

http://viacyte.com/press-releases/viacytes-role-as-a-leading-cell-therapy-company-bolstered-with-the-issuance-of-20-patents-in-2012/

Enjoy the day, stay safe, warm and dry!!
Peace and Light
et

Friday, February 1, 2013

LOVE OF LABS as Assistance Animals

Happy Friday to All!!!

I found this website through Kathy's blog on her New Islets, as well as, her training experience. Absolutely heart-warming!!  The video below is moving, and for many, a harsh reality to life that many never understand. 

Grab the tissue box, but please stay focused on the cure!!! I am so hopeful that the cure is right around the corner for these little people (myself included). T1 DIABETES is NO LIFE for any kid to have to endure.  I am so happy that there are SO many more outlets today for support of kids and parents alike. I know that I would never have survived this long without the dedication of my mom, who was a cheerleader with a heavy heart. (I never understood this until I was myself, an adult & parent). 

http://www.youtube.com/watch?v=_NIyXKjdZTk&feature=player_embedded

I am going to do some more reading into this phenomenal kennel and services. What a wonderful adventure to support!!! And .... as a lab lover, I can honestly say there is no better lifeline for anyone!! They are smart, loyal, loving, easy to train and always there for you!!! I know my Maggie loves me when I can't stand myself, especially if I am high. She is always beside me and she becomes very attached and attentive if I have to leave and she can't come with. She follows me to the kitchen making sure that juice goes down fast or she is nudging me. My lifeline was not professionally trained, therefore she can't be with me 24/7 like I wish for at times, but, I do believe that some dogs have a natural instinct for this stuff  .... it has always been something about animals in which has fascinated me my entire life.

Just thought I would share my love of labs, and the message that we need a cure. Please put your support behind research .... no matter what disease you are hoping to eradicate!!!

Have a wonderful, safe, and warm (for many) weekend!!!

Peace and Light
et

Thursday, January 31, 2013

Amazing Advancement

Not sure what I just did, but I think I wiped out my previous post.

Let's try again:
Good Morning and look what I found in my morning news.

Today's LA Times posted this story ~

http://www.latimes.com/features/health/la-na-stemcell121107,0,3728721.story

I think I would like to try my own science project ~ growing my own new pancreas in a petri dish in the bath!!! LOL .... yes, my twisted look at the future, a future with NO devastating diseases!!

Enjoy the read, and have a wonderful day!!
Peace and Light
et

Tuesday, January 1, 2013

Let's move forward in 2013

Happy New Year to one and all!!!

My wish for 2013 is .... to regain my health, accept the status of my TBI, and move ahead to bring awareness to stem cells and Type 1 (and a few other dreaded diseases)  .... and be content in who and where I am while continuing to make recovery. I also hope to make it my mission to push forward in my support of some of the folks making such impressive strides in the science of adult stem cell usage.

Below please find a couple of links that can be not only helpful, but very informative.
PLEASE .... let us move forward, with kindness, patience, and understanding to make the very best of the world we live in. Be kind to yourself, be kind to each other. A smile, a touch, a hug, a kind word ... they all make such a BIG difference in life. Do not underestimate what these seemingly small gestures can do to make us better people.

http://www.ascrnetwork.com/

ASCR network is a great place to find clinical trials all over the world, as well as here in the US. Also has great up-to-the minute happenings.

http://www.celltherapyfoundation.org/

I have the Cell Therapy link off to the side here on my page. Let's see if we can help them become a little more known in 2013, they are really making some amazing progress on a whole lot of platforms. (they can be found on FB as well). Lots of great people, doing great things!!!!

Enjoy the day ... and all my best to each and every one of you who continues to follow my antics.

In Peace, Light and Love
et