Tuesday, May 31, 2011

Getting a little ticked off with the local medical community

Let us see how long we can drag out this frustration.

I had another ultrasound done this afternoon, having gone back to the hospital instead of the other "imaging" specialists here in town who did my CT and I was not impressed with them at ALL. Today, we saw two large lymph nodes (yes, even I, not the rocket scientist, but knowledgeable enough to know what I am looking at) on scan. Normally, they are not seen on scan as this large, but can often be seen on a regular basis. However, the tech of course can not tell my anything that she may "think" she sees as she is not qualified to do so, that is the radiologists job. My question is WHY is this taking so long??

This past weekend I had to start yet another round of prednisone or admit to the ER yet again. I received copies of records dating back for the last 5 stays at the local hospital dating back to 2008, for the infamous, non-hernia repair in the same area. This was cleared up in a sense as to the scar tissue being cut away, but only a small, mesh plug used to repair a so-called hernia. Also found in these records was that in 4/10 on an ER visit in which this same area had acted up, a scan showed a DVT, ..... hmmmm ..... why was I not told about this potential danger at the time. This past visit, 5/14 to the ER imaging showed no signs of DVT, but, an irregular EKG, and elevated D-Dimer test, indicating the possible presence of DVT or PE, and multiple "cytes" blood work results in which were elevated and/or low, indicating a problem. That must be what they meant when on follow up they stated your labs came back "relatively normal." WTF is that suppose to mean?? It is either normal or not, and I am not a patient who has ever shown any sort of irregularities in this area of my labs, except on this recent infection called pneumonia in February. I am confused, a bit ticked off, and perhaps need to find myself including Hillary in the fighting process to make sure that I am not being used as a vulnerable oversight when I show up in obvious pain and distress as anyone who knows me, deals with me on a daily basis is wondering how I "do it" these days as these people are stating that they would not know how to keep going day in, and day out, in this fashion, or feeling and looking like I have, SHIT, according to my daughter upon meeting me in the registration area this afternoon.

Ok ... well ... it is almost 8 pm and I have to go to bed as I am exhausted, and tomorrow brings another day at the grind where I am minimally appreciated at best by the uppers recently.

So ... we wait some more. If we don't have any sort of game plan by end of week, my daughter says I am en route to a Phoenix hospital for another opinion.

Peace and Light
et

3 comments:

  1. You need to get out of there and go to Phoenix. I know it's a long trip, but I think it will be worth it. I don't mean to be stupid, but what does DVT, PE and D-Demer test mean? I just don't know how you keep hanging in there, but you do.
    As always, my Prayers and thoughts are with you and Hillary.
    Love Mom D

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  2. Aggie - NEVER stupid questions!! DVT is a Deep Vein Thrombosis (clot); PE one in the lung = pulmonary embolism; D-Dimer is a blood test that shows an elevation in certain enzymes that indicate possibility of blood clot, and there is one more that is important which would be Troponin levels, which indicate a heart attack and/or damage.

    Again, questions are ALWAYS welcome, none are stupid, and your love and prayers are always felt!! Have a good day ... I'm trying to just do the one day at a time thing. :D xoxox

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  3. Hang in there Bink.
    Love Deb

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