Monday, July 30, 2012

A couple of positive results

Happy Monday!

Just a quick update on some recent labs.
I am happy to report  that my most recent A1c as of last week came back at 6.6, down from 7.2, three months ago. I was very disappointed with my last result, but I did undergo that prednisone treatment again back in March. So 6.6 is an awesome change.
Also down are my thyroid med, my insulin intake, and my insulin to carb ratio was tweaked again to 1:16. My basal rate is down to 0.6 uph. When I started this adventure I was at 1:10 with a basal of 0.7-0.8 uph. That is a pretty significant change in numbers all around. That pleases me, and I remain hopeful that as I move along with stem cells, that the research comes flyin' in sideways!!! LOL

I am still awaiting the biopsy results from the eye lid biopsy ... I am really hoping that the chuck removed from my lower eye lid grows back ... ahhaha .. and that the lashes grow back ... I look a little wierd. :/

I will report on the next wave of tests/screenings sometime next week after I undergo an ultrasound on Friday morning...... and I continue to breathe ... if somewhat more slowly in remaining as calm as possible.

Wishing everyone a fabulous week!!!
Peace and Light
et

Friday, July 27, 2012

Todays articles of interest

Happy Friday to ALL!!!

Below you will find the links to this mornings articles I found of interest. Both very promising stuff.

I would like to take this opportunity to wish all the athletes in the London games a great experience. I love watching some of these folks and the absolute amazement of the human body. Nope, I am not an athlete, I do a great job at being a "supporter" ... LOL.

I am still waiting on lab results, and will be undergoing a screening ultrasound to check for what could possibly be an abdominal aortic anerysm ... I REALLY hope that this is NOT the case, and if it is, I am seeing a local hospital, and a God complex MD to be placed in a very disconcerning  situation. I am currently on a round of antibiotic for a sinus/head/neck infection, apparently having let it go a little to long. These days, I find it difficult at times to determine what may be one thing, or another. I was unsure of where and what the pain may have been and thought I may be able to "tough it out." So, now, I am not to be in the sun for 10 days .... does anyone have any clue how fast tumbleweeds can multiple and grow in ten days ... LOL ... my yard already looks like the jungle!!! I will attempt to mow at dusk ... otherwise, I am in for a weekend of being hunkered down here in the house, trying to accomplish some of my therapy projects.

So ... here you go!!! Some interesting reading that will affect many, many patients, and not only diabetics. I still get so incredibly irritated with the FDA. Where do they get off telling me, or anyone, that what comes from our bodies is a drug!!!???? They are holding back precious research and treatments trying to figure out how to make the almighty buck ($$$$$$$$).

http://blogs.nature.com/news/2012/07/court-ruling-fda-can-regulate-stem-cell-clinics.html

http://www.dnaindia.com/india/report_stem-cell-cocktail-can-take-transplant-patients-off-drugs-in-2-yrs_1720483


Wishing everyone a wonderful weekend of contentment and happiness.

Peace and Light
et

Wednesday, July 25, 2012

Encouraging news on the research front

Check out this article in todays press releases on spine surgeons here in California.

http://beckersorthopedicandspine.com/spine/item/12703-20-spine-surgeons-researching-stem-cell-treatments

Some pretty exciting stuff. I continue to pray for the intelligence of those passinate about finding cures, and more humane treatments and less pharmaceuticals. I am all too aware of the need for pharmaceuticals ... without them, folks like myself, would not survive very long. Insulin, for example, keeps me alive. However, I have seen and experienced such changes that I remain a verbal advocate for the science, as it can only get better with new ideas, practices, and the data needed to move this forward.

I will try and post a more "personal" update on things going on with me currently. Since my accident, my life has been altered permanently. So much for that "Only a concussion, and it's just going to take time." Eight months or so after the fact, and now it is permanent, with all the work on me to learn new ways to remember and focus on the things I once found so interesting, I have to place myself in another realm.

There is still so much going on, doctors to report to the attorney, legal issues related to the accident, and medical coverage, which I am about to lose and waiting on decisions from SS. I had appointments with neurologist, endocrinologist, lab, PCP, and now scheduled to undergo ultra sound to determine if there is an abdominal aortic anerysm present .... some odd symptoms came about after the accident .... still, so much uncertainty, and I can do no more than do my best to cope with it all and remain alive in the process. I feel like I am making progress .... but then it is pointed out that yes, but not the sort of progress I had hoped to happen months ago ...

Think I am beginning to wander. So I am going to do a few household chores, chill out with Maggie, as she is not a big fan of monsoon season here in Arizona.

I wish all a wonderful day.
Be good to yourself, be good to each other.

Peace and Light
et

Wednesday, July 11, 2012

As I begin the 49th year ....

Hi to All my WWW fans!!

Again, I will apoligize for my far and few between posts.

As I begin my 49th year of life .. lol ... yes, I was given another year last week as Lady Liberty celebrated, so did I. The comparisons between where I was a year ago and where I am now, on so many life levels ... is almost a daunting thought.

Last year .... I had a decent job, making decent money, I was content, for the most part, I dealt with the passing of my dad and the sibling chaos that followed. Became an only child ... LOL ... my health seemed to be on the upswing, in spite of a few speed bumps, and I was not as uptight about making sure my bills and such were all paid. Yes, I was no princess, not wealthy by most standards ... but I was content and happy about looking forward to what 2012 would bring me.

Today .... last week, I turned 49 ... this is the 4th birthday that came and went without my mother. Since her passing in 2008, I guess I have been running on auto pilot. Some would say I was running on AP for long before that date. In 2009, I started this blog, applied, tested, and was rejected from the NIH trial for islet transplant. Plowed on & over the disappointment to find my friends at Stem Genex and underwent my first adult stem cell treatment. AMAZING results got me to spouting off results and the oh-so-many added benefits I acquired from treatment. Since this past December, I was involved in the head-on collision, lost my new car, a good portion of my memory, on the short-term level, I have lost my decent job, decent pay, a couple of pissed off lymph nodes were removed, I am still weeding through 80 years of my parents belongings ... most all of it to be shipped somewhere else, and doing a lot of personal cleaning and disposing. My daughter became an RN, can't find a job in this area ... I acquired a hell of a case of depression .... imagine that!!!! Along with a level of physical pain which I thought I handled very well, given circumstances. I am still waiting on a settlement of some sort, while being told to concentrate on my recovery, and still under the care of multiple doctors for such.  Yet .... this just blows me away .... the added stresses of not knowing where, when, how .... no one can tell me if I will ever recover from the entire effects that have landed on me. It has taken me months to come to grips with the fact that I have no real control over this particular situation and to allow the attorney to take care of all the legal stuff while I try and figure out how to fill out a multitude of forms for multiple organizations/collectors/doctors, etc ... I am not a big fan of relinquishing my control ... LOL ... and most of all of this stress and frustrations has in some manner effected my insulin intake, blood sugars, my teeth ... OMG ... my teeth. I had a couple of teeth chipped in the accident, as well as some pain involving the grinding of them in my sleep,  and have not yet had them restored ... well .... it takes money ... and I have not, until recently had ANY $$$ coming in with the exception of some help from a friends. Without these friends, who have supported me on so many aspects of this happening, emotionally, spiritually, physically and yes ... monetarily as well. They are one of my most special blessings!! There is MUCH stressful topics to be had ... yet out of my control. It is very difficult, as I am sure so many can relate, to not stress given the economy. Along with all those reality issues .. I have the effects of all of this on my body ...

With all that ... my memory is still foggy on many levels, I confuse easily, especially if I am tired. I got these new super lenses ... lol ... I refer to them as my Mr. Magoo glasses. I can FINALLY see straight and it took 8 months for a doctor to tell me I was not crazy and there was a clear vision problem due to the accident. My new glasses are working well. I have had them since Friday ... I still am having a bit of issue in getting use to them as they are heavy on the bridge of my nose, and I am doing the exersizes told to do in order to make the vision "clear" .... which at times calls for some crossing ... it can be nauseating, and headache producing. But ... each day seems to get a little easier ... can't drive in them yet ... LOL ... I tried and it was like being on a really bad carnival ride!!! I can feel the changes happening in life ... some good, some not so much ... but for today, I was given the gift and I will utilize it to the best of my ability.

I am beginning to wander, and my face and head hurt again ... I have had no choice but to let my body direct me lately ... therefore, when it screams .... I listen!!! Regardless of how friends or HT may be hurt or disappointed by my inability to play (as in life by "normal" standars). I thank all for the support and encouragement as this has not been an easy leg of the journey .... and I feel very alone at times .... some folks have had a difficult time trying to relate to the changes in me ... I am still in here ... just a little slow on the uptake .... and when lost, most times I just sit quietly and try not to worry what was just said, or think about it too hard ... remains very frustrating for me, I can only imagine how those around me feel...??????

I will do my best to improve my postings, but in reality ... my focus isn't what it was and I distract sort of easily at times..... most times. Even though I feel I am making progress ... changes are occuring, and I am trying to be more aware .... but it seems to be an awareness of a higher caliber ....

Thanks for reading my continued rambles .... I hope to try and undergo my 3rd treatment by the end of this year .... I know, seems close, but I need to re-establish ... regenerate so many levels of my makeup ... hehehe .... I know there have been some high quality improvements with this past treatment, done right here in California, that I am confident that together .... we will gain the upper hand. Stem Genex has added some other videos of patient statements, and I am SO HAPPY to say I have met several of these people and the amazing stories they have to share on the changes and improvements they have experienced ... you can check them out on YouTube-StemGenex..... of course, you can find me out there as well!!! I was in the midst of my head injury issues when this was taped, and despite that, I hope I came across somewhat intelligently ... hehehe ... there were times when my thoughts just .... poof ... gone!!! Life is a game ... and I am still trying to play at a competative level. (I have to laugh, or I will cry).

Be well ... Be good to each other, Be good to yourself!!
Peace and Light
et