Just wanted to give a shout out to David, my newest follower here on the page. Please feel free to make comments as I see you too, have undergone treatment using your bone marrow. I would love to know how you responded, and changes that perhaps you have undergone. We could do comparisons of the treatments.
I will say that I was overjoyed to know that I could have my treatment done without the totally invasive treatment involving the bone marrow withdrawal, or having to spend a long time in a country I was unfamiliar with and having to do it alone.
Thanks again for tagging along. Together, along with Kathy, who underwent the Islet Cell transplant via trial here in the states, is doing wonderful!! and Sandra, whose son also underwent an adult stem cell treatment and he too, continues to thrive!!! For Sandra's son, G, I wish the very best as he is still a young boy who shouldn't be held back in any way, shape, or form, I continue to believe and have the passion to pursue this science and hopes for a cure.
Again, together, we can make a huge difference. It takes the whole village, and our voices to make a dent.
To all those readers/followers who do so annonymously, I appreciate your looking in as well. I remain totatlly amazed that so many, from all over the world, yesterday I had more readers from Japan than I had here in the states, Canada pulled up with the 3rd largest group of hits. This really does blow me away being just a lower-middle class, hard working, minimally college educated, single mom, and above all, a woman trying to survive the best way I know how, making some sort of difference, if nothing else .... promoting awareness!!!
With continued good health to all!!
Peace and Light
et
Saturday, April 30, 2011
Strange inflamatory responses
Hello All!!
I have had some strange inflammation going on this past week. I am concerned about it being directly related to the prednisone I have been on for so many weeks since my treatment. It will be 3 months (12 weeks) on May 9th that my treatment was done. I am already prepared to undergo it again given what my body has endured since this time.
Going into treatment fighting that URI and subsequent pneumonia was no doubt not in my best interest. Then again, I get to thinking about it and think it is the doctors who had been treating me since December who should have thought to do a chest X-Ray!!! I am so glad that the people, one in particular, is no longer my PCP given the 3-4 times she has totally mistreated certain encounters. First the trying to prescribe a Type II drug because my A1c came back high and when I refused the threatened me with noting my "noncompliance." WTF .... these people with the professional degrees have some out-of this-world ego going on. When I explained to her that I was a type I and that drug could kill me she blew me off like I didn't have a clue!! Well, I soon found myself a new Endocrinologist given my PCP was so totally uninformed it was not something I was going to deal with. This endocrinologist at the time wrote a not so nice letter to this provider. Point made, but my future encounters with this woman were far from pleasant, like my wrist, which turned into a totally incorrect treatment, my foot, which landed me in a boot for 4 months due to her "knowledge." Ok ... in any event .... This past week my lower legs, from the back of my knees down have been swollen to the point of pitting edema by the time I get home from work. My ankles have ached, my hands are somewhat swollen, neck is stiff again .... all this had completely disappeared after treatment. I haven't taken anything except a couple of Tylenol since treatment until this past week. I don't know what it could possibly be other than the being on all of this steroid based prednisone for so many weeks since treatment and the subsequent withdrawal from my system, the last dose being only a week or so ago. Any ideas?? I know the allergy response this season has been beyond belief for almost everyone I have encountered.
I am sort of at a loss. The good thing, I think, is that I have to travel to Phoenix on Monday afternoon for an appointment with my endocrinologist. I know she is not going to be happy that my most recent A1c came back at 8.1!! I was not thrilled with that result either given what I have invested and the overload of steroid drugs since. Come on really...??? Does she really think this is the outcome I was hoping for?? I will be open, honest, and continue to search for better ways to deal with some of my issues. Remember, these are my issues, although we may share some, I only share the things that I have found work for me. That doesn't nessasarily mean that they will work for you. I will continue to say that my gut improvement since treatment has been out of this world. I can't get over the response and I had no idea that this result would happen, I didn't even think of the gastroparesis as an area of benefit. I thought "side effect, long term effect." Who would have imagined that this area would be one of the first to respond?? It has made such a difference in my stabilizing blood sugars as with motility, comes digestion, comes movement, comes eventual stability due to the absorbtion properties!! All good stuff!!
I am going to have to wait 7-12 months before another treatment, this is my goal, and suggested time frame. I will need to figure out how to finance this venture having been so blessed the first time around with the generous donation, I can't expect that to go on. I would love to work for this company, not only for the belief I have in the applied science, but because I received such great care. Compassionate, caring, and truely amazing care for me as a human being. I felt no pressure, no fake or red flag raising comments that would lead one to search elsewhere. Which I encountered with the first couple of organizations I contacted. The International Stem Cell Institute was a very informed, very legitimate, and positive outcome based organization. We must remember that as consumers it is up to us to do the research, go with your gut, go with research, but know that everyone responds differently and perhaps your outcome may not be as positive as anothers, or you may respond totally opposite and reap benefits, like myself, you had no idea could or would happen. This is what I find so amazing about science. The theroy and application process in which we get our results.
Ok folks, I have some yard work to attempt and my creepy neighbor is out back which will keep me out of that area for a while, but there is still the front area to accomplish.
I wish you all a wonderful weekend!!
Be well!! Peace and Light
et
I have had some strange inflammation going on this past week. I am concerned about it being directly related to the prednisone I have been on for so many weeks since my treatment. It will be 3 months (12 weeks) on May 9th that my treatment was done. I am already prepared to undergo it again given what my body has endured since this time.
Going into treatment fighting that URI and subsequent pneumonia was no doubt not in my best interest. Then again, I get to thinking about it and think it is the doctors who had been treating me since December who should have thought to do a chest X-Ray!!! I am so glad that the people, one in particular, is no longer my PCP given the 3-4 times she has totally mistreated certain encounters. First the trying to prescribe a Type II drug because my A1c came back high and when I refused the threatened me with noting my "noncompliance." WTF .... these people with the professional degrees have some out-of this-world ego going on. When I explained to her that I was a type I and that drug could kill me she blew me off like I didn't have a clue!! Well, I soon found myself a new Endocrinologist given my PCP was so totally uninformed it was not something I was going to deal with. This endocrinologist at the time wrote a not so nice letter to this provider. Point made, but my future encounters with this woman were far from pleasant, like my wrist, which turned into a totally incorrect treatment, my foot, which landed me in a boot for 4 months due to her "knowledge." Ok ... in any event .... This past week my lower legs, from the back of my knees down have been swollen to the point of pitting edema by the time I get home from work. My ankles have ached, my hands are somewhat swollen, neck is stiff again .... all this had completely disappeared after treatment. I haven't taken anything except a couple of Tylenol since treatment until this past week. I don't know what it could possibly be other than the being on all of this steroid based prednisone for so many weeks since treatment and the subsequent withdrawal from my system, the last dose being only a week or so ago. Any ideas?? I know the allergy response this season has been beyond belief for almost everyone I have encountered.
I am sort of at a loss. The good thing, I think, is that I have to travel to Phoenix on Monday afternoon for an appointment with my endocrinologist. I know she is not going to be happy that my most recent A1c came back at 8.1!! I was not thrilled with that result either given what I have invested and the overload of steroid drugs since. Come on really...??? Does she really think this is the outcome I was hoping for?? I will be open, honest, and continue to search for better ways to deal with some of my issues. Remember, these are my issues, although we may share some, I only share the things that I have found work for me. That doesn't nessasarily mean that they will work for you. I will continue to say that my gut improvement since treatment has been out of this world. I can't get over the response and I had no idea that this result would happen, I didn't even think of the gastroparesis as an area of benefit. I thought "side effect, long term effect." Who would have imagined that this area would be one of the first to respond?? It has made such a difference in my stabilizing blood sugars as with motility, comes digestion, comes movement, comes eventual stability due to the absorbtion properties!! All good stuff!!
I am going to have to wait 7-12 months before another treatment, this is my goal, and suggested time frame. I will need to figure out how to finance this venture having been so blessed the first time around with the generous donation, I can't expect that to go on. I would love to work for this company, not only for the belief I have in the applied science, but because I received such great care. Compassionate, caring, and truely amazing care for me as a human being. I felt no pressure, no fake or red flag raising comments that would lead one to search elsewhere. Which I encountered with the first couple of organizations I contacted. The International Stem Cell Institute was a very informed, very legitimate, and positive outcome based organization. We must remember that as consumers it is up to us to do the research, go with your gut, go with research, but know that everyone responds differently and perhaps your outcome may not be as positive as anothers, or you may respond totally opposite and reap benefits, like myself, you had no idea could or would happen. This is what I find so amazing about science. The theroy and application process in which we get our results.
Ok folks, I have some yard work to attempt and my creepy neighbor is out back which will keep me out of that area for a while, but there is still the front area to accomplish.
I wish you all a wonderful weekend!!
Be well!! Peace and Light
et
Tuesday, April 26, 2011
A heart-felt Thank you to my readers ...
Good Evening !!
I just wanted to make a quick post this evening before I call it a night.
Work days continue to be long, and at times irritating in this strange economy and working for a non-profit trying to come into the age of EHR, and not doing the greatest job in the organization of such.
In any event, my life goes on, and the stamina is coming back. In what appears to me to sometime just be venting on my life, and the political BS involved in health care, and of course, my passion, the adult stem cell area, as well as the biotech companies, the scientists, the organizations that are striving in this time to get the science and treatments to the people, I would like to take this opportunity to thank all those people who have followed me from the beginning of this phase of my journey. It so completely blows me away to see that as of today, the areas of the world, YES, I said the world, that has been reading and hitting my page on a daily basis. Today alone, we had hits from the US, Japan, Russia, Denmark, Canada, Malaysia, Australia, etc., it amazes me the people who are seeking information on the stem cell phenomena and that they land on my blog and find something to hold them, and keep them coming back.
I can't thank you all enough for checking in on my knowledge, my passion, my experience, and updates on the stem cell treatment I underwent almost 12 weeks ago. I can't get past what has happened in the past 11 weeks. May 9th will be the 12 week mark. The positives have so out weighed the negative, which I went into the treatment with. I am so looking forward to seeing what the next 4-6 months hold not only in my stabilizing, but my preparing for a second treatment, in which I hope for the big changes to happen. I still consider my first experience to be exceptionally positive in results even though I went in to it fighting an upper respiratory infection, which turned into pneumonia, and what was pumped into my body over that time and yet ..... I still show signs of improvement. I need to start pushing the H2O intake as the weather here in the desert southwest heats up. I have noticed that I seem to need and/or want more water than any other beverage. For several weeks after treatment I had no desire for coffee, my beverage of choice in any form, hot or cold. Just couldn't do it, but the water, it has helped in the overall stabilizing of my skin, my kidneys, flushing out that darn infection which was slowed by prednisone taper ... finally off of that for one week, so I can only hope for the next few weeks to get better.
Again, my deepest appreciation for all of those worldwide followers who have found my rantings somewhat helpful ... ??? Informative ...??? I am, as I have stated from the beginning of this venture, open to questions, comments, etc. I live for discussions with people who get not only the diseases that could benefit from this science, but for those who live with, or have a loved one afflicted with Type 1. My passion remains the same, that we find a cure, find a better method of treatment that will allow kids to be kids while they can and not force them into an adult, potentially morbid reality at an early age. It is a life NO child should have to endure. (I often think this plays a large role in my childlike laughter at times.)
I wish you all the very best for the information you seek, and the people you seek the knowledge for.
With much gratitude for your support and encouragement in my journey.
Peace and Light
et
I just wanted to make a quick post this evening before I call it a night.
Work days continue to be long, and at times irritating in this strange economy and working for a non-profit trying to come into the age of EHR, and not doing the greatest job in the organization of such.
In any event, my life goes on, and the stamina is coming back. In what appears to me to sometime just be venting on my life, and the political BS involved in health care, and of course, my passion, the adult stem cell area, as well as the biotech companies, the scientists, the organizations that are striving in this time to get the science and treatments to the people, I would like to take this opportunity to thank all those people who have followed me from the beginning of this phase of my journey. It so completely blows me away to see that as of today, the areas of the world, YES, I said the world, that has been reading and hitting my page on a daily basis. Today alone, we had hits from the US, Japan, Russia, Denmark, Canada, Malaysia, Australia, etc., it amazes me the people who are seeking information on the stem cell phenomena and that they land on my blog and find something to hold them, and keep them coming back.
I can't thank you all enough for checking in on my knowledge, my passion, my experience, and updates on the stem cell treatment I underwent almost 12 weeks ago. I can't get past what has happened in the past 11 weeks. May 9th will be the 12 week mark. The positives have so out weighed the negative, which I went into the treatment with. I am so looking forward to seeing what the next 4-6 months hold not only in my stabilizing, but my preparing for a second treatment, in which I hope for the big changes to happen. I still consider my first experience to be exceptionally positive in results even though I went in to it fighting an upper respiratory infection, which turned into pneumonia, and what was pumped into my body over that time and yet ..... I still show signs of improvement. I need to start pushing the H2O intake as the weather here in the desert southwest heats up. I have noticed that I seem to need and/or want more water than any other beverage. For several weeks after treatment I had no desire for coffee, my beverage of choice in any form, hot or cold. Just couldn't do it, but the water, it has helped in the overall stabilizing of my skin, my kidneys, flushing out that darn infection which was slowed by prednisone taper ... finally off of that for one week, so I can only hope for the next few weeks to get better.
Again, my deepest appreciation for all of those worldwide followers who have found my rantings somewhat helpful ... ??? Informative ...??? I am, as I have stated from the beginning of this venture, open to questions, comments, etc. I live for discussions with people who get not only the diseases that could benefit from this science, but for those who live with, or have a loved one afflicted with Type 1. My passion remains the same, that we find a cure, find a better method of treatment that will allow kids to be kids while they can and not force them into an adult, potentially morbid reality at an early age. It is a life NO child should have to endure. (I often think this plays a large role in my childlike laughter at times.)
I wish you all the very best for the information you seek, and the people you seek the knowledge for.
With much gratitude for your support and encouragement in my journey.
Peace and Light
et
Sunday, April 24, 2011
TIME magazine article 3/17/11
http://www.time.com/time/specials/packages/article/0,28804,2059521_2059712_2059711,00.html
Very cool stuff ... but then you knew I was going to say that!! Great read!! The above link is to a TIME magazine article dated 3/17/11, luck of the Irish!!
Have a wonderful day!!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I miss my mother most on days like today ... Friday would have been my parents anniversary, and again, I wonder how she tolerated his BS for the 60 years they were together. She is without a doubt, rejoicing on this day!!!!
I have to do "dad" duty ... so I am taking him to dinner. I am not in the mood to cook and listen to the constant complaints about everything on the planet and then having him get all teary and whiney ... ggggrrrrr .... this has gotten so old and so totally tiring for both myself and Hillary. Gee ... I sure hope my siblings never have to depend on their children to care for them ... they are so totally confident that their children would never do something like that. Seems to me, that the apples haven't fallen to far from the tree in certain aspects. I have also noticed in the past couple of months that the "children" of the siblings have been taught to behave in the same manner. Easier to walk away. One problem I see is the children shouldn't never have been involved. My daughter has done more for her grandparents over the years than any one of the others, and it had NOTHING TO DO with geography!! It is history repeating itself all over again. Too bad some people can't learn from the mistakes made in the past. Open communication is still my ultimate weapon, and yet, so many can't do it, don't even want to try. God forbid one experience any sort of discomfort, pain, etc. How about .... resolution!!?? I have come to the conclusion that it is their loss, not ours, as we sleep well at night, and know that we have done all we can to do the right thing, morally, ethically, humanly possible, and not based on some unrealistic, child-like promise someone made. I do, however, find it very hard to believe that my siblings have no real feelings on family. That it is just easier for them to "walk away" than it is and/or was to deal with the problems that presented themselves. Seek therapy ... LMAO ... as you have hurt others, namely me and my daughter, and it will take a whole lot more than "I'm sorry" for you to fix what has been done.
Deep down, I really feel sorry for people who can't cope with their feelings, or those that appear to have none. A key element of life ... the so-called "Faith" that certain individuals place out into the world are not really the acts of the faithful ... more like the acts of those who have been brainwashed, and believing that their actions are all okay. It is my opinion, that faith, based on any sort of religious background goes much deeper than reciting scripture, how about living and treating others as we ourselves want to be treated. There is so little of that in today's world that it is truly sad. Money and status should not make us look down on those who don't possess those qualities. I continue to believe in karma, that what I put out into the world will come back to me 10-fold, as it has in so many areas of my life. I will not however, hang out the walk all over me sign. I am just saddened that my own blood-relatives, my siblings, are so cold hearted that they see no harm in their behaviors over the past couple of years. I called my father this morning to let him know what time I would be there to pick him up and take him to dinner and then to the store for our weekly stock up. Isn't it wonderful that a sibling called on this Easter, I often times wonder why?? It isn't like they really give a crap about what is going on, or that my father could coherently make any sense of anything he may have heard or been told in the past weeks. All he does is complain constantly about crap he has no control over, give me, give me, give me ... I have a very hard time dealing with this mentality lately, and again, would seem as though some move throughout life with just motions, no real depth, no real feelings, no real passion ... sad.
Oh well ... I have some grouting to do today. My window sills are looking pretty cool as I finish up the tiling of them. Makes it easier to keep them clean in this desert dust. I have some major fix ups going on in the next couple of weeks, to include the planting of some landscape, two years after the fact, and a replacement of my back entry way to include a couple of security doors. I can't wait to start playing in the dirt as I feel better and can handle being outside a little more each time I attempt. This morning I was out and about early to spray weed killer before the winds picked up. Success ... once my dumpster is empty tomorrow, I can start again in removing some of the tumbleweeds so that the tree guy doesn't have to fight to get stuff in the ground other than the jackhammer to break up the hard clay ground we possess here in the desert southwest. It isn't easy to keep stuff alive. I can't wait to see it all in as we chose native plants and shrubs to hopefully start of privacy screen. Next season, we hope to add a little more. Home ownership sort of sucks, but in a way I find it sort of rewarding as I can do what I want with it, it's mine, and I will enjoy making it such to enjoy with my friends.
Wishing everyone a peaceful Easter!!
Peace and Light
et
Very cool stuff ... but then you knew I was going to say that!! Great read!! The above link is to a TIME magazine article dated 3/17/11, luck of the Irish!!
Have a wonderful day!!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I miss my mother most on days like today ... Friday would have been my parents anniversary, and again, I wonder how she tolerated his BS for the 60 years they were together. She is without a doubt, rejoicing on this day!!!!
I have to do "dad" duty ... so I am taking him to dinner. I am not in the mood to cook and listen to the constant complaints about everything on the planet and then having him get all teary and whiney ... ggggrrrrr .... this has gotten so old and so totally tiring for both myself and Hillary. Gee ... I sure hope my siblings never have to depend on their children to care for them ... they are so totally confident that their children would never do something like that. Seems to me, that the apples haven't fallen to far from the tree in certain aspects. I have also noticed in the past couple of months that the "children" of the siblings have been taught to behave in the same manner. Easier to walk away. One problem I see is the children shouldn't never have been involved. My daughter has done more for her grandparents over the years than any one of the others, and it had NOTHING TO DO with geography!! It is history repeating itself all over again. Too bad some people can't learn from the mistakes made in the past. Open communication is still my ultimate weapon, and yet, so many can't do it, don't even want to try. God forbid one experience any sort of discomfort, pain, etc. How about .... resolution!!?? I have come to the conclusion that it is their loss, not ours, as we sleep well at night, and know that we have done all we can to do the right thing, morally, ethically, humanly possible, and not based on some unrealistic, child-like promise someone made. I do, however, find it very hard to believe that my siblings have no real feelings on family. That it is just easier for them to "walk away" than it is and/or was to deal with the problems that presented themselves. Seek therapy ... LMAO ... as you have hurt others, namely me and my daughter, and it will take a whole lot more than "I'm sorry" for you to fix what has been done.
Deep down, I really feel sorry for people who can't cope with their feelings, or those that appear to have none. A key element of life ... the so-called "Faith" that certain individuals place out into the world are not really the acts of the faithful ... more like the acts of those who have been brainwashed, and believing that their actions are all okay. It is my opinion, that faith, based on any sort of religious background goes much deeper than reciting scripture, how about living and treating others as we ourselves want to be treated. There is so little of that in today's world that it is truly sad. Money and status should not make us look down on those who don't possess those qualities. I continue to believe in karma, that what I put out into the world will come back to me 10-fold, as it has in so many areas of my life. I will not however, hang out the walk all over me sign. I am just saddened that my own blood-relatives, my siblings, are so cold hearted that they see no harm in their behaviors over the past couple of years. I called my father this morning to let him know what time I would be there to pick him up and take him to dinner and then to the store for our weekly stock up. Isn't it wonderful that a sibling called on this Easter, I often times wonder why?? It isn't like they really give a crap about what is going on, or that my father could coherently make any sense of anything he may have heard or been told in the past weeks. All he does is complain constantly about crap he has no control over, give me, give me, give me ... I have a very hard time dealing with this mentality lately, and again, would seem as though some move throughout life with just motions, no real depth, no real feelings, no real passion ... sad.
Oh well ... I have some grouting to do today. My window sills are looking pretty cool as I finish up the tiling of them. Makes it easier to keep them clean in this desert dust. I have some major fix ups going on in the next couple of weeks, to include the planting of some landscape, two years after the fact, and a replacement of my back entry way to include a couple of security doors. I can't wait to start playing in the dirt as I feel better and can handle being outside a little more each time I attempt. This morning I was out and about early to spray weed killer before the winds picked up. Success ... once my dumpster is empty tomorrow, I can start again in removing some of the tumbleweeds so that the tree guy doesn't have to fight to get stuff in the ground other than the jackhammer to break up the hard clay ground we possess here in the desert southwest. It isn't easy to keep stuff alive. I can't wait to see it all in as we chose native plants and shrubs to hopefully start of privacy screen. Next season, we hope to add a little more. Home ownership sort of sucks, but in a way I find it sort of rewarding as I can do what I want with it, it's mine, and I will enjoy making it such to enjoy with my friends.
Wishing everyone a peaceful Easter!!
Peace and Light
et
Friday, April 22, 2011
Good Friday
I this most spiritual season, I would like to offer Easter Greetings and Blessings to all who have been following me and my journey.
I am home from work today as I just couldn't get myself to function in a manner in which I was safe driving and being too far away from my own comfort zone. Yes, that is the happenings of this morning ... repeatedly ... takes bloat to a whole new level.
Yesterday was my first day on no prednisone and I can't tell you the uncomfortable status I was in. It started early yesterday morning on my way to work at 6:45 AM. I had sinus pressure which has continued but is slightly relieved with the Claritin D. I stopped at the car wash to hose down the vehicle after having ventured out into the dirt on Thursday to order landscaping. While I was sitting in the car wash I had all these weird sensations going on in my body, my head, forehead, base of my skull, both areas feeling as though someone was forcing an ice pick into the tissues. From the car wash I thought I would do something nice for the girls in the office and bring in donuts. So I am on my way into the store when as soon as I came through the door the place started spinning!! I was overwhelmed as I didn't seem to have a whole lot of control on my movement, I must have looked like I was smashed at 7AM!! I proceeded to stagger to the back of the store, trying very hard not to go down. I managed, after 15 minutes to get the box loaded and get out of there. 15 Minutes!! The rest of the day didn't go much better. It progressively got worse. I spent the whole day holding my head in my hand, trying to focus as a majority of my job requires reading, I wasn't doing such a good job. By lunch time, the aura around my vision was such that I could not focus on anything. Nothing was clear and it was making me sick to my stomach. In any event, it continued until at 4 PM I said ... well ... you guessed it, F'it!! and packed up to come home. At this point, I had these two big pouches under my eyes in which my coworker started calling them the quads!! They were twitching and looked like they had heart beats of their very own!! Not attractive by any means. So I managed to get home in what seemed like a longer than the normal 30 minute ride. Not being in an hour I couldn't take the pain and throbbing of my joints, the knot in my neck, my head feeling like it was about to explode, etc. All these so-called symptoms, a direct result of this flipping steroid!!
After some research into what can happen while taking and/or stopping this drug I have concluded that I will not take it again. PERIOD!! It can mess with my vision, cause gastric bleeds, not to mention the swelling and immediate weight gain that can come along as an added bonus. Ok, so it works in some aspects, but in my opinion, the side effects and/or negative effects it could cause are far worse than the problem in which one might take it. For me anyway ... I'm not willing to risk my kidney function, my vision, and/or my gut to breathe!! .... LOL ... there must be a better, less intrusive way to keep the airways open in situations such as the last one in which I was told it was allergy related asthma. Whatever, I find it hard to believe I have had allergies for years, I come to AZ where the air is suppose to be really good for people with breathing issues and find this to be BS at best.
Anyway ... my joints are tender and inflamed today. Am about to take my Claritin and a couple of Aleve, something I haven't done but once since treatment!!
My hopes are that by Monday this crap will have cleared my body in the worse case scenario and I will begin to feel better all over again. These last few weeks have really just got me frustrated in the sense that the prednisone is directly responsible for the rise in my A1c reading coming back at 8.1!! Now my reasoning is usually not quite so harsh as I know what caused it, but I can't change it even doing the best I could to keep a handle on the rising BGs. Corticosteroids make it VERY difficult to manage blood sugars, insulin resistance is a large side effect.
Anyway ... I am hopeful for just this one last day of feeling like crap ... and then will be as with the season, be reborn again as well!!
I would like to wish everyone a very peaceful and joyous Easter weekend!!
Peace and Light
et
I am home from work today as I just couldn't get myself to function in a manner in which I was safe driving and being too far away from my own comfort zone. Yes, that is the happenings of this morning ... repeatedly ... takes bloat to a whole new level.
Yesterday was my first day on no prednisone and I can't tell you the uncomfortable status I was in. It started early yesterday morning on my way to work at 6:45 AM. I had sinus pressure which has continued but is slightly relieved with the Claritin D. I stopped at the car wash to hose down the vehicle after having ventured out into the dirt on Thursday to order landscaping. While I was sitting in the car wash I had all these weird sensations going on in my body, my head, forehead, base of my skull, both areas feeling as though someone was forcing an ice pick into the tissues. From the car wash I thought I would do something nice for the girls in the office and bring in donuts. So I am on my way into the store when as soon as I came through the door the place started spinning!! I was overwhelmed as I didn't seem to have a whole lot of control on my movement, I must have looked like I was smashed at 7AM!! I proceeded to stagger to the back of the store, trying very hard not to go down. I managed, after 15 minutes to get the box loaded and get out of there. 15 Minutes!! The rest of the day didn't go much better. It progressively got worse. I spent the whole day holding my head in my hand, trying to focus as a majority of my job requires reading, I wasn't doing such a good job. By lunch time, the aura around my vision was such that I could not focus on anything. Nothing was clear and it was making me sick to my stomach. In any event, it continued until at 4 PM I said ... well ... you guessed it, F'it!! and packed up to come home. At this point, I had these two big pouches under my eyes in which my coworker started calling them the quads!! They were twitching and looked like they had heart beats of their very own!! Not attractive by any means. So I managed to get home in what seemed like a longer than the normal 30 minute ride. Not being in an hour I couldn't take the pain and throbbing of my joints, the knot in my neck, my head feeling like it was about to explode, etc. All these so-called symptoms, a direct result of this flipping steroid!!
After some research into what can happen while taking and/or stopping this drug I have concluded that I will not take it again. PERIOD!! It can mess with my vision, cause gastric bleeds, not to mention the swelling and immediate weight gain that can come along as an added bonus. Ok, so it works in some aspects, but in my opinion, the side effects and/or negative effects it could cause are far worse than the problem in which one might take it. For me anyway ... I'm not willing to risk my kidney function, my vision, and/or my gut to breathe!! .... LOL ... there must be a better, less intrusive way to keep the airways open in situations such as the last one in which I was told it was allergy related asthma. Whatever, I find it hard to believe I have had allergies for years, I come to AZ where the air is suppose to be really good for people with breathing issues and find this to be BS at best.
Anyway ... my joints are tender and inflamed today. Am about to take my Claritin and a couple of Aleve, something I haven't done but once since treatment!!
My hopes are that by Monday this crap will have cleared my body in the worse case scenario and I will begin to feel better all over again. These last few weeks have really just got me frustrated in the sense that the prednisone is directly responsible for the rise in my A1c reading coming back at 8.1!! Now my reasoning is usually not quite so harsh as I know what caused it, but I can't change it even doing the best I could to keep a handle on the rising BGs. Corticosteroids make it VERY difficult to manage blood sugars, insulin resistance is a large side effect.
Anyway ... I am hopeful for just this one last day of feeling like crap ... and then will be as with the season, be reborn again as well!!
I would like to wish everyone a very peaceful and joyous Easter weekend!!
Peace and Light
et
Thursday, April 21, 2011
Good Intentions ...
I had every intention of making an entry tonight ...
All I can say, is I'm going to be @ 6:30pm and it has NOT been a good day from the moment my feet hit the floor this morning.
Be well and I will catch up in a day or two.
Happy Easter!!
Peace and Light
et
All I can say, is I'm going to be @ 6:30pm and it has NOT been a good day from the moment my feet hit the floor this morning.
Be well and I will catch up in a day or two.
Happy Easter!!
Peace and Light
et
Monday, April 18, 2011
It's good, but it's not where I wanted to be ...
Good Evening everyone!!
Well ... it seems as though the last 11 weeks since my adult stem cell treatment and I had hoped for more. I realize that I went into the procedure apparently still fighting an URI. That was the 1st negative in my favor. With that being said, my newly awakened "stemmies" had thier work cut out for them right off the bat with an issue that was not on the planned list of attack.
I have since that time, done 6 days inpatient with bilateral pneumonia, to the tune of $33K ... ridiculous at best. Then the allergy induced asthma reaction ... all this treated with large IV steroid medication, multiple high-powered antibiotics, and two long (12 days each) rounds of prednisone tapers. This last one, I stopped abruptly on Friday due to becoming violently ill Thursday night with what we thought may have been some sort of ulcerative response in my gut. Hillary thought at one point, signs of a heart attack. I knew it wasn't a heart attack, having suffered from ulcers in the past. When I was diagnosed with the gastroparesis, I was postive for the H-pylori bacteria as well. Now, with that being said, long term, high dose steroid use can cause a multitude of problems and I am not going to let that happen.
I am feeling better, breathing is much clearer, and another 2 days and I am done with this prednisone crap. It can cause, and I have felt it over the past several weeks, a lack of appetite, weight loss, a metalic taste to everything, that pain in my gut that feels like someone made me drink battery acid. None of this pleasant. On Thursday I got violently ill due to the gastric pain caused by increased acid production by the prednisone. When I stopped it abruptly for 24 hours, I began to suffer some withdrawal effects, none of these pleasant either. Today, I am done to 5 mg twice a day, tomorrow will be 5 at night for 3 nights and I am done. I am seriously going to tell the doctor should something this happen again, I want a different sort of treatment. This is crap and can do so much damage that I am not sure I want to risk this again ... I know ... breathing is an essential need, but really ... there must be other treatments available that do not do so much damage...??
Ok ... with all that being said, it has me a tad frustrated in where I was hoping to be with my stemmie treatment. I have had some wonderful results thus far, but can't help but feel I would have had better results if I had not had the URI going in. My bad, maybe I shouldn't have been so eager and waited it out for treatment, the opportunity was there, and I wasn't about to put it off. I have been weaned off my Cymbalta for chronic pain due to fibromyalgia and arthrits that set in from years of abuse, physically. I haven't taken anything other than some Tylenol since treatment to relieve any sort of pain. My digestive tract, for the most part, and in spite of the prednisone, has been one of the most remarkable positive results thus far for the diabetes. I was disappointed in my A1c being 8.1 and that is a direct result of the prednisone treatment .... it makes blood sugar control a crap shoot at best.
so ...I have been trying to get past my frustration and put into play the physiological aspects of the treatment and the results I have experienced to date. I will be planning on a second treatment but we are still months off from that so I need to be vigilant in my quest for better health. I need to be realisitc in that I have lived with diabetes for 38+ years, I can't expect it to go away with one treatment. I do, however, wonder, will it get me that much closer to a cure. I still believe this as fact, and I believe that if the US doesn't pull thier political head out of the asses of those that rule, that nothing is going to happen in a positive manner in regard to the US being any sort of super hero on any front.
I will continue to plug away for the science adn the treatments to be available here in the States ... I believe and therefore, I will do my best to educate those of may be a little closed minded in the thought process of such treatments.
On that note, I have some cleaning up to do and to get ready for another day at the office tomorrow. My stamina is coming back again, but am still listening to my body in regard to when it yells, I listen, and rest. Whatever needs to be done tonight, will still be there tomorrow if I don't get to it .... LOL ....
Well ... it seems as though the last 11 weeks since my adult stem cell treatment and I had hoped for more. I realize that I went into the procedure apparently still fighting an URI. That was the 1st negative in my favor. With that being said, my newly awakened "stemmies" had thier work cut out for them right off the bat with an issue that was not on the planned list of attack.
I have since that time, done 6 days inpatient with bilateral pneumonia, to the tune of $33K ... ridiculous at best. Then the allergy induced asthma reaction ... all this treated with large IV steroid medication, multiple high-powered antibiotics, and two long (12 days each) rounds of prednisone tapers. This last one, I stopped abruptly on Friday due to becoming violently ill Thursday night with what we thought may have been some sort of ulcerative response in my gut. Hillary thought at one point, signs of a heart attack. I knew it wasn't a heart attack, having suffered from ulcers in the past. When I was diagnosed with the gastroparesis, I was postive for the H-pylori bacteria as well. Now, with that being said, long term, high dose steroid use can cause a multitude of problems and I am not going to let that happen.
I am feeling better, breathing is much clearer, and another 2 days and I am done with this prednisone crap. It can cause, and I have felt it over the past several weeks, a lack of appetite, weight loss, a metalic taste to everything, that pain in my gut that feels like someone made me drink battery acid. None of this pleasant. On Thursday I got violently ill due to the gastric pain caused by increased acid production by the prednisone. When I stopped it abruptly for 24 hours, I began to suffer some withdrawal effects, none of these pleasant either. Today, I am done to 5 mg twice a day, tomorrow will be 5 at night for 3 nights and I am done. I am seriously going to tell the doctor should something this happen again, I want a different sort of treatment. This is crap and can do so much damage that I am not sure I want to risk this again ... I know ... breathing is an essential need, but really ... there must be other treatments available that do not do so much damage...??
Ok ... with all that being said, it has me a tad frustrated in where I was hoping to be with my stemmie treatment. I have had some wonderful results thus far, but can't help but feel I would have had better results if I had not had the URI going in. My bad, maybe I shouldn't have been so eager and waited it out for treatment, the opportunity was there, and I wasn't about to put it off. I have been weaned off my Cymbalta for chronic pain due to fibromyalgia and arthrits that set in from years of abuse, physically. I haven't taken anything other than some Tylenol since treatment to relieve any sort of pain. My digestive tract, for the most part, and in spite of the prednisone, has been one of the most remarkable positive results thus far for the diabetes. I was disappointed in my A1c being 8.1 and that is a direct result of the prednisone treatment .... it makes blood sugar control a crap shoot at best.
so ...I have been trying to get past my frustration and put into play the physiological aspects of the treatment and the results I have experienced to date. I will be planning on a second treatment but we are still months off from that so I need to be vigilant in my quest for better health. I need to be realisitc in that I have lived with diabetes for 38+ years, I can't expect it to go away with one treatment. I do, however, wonder, will it get me that much closer to a cure. I still believe this as fact, and I believe that if the US doesn't pull thier political head out of the asses of those that rule, that nothing is going to happen in a positive manner in regard to the US being any sort of super hero on any front.
I will continue to plug away for the science adn the treatments to be available here in the States ... I believe and therefore, I will do my best to educate those of may be a little closed minded in the thought process of such treatments.
On that note, I have some cleaning up to do and to get ready for another day at the office tomorrow. My stamina is coming back again, but am still listening to my body in regard to when it yells, I listen, and rest. Whatever needs to be done tonight, will still be there tomorrow if I don't get to it .... LOL ....
Tuesday, April 12, 2011
Lab Values
Hey everyone ...
Well ... allergies continue to plague me ... hard. My head feels like a steel-toed boot has kicked me dead center in the forhead and left a big icepick behind just to remind me of the tension within. With that being said, I got a call today from the doctor's office telling me my labs came back, and that all looked great, except my
A1c which came back at 8!!!! I was a little disgusted with that even though I know it is all due to these freakin' steroids I have been on and off of since February. I am now on day 7 of a 12 day taper and still feel the pain, congestion, and cough due to these allergies. This is, without a doubt, the worst season I have ever had.
I had allergies back east, seems as though those would be so much more tolerable at the moment than this dry, and no end in sight stuff going on here in the desert. The air is so dry, everything is so dry, and yet the pollen continues to build and blow, as it is the windy spring season here in AZ.
Oh well ... hopefully, in the next week, I can get some sort of grip on this shit ... yes, I said it, as that is how I feel. I have been taking Claritin D as it is the only thing that seems to be working this year, and allowing me to continue to work without my head hitting the desk. When you spend all day in front of a computer screen, reading doctor scribbles, and reading it can make for one painful day when your head is not cooperating. So I will continue to hydrate even though nothing has any real taste to it, other than metallic, and use the inhalers, which don't always "rescue" as they state and keep on plugging on.
With that being said, and having been asleep since I got home and had some dinner at 6:40 ... I will be returning to the pillows shortly as I have to be up in 5 hours ... early mornings seem to be my best time, now if I could only get my ass outside for an hour to do some much needed yard work prior to getting to work .... HAHAHAHAHHAHAHA ...... right!! Maybe on the weekend ... and then inside work the remainder of the day. The head hasn't even set in yet here in AZ, I can't imagine what sort of year this is going to be. Maybe Hillary is right, it is time to start investigating a new place to call home ...??
Sleep well my faithful followers!!
Peace and Light
et
Well ... allergies continue to plague me ... hard. My head feels like a steel-toed boot has kicked me dead center in the forhead and left a big icepick behind just to remind me of the tension within. With that being said, I got a call today from the doctor's office telling me my labs came back, and that all looked great, except my
A1c which came back at 8!!!! I was a little disgusted with that even though I know it is all due to these freakin' steroids I have been on and off of since February. I am now on day 7 of a 12 day taper and still feel the pain, congestion, and cough due to these allergies. This is, without a doubt, the worst season I have ever had.
I had allergies back east, seems as though those would be so much more tolerable at the moment than this dry, and no end in sight stuff going on here in the desert. The air is so dry, everything is so dry, and yet the pollen continues to build and blow, as it is the windy spring season here in AZ.
Oh well ... hopefully, in the next week, I can get some sort of grip on this shit ... yes, I said it, as that is how I feel. I have been taking Claritin D as it is the only thing that seems to be working this year, and allowing me to continue to work without my head hitting the desk. When you spend all day in front of a computer screen, reading doctor scribbles, and reading it can make for one painful day when your head is not cooperating. So I will continue to hydrate even though nothing has any real taste to it, other than metallic, and use the inhalers, which don't always "rescue" as they state and keep on plugging on.
With that being said, and having been asleep since I got home and had some dinner at 6:40 ... I will be returning to the pillows shortly as I have to be up in 5 hours ... early mornings seem to be my best time, now if I could only get my ass outside for an hour to do some much needed yard work prior to getting to work .... HAHAHAHAHHAHAHA ...... right!! Maybe on the weekend ... and then inside work the remainder of the day. The head hasn't even set in yet here in AZ, I can't imagine what sort of year this is going to be. Maybe Hillary is right, it is time to start investigating a new place to call home ...??
Sleep well my faithful followers!!
Peace and Light
et
Monday, April 11, 2011
Again ... It's Monday
Good Morning!!
I can't believe that it's already Monday. I still feel run down, short of breath, and not me. I am still on the prednisone taper, the inhaler, which seems to be in over-use, in my opinion, and the albuteral treatments. The cough seems to be dry, deep, and exceptionally irritating as it is really hard to get a good breath. Hillary seems to feel it sounds, as do a couple of others, that is resemblent of the pneumonia cough/breathing. I SO don't want to go there!!!
I just move slow, as you can tell by all the posts I made yesterday ...LOL ... I get perterbed easily, and do a lot of reading, napping, and not much else. I did get a couple loads of wash done, and was called out to deliver charts yesterday, that was a pretty ride, in my sweats, with angry hair and all!!! Oh well, it is what it is!!
Ok ... on that note, it is suppose to warm up here a little each day this week in AZ. After that weekend of snow, sleet, rain, and yuckiness at best, I guess it is time to plow forward. I wish everyone a wonderful week and a GREAT day!!
Thanks for continuing to follow my tangents.
Peace and Light
et
I can't believe that it's already Monday. I still feel run down, short of breath, and not me. I am still on the prednisone taper, the inhaler, which seems to be in over-use, in my opinion, and the albuteral treatments. The cough seems to be dry, deep, and exceptionally irritating as it is really hard to get a good breath. Hillary seems to feel it sounds, as do a couple of others, that is resemblent of the pneumonia cough/breathing. I SO don't want to go there!!!
I just move slow, as you can tell by all the posts I made yesterday ...LOL ... I get perterbed easily, and do a lot of reading, napping, and not much else. I did get a couple loads of wash done, and was called out to deliver charts yesterday, that was a pretty ride, in my sweats, with angry hair and all!!! Oh well, it is what it is!!
Ok ... on that note, it is suppose to warm up here a little each day this week in AZ. After that weekend of snow, sleet, rain, and yuckiness at best, I guess it is time to plow forward. I wish everyone a wonderful week and a GREAT day!!
Thanks for continuing to follow my tangents.
Peace and Light
et
Sunday, April 10, 2011
Definitions of ... Call me stupid ...
Definition of REPARATIVE
1: of, relating to, or effecting repair
2: serving to make amends
First Known Use of REPARATIVE
1656
Rhymes with REPARATIVE
comparative, preparative
Regenerate - From Dictionary.Com
–verb (used with object)
1. to effect a complete moral reform in.
2. to re-create, reconstitute, or make over, especially in a better form or condition.
3. to revive or produce anew; bring into existence again.
4. Biology . to renew or restore (a lost, removed, or injured part).
5. Physics . to restore (a substance) to a favorable state or physical condition.
Medical Dictionary
re·gen·er·a·tive definition
Pronunciation: /ri-ˈjen-ə-ˌrāt-iv, -ˈjen-(ə-)rət-/
Function: adj
1 : of, relating to, or marked by regeneration
2 : tending to regenerate
Merriam-Webster's Medical Dictionary, © 2007 Merriam-Webster, Inc.
Cite This Source
1: of, relating to, or effecting repair
2: serving to make amends
First Known Use of REPARATIVE
1656
Rhymes with REPARATIVE
comparative, preparative
Regenerate - From Dictionary.Com
–verb (used with object)
1. to effect a complete moral reform in.
2. to re-create, reconstitute, or make over, especially in a better form or condition.
3. to revive or produce anew; bring into existence again.
4. Biology . to renew or restore (a lost, removed, or injured part).
5. Physics . to restore (a substance) to a favorable state or physical condition.
Medical Dictionary
re·gen·er·a·tive definition
Pronunciation: /ri-ˈjen-ə-ˌrāt-iv, -ˈjen-(ə-)rət-/
Function: adj
1 : of, relating to, or marked by regeneration
2 : tending to regenerate
Merriam-Webster's Medical Dictionary, © 2007 Merriam-Webster, Inc.
Cite This Source
It would appear that I have irritated a PhD
The below post was made in response to a comment I made on LinkedIn this morning. Apparently, I done ticked this person off a bit, or so it reads to me. My response to this post is in bold below it, on my own page, as I find her statement very contradictory in nature.
Regenerative medicine speaks to the outcome of healing - that it is regenerative, not reparative. Stem cells are a tool that can be used to achieve a regenerative outcome. Not all applications using stem cells will be regenerative. Similarly, not all regenerative medical products will use stem cells. The two terms are not the same. If they are used interchangeably, the person speaking is basically not being disciplined in their use of language.
Posted by Belinda J Wagner, PhD
So, it would seem that in Dr. Wagner's interpretation I am not disciplined in my use of language.
Rather than take this argument back to the LinkedIn page, wouldn't want it to jeopardize any work/advocate related issues I may pursue. Here is my take on the above comment.
It would appear to me, in all my reading and research over the past couple of years, and going back many more, that regenerative vs. repairative are terms being used interchangably here in the Good Ol' United States to benefit those looking to make a buck rather than bringing the science to light in an open and honest forum.
Yes, I would like to address Dr. Wagner, so I will do it here and tell her that I did seek treatment with stem cells/PRP treatment for repairative reasons. I was dying, a slow death, with NO real help from the medical community here in the states. Like so many others, I went to the extreme of Medical Tourism, and sought treatment being used in other countries for years with just that in mind. I did lots of research and weeded through plenty of quacks and those looking to take advantage of those looking for a better way. The "regenerative" properties I experienced were all to well known as a benefit of such treatment, and the two terms do in fact, go hand and hand. To a "lay-person" regenerating, means repairing, to make better.
That is my story and I am sticking to it!! Perhaps I better brush up my political correctness to play well with those in the United States that feel it is ok to pull the wool over consumers eyes with thier mastery of the language. I may not be a PhD, or a doctor of medicine, or a scientist, but I am a consumer, a consumer with multiple medical issues that are potentially fatal, who has dealt with this politcal BS for most of my life and am tired of those who feel they sit so much higher then those of us who suffer and only want a better life, a quality life. As I have stated before, I will take quality over quantity anyday.
Put that in any language you like!!!
I too, want it all to be a legitimate game plan, but lets be real people, seems as those that play heavily on the "language", i.e., political types, are those with the richly lined pockets, looking out more for thier own best interests, rather than those in the need of these treatments NOW!!!
Peace and Light
et
Regenerative medicine speaks to the outcome of healing - that it is regenerative, not reparative. Stem cells are a tool that can be used to achieve a regenerative outcome. Not all applications using stem cells will be regenerative. Similarly, not all regenerative medical products will use stem cells. The two terms are not the same. If they are used interchangeably, the person speaking is basically not being disciplined in their use of language.
Posted by Belinda J Wagner, PhD
So, it would seem that in Dr. Wagner's interpretation I am not disciplined in my use of language.
Rather than take this argument back to the LinkedIn page, wouldn't want it to jeopardize any work/advocate related issues I may pursue. Here is my take on the above comment.
It would appear to me, in all my reading and research over the past couple of years, and going back many more, that regenerative vs. repairative are terms being used interchangably here in the Good Ol' United States to benefit those looking to make a buck rather than bringing the science to light in an open and honest forum.
Yes, I would like to address Dr. Wagner, so I will do it here and tell her that I did seek treatment with stem cells/PRP treatment for repairative reasons. I was dying, a slow death, with NO real help from the medical community here in the states. Like so many others, I went to the extreme of Medical Tourism, and sought treatment being used in other countries for years with just that in mind. I did lots of research and weeded through plenty of quacks and those looking to take advantage of those looking for a better way. The "regenerative" properties I experienced were all to well known as a benefit of such treatment, and the two terms do in fact, go hand and hand. To a "lay-person" regenerating, means repairing, to make better.
That is my story and I am sticking to it!! Perhaps I better brush up my political correctness to play well with those in the United States that feel it is ok to pull the wool over consumers eyes with thier mastery of the language. I may not be a PhD, or a doctor of medicine, or a scientist, but I am a consumer, a consumer with multiple medical issues that are potentially fatal, who has dealt with this politcal BS for most of my life and am tired of those who feel they sit so much higher then those of us who suffer and only want a better life, a quality life. As I have stated before, I will take quality over quantity anyday.
Put that in any language you like!!!
I too, want it all to be a legitimate game plan, but lets be real people, seems as those that play heavily on the "language", i.e., political types, are those with the richly lined pockets, looking out more for thier own best interests, rather than those in the need of these treatments NOW!!!
Peace and Light
et
Everyday I find more and more proof ...
I hope this article will be available to all if you cut and paste the link into your browser.
This is a wonderful article, that articulates beyond my words the need for the treatment availability here and government inferrence on the part of the FDA in regard to autologous stem cell treatments being allowed here in the US.
Please read: this is how I feel as well, and I get angry knowing so MANY people right here should be allowed to receive now, rather than risk death in long clinical trials, money making schemes for the big guns, and being told something from my body, back to my body should be deemed a drug.
Hope this sheds light on my passion.
http://www.stemcellpioneers.com/showthread.php?t=4269
Peace and Light, and much healing!!
et
This is a wonderful article, that articulates beyond my words the need for the treatment availability here and government inferrence on the part of the FDA in regard to autologous stem cell treatments being allowed here in the US.
Please read: this is how I feel as well, and I get angry knowing so MANY people right here should be allowed to receive now, rather than risk death in long clinical trials, money making schemes for the big guns, and being told something from my body, back to my body should be deemed a drug.
Hope this sheds light on my passion.
http://www.stemcellpioneers.com/showthread.php?t=4269
Peace and Light, and much healing!!
et
Saturday, April 9, 2011
Informative video
This is a very informative, fairly new (less than a month) video I came upon on YouTube in the clinical advances of Stem Cell therapy. This doctor from Texas, practicing in Panama with the Stem Cell Institute (not the same Institite I dealt with) is full of really great information.
Check it out ... Knowledge is power!!!
http://www.youtube.com/watch?v=QQ_lw8TcON4&playnext=1&list=PL816533F2C2CA935F
Peace and Light
et
Check it out ... Knowledge is power!!!
http://www.youtube.com/watch?v=QQ_lw8TcON4&playnext=1&list=PL816533F2C2CA935F
Peace and Light
et
Getting better .... a little at a time
Happy Saturday !!
Well, I woke up this morning to 4-5 inches of snow on the ground!! It seems to make a slight difference in my ability to breathe this morning, although there is still a lot of wheezing going on. Treatments continue every 6-8 hours, the inhaler on a as need basis, less each day, and the steroid taper is going WAY better than I anticipated. I chock that up to the stabilized blood sugars. I can't believe, although not at a point I had hoped, it is going so well.
I was speaking with Rita Alexander, President of the ISCI, on Thursday and we were discussing how it takes so many years for our bodies to "deteriorate" in the disease process that it can't be expected to disolve overnight. I can't agree enough. I knew going into my treatment that it was not a cure, not yet, but still believe, more now than ever, that it is the direction we need to be going in, in spite of hurdles that the US government and it's overseeing agencies want to hold it up. I was called a "walking billboard!" I think that is one of the best compliments I have had in regard to the knowledge and insight I am bringing on this subject. I have never felt so good about something, and wanting to share it with those I love, as well as people who are, where I have been, where I can still be if I chose to allow my mind to go there. I have bad days, but I have to tell you, they have been so FEW since my treatment. I have an issue currently with the breathing, but ... overall, I can't begin to tell you all the effects I have seen since treatment, and SO many that were unexpected. Who in their right mind, would knock that sort of side effect??
Hillary did what was suppose to be a 5 minute verbal presentation yesterday in her clinical class about the stem cell process, and it apparently turned into a 45 minute, in depth discussion about the whys, hows, why nots?? She was so thrilled, especially seeing she doesn't really like speaking in front of people. She said there were lots of great questions, and stated to me last night, she knows a lot about the process having gone through it all with me, but was not as knowledgeable as she has hoped to be and requested some of my articles to pass out to people who wanted more information on the treatment. It was discussed that in the next 4-6 months that the ISCI will try and come here to the Prescott area and do a seminar, and I have been asked to take part in this process. I am totally thrilled about this opportunity to get the word out there. As stated in past posts, I have a few doctors here in the area that have been following my status, doctors that I do not see professionally, they do not treat me in any way, but are forward thinkers and fed up with the restrictions being placed on the US health care system. It is crap, and we deserve better than just being long-term guinea pigs for our FDA and NIH. There are cures out there, and closer than we think if we are just allowed to get to them.
In any event, Hillary stated that at least 8 people from her class, the 2 instructors, one of which I met while in the hospital with pneumonia, are all interested in attending and bringing family members!! Family members who are suffering with afflictions like MS, Alzhiemer's, Rheumatoid arthritis, diabetes, and that over all biggie for those who just want to "stay on top" of thier health. This is the way to go, and I can't help but feel that all worked out for me the way the Gods intended. I was rejected from the Islet Transplant for a reason, and this, for me, was the better choice. I have no adverse effects from antirejection drugs, which are not only very expensive, but have major side effects. How can I reject what is already mine, only awaken to help me regenerate and repair. I am still working through the "sludge" I created over the past 38 years of living with disease and dealing with "regular" life, I am making a come back. It is sort of like healing in reverse. I was diagnosed with the disease in 1972, a lot has happened since then, and it seems in my writings that things are healing in reverse as to how they came about. My feet have feeling in them again, my brain and vision fog are clear and sharp (Hillary's biggest thrill), my skin, which was a total surprise, is glowing again, first time in a long time as my face was showing the stress of not only disease, but caring for others and all the loss suffered in recent years. My digestive issues, are beyond description, I had not noted this issue on my paperwork, with the hypoglycemic unawareness being my biggest issue to be addressed. This advance in repair has made my blood sugars easier to manage, bringing the stability back into play. I am also down 2 pant sizes ... which to me, gives a whole new meaning to that phrase, "full of shit!" ...LOL .... things are moving like they haven't moved in almost 20 years!! That alone, is amazing results!!! Nerves that have been damaged, are working again, and it can only get better. I do hope to undergo the treatment again, in perhaps a year, as we are taking in labs, physical changes, and getting some statistical information together for documentation purposes. This is all great news, the more we can collect, the more info we can get out.
I can't stress this enough, everyone is different, everyone will respond slightly differently. But .... how can we close the door on this when SO many people have shown such positive results?? Imagine living with such a life altering disease that your whole life is turned upside down. If you have never experienced this sort of altering change, or what the adjustments can do to not only our bodies, but our minds .... then you need to open up your minds and expand to a better tomorrow!!! It can happen, maybe you won't be 15 again, but you will feel better!! I would like to bet my own life on it!!!
With that being said, I am going to try and breathe my way through some indoor work today and grout my windowsills .... LOL .... spring is here,snow or not and I will look at each new day as a new beginning, a gift, given to me by friends who love and have supported me in this long journey to a recovery of new health and appreciation.
Have a wonderful day!!
In Peace and Light
et
Well, I woke up this morning to 4-5 inches of snow on the ground!! It seems to make a slight difference in my ability to breathe this morning, although there is still a lot of wheezing going on. Treatments continue every 6-8 hours, the inhaler on a as need basis, less each day, and the steroid taper is going WAY better than I anticipated. I chock that up to the stabilized blood sugars. I can't believe, although not at a point I had hoped, it is going so well.
I was speaking with Rita Alexander, President of the ISCI, on Thursday and we were discussing how it takes so many years for our bodies to "deteriorate" in the disease process that it can't be expected to disolve overnight. I can't agree enough. I knew going into my treatment that it was not a cure, not yet, but still believe, more now than ever, that it is the direction we need to be going in, in spite of hurdles that the US government and it's overseeing agencies want to hold it up. I was called a "walking billboard!" I think that is one of the best compliments I have had in regard to the knowledge and insight I am bringing on this subject. I have never felt so good about something, and wanting to share it with those I love, as well as people who are, where I have been, where I can still be if I chose to allow my mind to go there. I have bad days, but I have to tell you, they have been so FEW since my treatment. I have an issue currently with the breathing, but ... overall, I can't begin to tell you all the effects I have seen since treatment, and SO many that were unexpected. Who in their right mind, would knock that sort of side effect??
Hillary did what was suppose to be a 5 minute verbal presentation yesterday in her clinical class about the stem cell process, and it apparently turned into a 45 minute, in depth discussion about the whys, hows, why nots?? She was so thrilled, especially seeing she doesn't really like speaking in front of people. She said there were lots of great questions, and stated to me last night, she knows a lot about the process having gone through it all with me, but was not as knowledgeable as she has hoped to be and requested some of my articles to pass out to people who wanted more information on the treatment. It was discussed that in the next 4-6 months that the ISCI will try and come here to the Prescott area and do a seminar, and I have been asked to take part in this process. I am totally thrilled about this opportunity to get the word out there. As stated in past posts, I have a few doctors here in the area that have been following my status, doctors that I do not see professionally, they do not treat me in any way, but are forward thinkers and fed up with the restrictions being placed on the US health care system. It is crap, and we deserve better than just being long-term guinea pigs for our FDA and NIH. There are cures out there, and closer than we think if we are just allowed to get to them.
In any event, Hillary stated that at least 8 people from her class, the 2 instructors, one of which I met while in the hospital with pneumonia, are all interested in attending and bringing family members!! Family members who are suffering with afflictions like MS, Alzhiemer's, Rheumatoid arthritis, diabetes, and that over all biggie for those who just want to "stay on top" of thier health. This is the way to go, and I can't help but feel that all worked out for me the way the Gods intended. I was rejected from the Islet Transplant for a reason, and this, for me, was the better choice. I have no adverse effects from antirejection drugs, which are not only very expensive, but have major side effects. How can I reject what is already mine, only awaken to help me regenerate and repair. I am still working through the "sludge" I created over the past 38 years of living with disease and dealing with "regular" life, I am making a come back. It is sort of like healing in reverse. I was diagnosed with the disease in 1972, a lot has happened since then, and it seems in my writings that things are healing in reverse as to how they came about. My feet have feeling in them again, my brain and vision fog are clear and sharp (Hillary's biggest thrill), my skin, which was a total surprise, is glowing again, first time in a long time as my face was showing the stress of not only disease, but caring for others and all the loss suffered in recent years. My digestive issues, are beyond description, I had not noted this issue on my paperwork, with the hypoglycemic unawareness being my biggest issue to be addressed. This advance in repair has made my blood sugars easier to manage, bringing the stability back into play. I am also down 2 pant sizes ... which to me, gives a whole new meaning to that phrase, "full of shit!" ...LOL .... things are moving like they haven't moved in almost 20 years!! That alone, is amazing results!!! Nerves that have been damaged, are working again, and it can only get better. I do hope to undergo the treatment again, in perhaps a year, as we are taking in labs, physical changes, and getting some statistical information together for documentation purposes. This is all great news, the more we can collect, the more info we can get out.
I can't stress this enough, everyone is different, everyone will respond slightly differently. But .... how can we close the door on this when SO many people have shown such positive results?? Imagine living with such a life altering disease that your whole life is turned upside down. If you have never experienced this sort of altering change, or what the adjustments can do to not only our bodies, but our minds .... then you need to open up your minds and expand to a better tomorrow!!! It can happen, maybe you won't be 15 again, but you will feel better!! I would like to bet my own life on it!!!
With that being said, I am going to try and breathe my way through some indoor work today and grout my windowsills .... LOL .... spring is here,snow or not and I will look at each new day as a new beginning, a gift, given to me by friends who love and have supported me in this long journey to a recovery of new health and appreciation.
Have a wonderful day!!
In Peace and Light
et
Wednesday, April 6, 2011
Look what I found today ...
Good Evening ...
Well ... went to the dentist first this morning, all looks good, except the cost of the cap. Then I had to go to the doctor due to this allergie blowup. She told me she saw on the news that Prescott has the highest pollen level in the country currently. GREAT .... and a few breaths from me on a walk up the street sucks my lungs to a standstill. So ... another round of steroids, an inhaler and a nebulizer treatment twice a day ... "aggressive" is what she tells me. Really??? I was fine just two days ago ... this just blows!!! I have a ton of yard work to get done to make way for my new trees, which we hope to have planted in the next couple of weeks.
Anyway ... while sitting in the waiting room today, I look down into the magazine basket and right on top I see the following magazine. I would not normally have picked up this mag except the largest headline was "STEM CELLS" .... so I just have to share this article.
http://www.newyoumag.com/magazine/spring-2011/the-stem-cell-revolution/
(Cut and paste the above link to get to the article)
In actuality, this is the treatment I had done, via the IV feedback, and yet if you are into cosmetic line of medicine we can get what we need, on the DL as my daughter calls it. There is also an interesting paragraph on the FDA standing on this practice, and what they will call a "drug." Again, as I stated right after my treatment, if you pulled this stuff out of my body and only used a high-powered light activator, it IS NOT a drug. They are mine, and I want them back, in large quantities ... LOL .... I certainly have enough fat cells to spare, and all the added benefits I have recieved since my treatment for the disease process, was totally worth it, my skin is so much younger looking, tighter, smoother, much more radiant as I was told this morning ... this is not just great stuff, it is the promise to many people that the US government is holding back on so they can figure out a way to make the all mighty buck off the people again!!! This needs to stop ...
Anyway ... it is a great article with the basic information and the benefits that were had by these patients, and the doctors who were discovering the benefits, years ago.
Enjoy ...
Peace and Light
et
Well ... went to the dentist first this morning, all looks good, except the cost of the cap. Then I had to go to the doctor due to this allergie blowup. She told me she saw on the news that Prescott has the highest pollen level in the country currently. GREAT .... and a few breaths from me on a walk up the street sucks my lungs to a standstill. So ... another round of steroids, an inhaler and a nebulizer treatment twice a day ... "aggressive" is what she tells me. Really??? I was fine just two days ago ... this just blows!!! I have a ton of yard work to get done to make way for my new trees, which we hope to have planted in the next couple of weeks.
Anyway ... while sitting in the waiting room today, I look down into the magazine basket and right on top I see the following magazine. I would not normally have picked up this mag except the largest headline was "STEM CELLS" .... so I just have to share this article.
http://www.newyoumag.com/magazine/spring-2011/the-stem-cell-revolution/
(Cut and paste the above link to get to the article)
In actuality, this is the treatment I had done, via the IV feedback, and yet if you are into cosmetic line of medicine we can get what we need, on the DL as my daughter calls it. There is also an interesting paragraph on the FDA standing on this practice, and what they will call a "drug." Again, as I stated right after my treatment, if you pulled this stuff out of my body and only used a high-powered light activator, it IS NOT a drug. They are mine, and I want them back, in large quantities ... LOL .... I certainly have enough fat cells to spare, and all the added benefits I have recieved since my treatment for the disease process, was totally worth it, my skin is so much younger looking, tighter, smoother, much more radiant as I was told this morning ... this is not just great stuff, it is the promise to many people that the US government is holding back on so they can figure out a way to make the all mighty buck off the people again!!! This needs to stop ...
Anyway ... it is a great article with the basic information and the benefits that were had by these patients, and the doctors who were discovering the benefits, years ago.
Enjoy ...
Peace and Light
et
Allergies .... Asthma ....??
Morning All!!
It's hump day ... yippie ... it's half over.
I am, again, wheezing like no tomorrow. To the point a coworker made mention yesterday afternoon that I was breathing like I did when I had pneumonia. I saw deep concern on her face. I did walk up the street yesterday to another building, walking right into a big Juniper bush, I hate these things!! I think this is what has made what was seasonal allergies a whole lot worse. In any event, pollen and blowing has been pretty bad the last week or so and I have been taking my Claritin D and pushing the water, but ... I apparently am losing!! I will be seeing the doctor again today because I was not discharged with any sort of inhaler. Lucky for me I found one floating around in the bathroom last night and hit it and went to bed, having to hit it again during the night. It is just horrible ... post nasal drip, stuffy head, swollen water eyes.... I had allergies back east, and when I moved here I thought WOW ... for two years I was great, then BANG!! I get like this. A couple of doctors say I have asthma, that sort of pisses me as I didn't have asthma when I moved here and this was suppose to be a great place to come live if you had asthma. What I don't get... ??? ... is that everywhere you go around here there seems to be people on O2 ... LMAO ... I thought is was mostly old people, then the more you look around, seems as though a lot of the kids, mine included, suffer from asthma. HT having exercise induced asthma ... I think it is in large part to all the flipping dust that blows around, no moisture, .... yes, you could be right, I could just be in denial ... LOL ... Fact is, I have a crap-ton of yard work to be done and if I can't breathe in the house, I can't breathe outside even worse. Oh well ... this too, will be dealt with.
On the stemmie side ... things continue to be stable. Blood sugars seem to be stable, although I have seen little more in the decrease of insulin intake. I am, however, thrilled at the gastrointestinal improvement that has been seen. I had a dream that my body was healing in reverse ... LOL .... that all the things that have declined since being diagnosed as a child, will improve in the order in which I was inflicted .... I am and was pretty positive prior to treatment, that more than one would be needed. I am curious as to how long I should, or have to wait before I attempt the second treatment??? I am in the thought that at least a year will be the time period. I am going to have the labs drawn today (I hope) and can see what sort of changes have taken place. My bets ... LOL ... based on certain things I have experienced, is that my thyroid has been affected, am curious about other lab values, but am pretty sure there has been positive changes.
In spite of the allergy/asthma hitch, I am still feeling pretty good. Bones, joints, muscles and range of motion have all been positive improvements that I didn't expect to experience. The all-over body pain I have suffered since the mid-90s has all greatly disipated ... it is amazing!! and very much a welcome change.
I guess I should get myself motivated as I have a dental and doctor appointment this morning, and then off to the office. Needing to pace myself due to lack of breathing capacity I should get it moving.
I wish everyone a wonderful day, full of hope and enlightenment.
Peace and Light
et
It's hump day ... yippie ... it's half over.
I am, again, wheezing like no tomorrow. To the point a coworker made mention yesterday afternoon that I was breathing like I did when I had pneumonia. I saw deep concern on her face. I did walk up the street yesterday to another building, walking right into a big Juniper bush, I hate these things!! I think this is what has made what was seasonal allergies a whole lot worse. In any event, pollen and blowing has been pretty bad the last week or so and I have been taking my Claritin D and pushing the water, but ... I apparently am losing!! I will be seeing the doctor again today because I was not discharged with any sort of inhaler. Lucky for me I found one floating around in the bathroom last night and hit it and went to bed, having to hit it again during the night. It is just horrible ... post nasal drip, stuffy head, swollen water eyes.... I had allergies back east, and when I moved here I thought WOW ... for two years I was great, then BANG!! I get like this. A couple of doctors say I have asthma, that sort of pisses me as I didn't have asthma when I moved here and this was suppose to be a great place to come live if you had asthma. What I don't get... ??? ... is that everywhere you go around here there seems to be people on O2 ... LMAO ... I thought is was mostly old people, then the more you look around, seems as though a lot of the kids, mine included, suffer from asthma. HT having exercise induced asthma ... I think it is in large part to all the flipping dust that blows around, no moisture, .... yes, you could be right, I could just be in denial ... LOL ... Fact is, I have a crap-ton of yard work to be done and if I can't breathe in the house, I can't breathe outside even worse. Oh well ... this too, will be dealt with.
On the stemmie side ... things continue to be stable. Blood sugars seem to be stable, although I have seen little more in the decrease of insulin intake. I am, however, thrilled at the gastrointestinal improvement that has been seen. I had a dream that my body was healing in reverse ... LOL .... that all the things that have declined since being diagnosed as a child, will improve in the order in which I was inflicted .... I am and was pretty positive prior to treatment, that more than one would be needed. I am curious as to how long I should, or have to wait before I attempt the second treatment??? I am in the thought that at least a year will be the time period. I am going to have the labs drawn today (I hope) and can see what sort of changes have taken place. My bets ... LOL ... based on certain things I have experienced, is that my thyroid has been affected, am curious about other lab values, but am pretty sure there has been positive changes.
In spite of the allergy/asthma hitch, I am still feeling pretty good. Bones, joints, muscles and range of motion have all been positive improvements that I didn't expect to experience. The all-over body pain I have suffered since the mid-90s has all greatly disipated ... it is amazing!! and very much a welcome change.
I guess I should get myself motivated as I have a dental and doctor appointment this morning, and then off to the office. Needing to pace myself due to lack of breathing capacity I should get it moving.
I wish everyone a wonderful day, full of hope and enlightenment.
Peace and Light
et
Sunday, April 3, 2011
New Website Launch
Check out the new website launched this past week by the International Stem Cell Institute .... VERY COOL, and very informative, with much more to come :D
Cut and Paste the following link into your browser:
www.StemGenex.com
Enjoy!!
Cut and Paste the following link into your browser:
www.StemGenex.com
Enjoy!!
Another New Week
Hi Everyone!!
Well spring is here in Arizona, and so are the blooming weeds!!! There is one weed in particular that the smell of not only blows my head to another galaxy, but the smell nauseates me beyond belief, and they are sprouting up EVERYWHERE!!! In the fall, they will be the tumbleweeds that are now blowing all over Arizona.
I had to drive down to Phoenix yesterday morning to attend a class. I was up at 4, left at 6, arrived at 8:30, left at 11:45, returned home at 1:30. Too much driving and education to cram into such a short period of time. It was 94 degrees when I came out of the hospital, the conference room we were in was almost that hot as well. My blood sugars seemed to be a little high yesterday, not sure if this is allergy related or stress related. I will be having some blood work done this week and we will get a first REAL look at what is going on since treatment. I am sort of leery to all the antibiotics that were pumped into me to treat the pneumonia, and the deep stress levels in regard to caring for my father and lack of support from any siblings has caused. I have since, come to the realization, that it is my duty, and I will tend to it, minus any sibling input, if they don't want to step up, then ALL decisions are mine, and I will deal with the consequences, NOT theirs, they can deal with that all by themselves as they are the ones that created the dark hole. From that point forward, I am on my own as far as immediate family goes. I am sorry it came to this, however, it was not I, that could not deal with the issues at play. They all chose to leave it all to me and walk away. Digging up the past, is not my idea of dealing with the issues of the present and moving forward, which is what one "player" put forth. Call me all the names you want, blame me, as it appears you are already doing, keep score, also a trait I knew would come into play. I don't keep score. I know that MANY people have done wonderful, generous things for both me and my daughter over the years. If I knew then, what I know now, perhaps I would never have accepted those gifts and/or offerings of help knowing they would be thrown back in my face years later. I do things to help people out of the goodness of my heart, not expecting to be repaid, or that the deed come back to me. It is true, that it is better to give than receive. I can honestly say that I have been on both ends. To give, what little I have to offer, my support, an ear, perhaps a place to sleep, a decent meal, a hot shower, makes me feel good in my soul. To receive, such as I have recently, in a manner in which someone WANTS me to grow old with them, if even from a far, is such a humbling experience. They see the person I am, the lengths I have gone to in my caring for others, and expecting no rewards. Where my siblings are concerned, I had different expectations, that was my bad!! LOL ... silly me, I should never "expect" as I should know by now in life that my expectations of others are often higher than most could ever aspire ... LMAO ... yes, I am!! I refuse to lower my expectations where the human goodness is concerned, or even work ethics, as a coworker stated to me just this past week, "lower your expectations." LOL ... NOT!! We should all be ethical in our workings, and encounters. What has happened to everyone??? Greed, selfishness, overall BIG I, little u syndrome is rampant.
Ok ... with that tangent out of the way, my baby is home from work and will be going to bed soon, so I must start my day!!! Have a great day everyone!!
In Peace and Light
et
Well spring is here in Arizona, and so are the blooming weeds!!! There is one weed in particular that the smell of not only blows my head to another galaxy, but the smell nauseates me beyond belief, and they are sprouting up EVERYWHERE!!! In the fall, they will be the tumbleweeds that are now blowing all over Arizona.
I had to drive down to Phoenix yesterday morning to attend a class. I was up at 4, left at 6, arrived at 8:30, left at 11:45, returned home at 1:30. Too much driving and education to cram into such a short period of time. It was 94 degrees when I came out of the hospital, the conference room we were in was almost that hot as well. My blood sugars seemed to be a little high yesterday, not sure if this is allergy related or stress related. I will be having some blood work done this week and we will get a first REAL look at what is going on since treatment. I am sort of leery to all the antibiotics that were pumped into me to treat the pneumonia, and the deep stress levels in regard to caring for my father and lack of support from any siblings has caused. I have since, come to the realization, that it is my duty, and I will tend to it, minus any sibling input, if they don't want to step up, then ALL decisions are mine, and I will deal with the consequences, NOT theirs, they can deal with that all by themselves as they are the ones that created the dark hole. From that point forward, I am on my own as far as immediate family goes. I am sorry it came to this, however, it was not I, that could not deal with the issues at play. They all chose to leave it all to me and walk away. Digging up the past, is not my idea of dealing with the issues of the present and moving forward, which is what one "player" put forth. Call me all the names you want, blame me, as it appears you are already doing, keep score, also a trait I knew would come into play. I don't keep score. I know that MANY people have done wonderful, generous things for both me and my daughter over the years. If I knew then, what I know now, perhaps I would never have accepted those gifts and/or offerings of help knowing they would be thrown back in my face years later. I do things to help people out of the goodness of my heart, not expecting to be repaid, or that the deed come back to me. It is true, that it is better to give than receive. I can honestly say that I have been on both ends. To give, what little I have to offer, my support, an ear, perhaps a place to sleep, a decent meal, a hot shower, makes me feel good in my soul. To receive, such as I have recently, in a manner in which someone WANTS me to grow old with them, if even from a far, is such a humbling experience. They see the person I am, the lengths I have gone to in my caring for others, and expecting no rewards. Where my siblings are concerned, I had different expectations, that was my bad!! LOL ... silly me, I should never "expect" as I should know by now in life that my expectations of others are often higher than most could ever aspire ... LMAO ... yes, I am!! I refuse to lower my expectations where the human goodness is concerned, or even work ethics, as a coworker stated to me just this past week, "lower your expectations." LOL ... NOT!! We should all be ethical in our workings, and encounters. What has happened to everyone??? Greed, selfishness, overall BIG I, little u syndrome is rampant.
Ok ... with that tangent out of the way, my baby is home from work and will be going to bed soon, so I must start my day!!! Have a great day everyone!!
In Peace and Light
et
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