Good Morning and Happy Friday!!!
To some, this post may be gross, to others, it could be eye opening ... to say the least.
This past week has been quite a ride. This morning ... and for the past few days, I have to say, I feel like a toxic waste dump. Yes, (according to my friend DD) key word here would be "dump." lol
I am going to make this a quick post and try to do one thing that may be considered productive today. I have not done much of anything this past week except sleep and lounge, mostly sleep. In the off moments when I am awake and moving around things have been doing just that ... moving. I know after my first treatment I had mentioned that one of the positive effects I got was the movement in my digestive track again. After 20 years of ... sludge .... lol .... things were moving. I believe this is where the weight loss is coming from. (I can hear so many bustin' a gut laughing, those that know me anyway) It is ok, it is all good. I was telling HT within 24 hours of treatment last week that I felt a lot of sensation in my gut region. To me, this is a sign of "regeneration" at it's best. Between that area, and the coughing, which was also addressed with the 1st treatment. I had the bilateral pneumonia last year, this year, I got caught with the spring allergies. We travelled to CA in a snow storm, up and down in elevation from a mile high to sea level and back, and from moist to windy and dry. All of this hit my lungs, sinuses, etc and so I have been expelling lots of .... well .... toxins. There is no other way to state this fact. I had my massage on Weds evening and oh my ... yesterday I was one sore puppy and shall we say ... all the water I was packing away to help move those toxins along ... my all time favorite comfy sweats .... are now literally falling down. It bums me out as I really love my comfy sweats when hanging around the house and to have them falling off is not a comfy feeling, not to mention it sort of ticks off the girl-child. :) This is all good ... and hopefully you are getting where I am coming from here. The gastroparesis effects of my stem cell treatments have been nothing short of miraculous. Given that over the past 20 years I have been placed on multiple meds, one had negative side effects (Reglan), one was removed from the market and was the one that worked for me (Propulsid), an antibiotic (erythromyacin) was used for about 2 years to help with the motility issue, in spite of my opinion of causing secondary infections and the whole immune issue regarding infections that would not respond to antibiotic treatment. I still feel this is a reason antibiotics don't touch some of my infections (sinus) without 2 rounds or more. I believe I have some sort of resistance to them now because of this route of treatment. Anyway, since the altering of my dietary intake, and addition of my whole food supplements over the years, and of course, the stem cell treatment, which gave me hope where I never expected it as it wasn't my main concern at the time of seeking treatment. This is "GOOD SHIT" .... LOL .... sorry, I couldn't resist. I have to keep this real and let's face it ... we all do it!!!
Ok ... so that is my good news for this week. hehehe ... I continue to make progress, regardless of how slow it seems to me, I do think it is a quick response. Several other things have intensified with this treatment in just the past week. I believe, and I am not positive (any feed back here would be great!!) that treatment is somehow intensifying my fairly new status of "MENTALPAUSAL" ( on many levels. I think somehow, the effects on hot flashes has intensified and I am not really liking this as I literally changed my shirt 3 times yesterday. First when this heat hits I aim for my glucose meter as it could be an indication of a falling glucose level. With 9 out of 10 tests indicating not glucose related it is the only conclusion I can come too. So the whole hormone reaction is what is confusing me this round. Ahhhh ... to be older and wiser.... hehehe. If I could concentrate and focus a little better I would look into this theory, however, I don't even know where to start so I get frustrated and go onto something else. I am getting somewhat thin not having been down this much since .... maybe mid-90's ... ?? Not really sure ... but I am going to try and maintain and work on the toning of such so that I don't look like a big hunk of flesh ... .LOL ... (some of these "sights" have come to me in the bizarre dreams that have been waking me these past months). I am not nuts, as some may like to term it to describe me. I am just feeling a little more in tune to what is going on, I just can't seem to place it all in an appropriate place to move forward, so I am just riding it, as I don't have much choice.
And ... last for today, my insulin intake was tweaked down 2/10ths of a unit per hour due to the multiple crashing of the past few days ... I do this based on my data, which I print out and take/share with my endocrinologist to review. We have "tweaked" more since my stem cell treatments than we ever have and I think that if promising info!!! So ... it can only get better as the weeks go by.
On this dirty note ... hehehe ... I am going to wish everyone a wonderful weekend!!!!
Be good to yourself .... Be good to each other!!! A practice I really believe we need to bring back to the forefront of society.
Enjoy!!
Peace and Light ~~
et
Friday, March 30, 2012
Wednesday, March 28, 2012
Not a bad day overall
Hi ...
Well ... ortho cut me free regarding accident injury to my right knee. I think he was a little surprised on the measurement he took regarding range of motion based on where it was a month ago, and where it is now. Well ... I did have 6 weeks of PT, 3 times a week .... I haven't done that since I was like 22... LOL. Anyway ... had a massage this afternoon and I have to tell you, I had one prior to treatment and this one fell at just the right time. I was almost asleep I was so relaxed by the end. Some tight spots are still very evident, but it's going to take time. I can at least now feel things I have not felt in months. Makes me wonder what exactly my body did on impact while my head checked out.
I am hoping to sleep good tonight. Sleep is still slightly disrupted, lots of really strange dreams, I find myself waking up at odd hours, sometime, not knowing where I am .... what's up with that???
Ok .. well ... this baby is headed to la-la land. Life is changing ... and I am really trying to accept all the changes, good and bad, and make the best of it all ... it seems so drastic these past few months ... what I thought I was prepared for, I apparently was not. One step at a time ... amazing how many times it seems we "start anew" in our lifetimes .... or is it just me???
I have asked a couple of friends who have stuck by me since the accident and have noticed many changes from that point to the present to guest blog for me again. I think that an outsider's perspective to what is going on is an eyeopening experience sometime. It just seems to me that they have noticed a lot since the accident and I know it can't be easy for them either, but they are the ones who have had to deal with me so I need to know what is transpiring out there in the real world. I hope they can help bring some light to the big picture of what life has held for me the last few months. I know I still have a lot of work to do to rearrange certain aspects of life's daily activities and hopefully return to work ... it's just I am not really use to not having a deadline of sorts.
I think it's time for bed.
Sweet dreams to my peeps ... thanks for tuning in ... you know I have said it before, comments and questions for discussions are always welcome. You are helping me as much as I am helping you.
Enjoy the evening ...
Peace and Light
et
Well ... ortho cut me free regarding accident injury to my right knee. I think he was a little surprised on the measurement he took regarding range of motion based on where it was a month ago, and where it is now. Well ... I did have 6 weeks of PT, 3 times a week .... I haven't done that since I was like 22... LOL. Anyway ... had a massage this afternoon and I have to tell you, I had one prior to treatment and this one fell at just the right time. I was almost asleep I was so relaxed by the end. Some tight spots are still very evident, but it's going to take time. I can at least now feel things I have not felt in months. Makes me wonder what exactly my body did on impact while my head checked out.
I am hoping to sleep good tonight. Sleep is still slightly disrupted, lots of really strange dreams, I find myself waking up at odd hours, sometime, not knowing where I am .... what's up with that???
Ok .. well ... this baby is headed to la-la land. Life is changing ... and I am really trying to accept all the changes, good and bad, and make the best of it all ... it seems so drastic these past few months ... what I thought I was prepared for, I apparently was not. One step at a time ... amazing how many times it seems we "start anew" in our lifetimes .... or is it just me???
I have asked a couple of friends who have stuck by me since the accident and have noticed many changes from that point to the present to guest blog for me again. I think that an outsider's perspective to what is going on is an eyeopening experience sometime. It just seems to me that they have noticed a lot since the accident and I know it can't be easy for them either, but they are the ones who have had to deal with me so I need to know what is transpiring out there in the real world. I hope they can help bring some light to the big picture of what life has held for me the last few months. I know I still have a lot of work to do to rearrange certain aspects of life's daily activities and hopefully return to work ... it's just I am not really use to not having a deadline of sorts.
I think it's time for bed.
Sweet dreams to my peeps ... thanks for tuning in ... you know I have said it before, comments and questions for discussions are always welcome. You are helping me as much as I am helping you.
Enjoy the evening ...
Peace and Light
et
One week this morning
Good Morning and Happy Hump Day to all !
It has been one week this morning (in 2 hours to be exact :). That saying "it's going to get worse, before it gets better" is true. I have discovered this long ago ... I do believe that today will be a good day ... if I pay attention (this is a problem lately). It is almost 7:30 am, I have been awake and up since 5:00 am. Maggie has patiently listened to me hack and wheeze for a good portion of this time. Remember that last year after my first treatment I had been walking around with double pneumonia, apparently brought on by allergy induced asthma. Well kids ... I can tell you that if this is what spring allergies in the high desert are going to do to me on a yearly basis for 3-4 months out of the year, I am going to look for a new area, perhaps a little closer to the ground. I finished the antibiotic yesterday. I began some breathing treatments, you know, that albuteral based crap that I don't like, but can make a difference (trying to avoid steroid intervention). I slept the best I have in months and woke to movement in my lungs that has had me doing the slow, deep, cleansing type breathing for the past 2 hours. Maggie (my faithful and loyal companion) has been right here by my side, or on my lap ( I believe she helps me to regulate the slow rhythmic breaths that make all feel right) and is now on the other side of the sofa curled up resting herself. She has this knowledge ... I don't know how these animals do this but this too, is an amazing process. Ok ... well ... I am trying to plan the day so that I can make the most of it, as right now, I could use a nap myself.
I have an orthopedic appointment this morning and am thinking that he is going to release me from care, as far as the accident injuries go. My "trigger" thumb, which brought me to him initially after a heavy bout of weed whacking .... LOL .... has been back and irritating me, however, I am going to let it ride for a couple of more weeks seeing as I am feeling a little relief in movement today and would like to hold off on any of the steroid based treatments as they mess with the blood sugars, which are under some change. It aches, but I am moving it slowly and keeping an eye on it. My knee seems to be feeling good, I don't know what long term effects that damage may play, but for now, it seems to be moving freely with the exception of occasional cracking. My neck ... well ... that is some news. I had cervical spine issues prior to the accident with some bone spurs, and injury from the past, but after the direct injections of stem cells/PRP to the area last week, not only has my headache subsided, I can feel a very obvious relief in the knots and tension that went deep. I am booked for another massage this afternoon and am hoping that the therapist sees/feels a difference as well. For the past, almost 4 months now, PT and docs have noticed that the tension and knots that resulted from the accident have gone deep and would take time to work out and heal.
Overall, in the past week, I have been working through the foggy focus issues, which I think seem to be clearer in spite of my lack of true organization in respect to staying on task ... (not sure if that made any sense??? I understood it .... haha) I am still frustrated in that area, but begin therapy with a person who has knowledge with head injury patient and strategy to put in place. I am concerned that all the coughing I have been doing to clear wheezing and breath sounds have had on the incision in my navel, but it looks pretty good so far.
So today, I am off to do my first breathing treatment, then shower and off to the doc, which requires my patience in getting my ass to the docs without major panic/anxiety, and then .... Lunch with 2 co-workers who are just thrilled and excited for this recent treatment, already stating what they have seen. I think it is time for another "Guest Blogger" ..... what do you think. My outlook can give you my perspective, but ... I find if often times is nice to hear what people on the outside are seeing, the folks who know you well enough to notice a real difference, but sometimes bite their tongues as to not hurt feelings. I have a couple of those and I am SO VERY BLESSED as they keep me on track, they keep me real, they acknowledge that I like my control, and that I am a pusher, and that I have really had to alter my outlook and approach since the accident and the frustration I feel. I love them and thank God for them every day!!! That includes the team from Stem Genex, who without their help and guidance would have me still in the depths of depression and frustration due to the effects on my function of intelligence since the accident. I do feel like my personality is coming back slowly, I am still a little slow on the uptake depending on what the topic is and how many people are talking at one time. It is like I can't take all the distractions, which was never an issue prior.
I would like to wish everyone a wonderful day!!!
Be good to you, be good to each other!!!
Peace and Light
et
It has been one week this morning (in 2 hours to be exact :). That saying "it's going to get worse, before it gets better" is true. I have discovered this long ago ... I do believe that today will be a good day ... if I pay attention (this is a problem lately). It is almost 7:30 am, I have been awake and up since 5:00 am. Maggie has patiently listened to me hack and wheeze for a good portion of this time. Remember that last year after my first treatment I had been walking around with double pneumonia, apparently brought on by allergy induced asthma. Well kids ... I can tell you that if this is what spring allergies in the high desert are going to do to me on a yearly basis for 3-4 months out of the year, I am going to look for a new area, perhaps a little closer to the ground. I finished the antibiotic yesterday. I began some breathing treatments, you know, that albuteral based crap that I don't like, but can make a difference (trying to avoid steroid intervention). I slept the best I have in months and woke to movement in my lungs that has had me doing the slow, deep, cleansing type breathing for the past 2 hours. Maggie (my faithful and loyal companion) has been right here by my side, or on my lap ( I believe she helps me to regulate the slow rhythmic breaths that make all feel right) and is now on the other side of the sofa curled up resting herself. She has this knowledge ... I don't know how these animals do this but this too, is an amazing process. Ok ... well ... I am trying to plan the day so that I can make the most of it, as right now, I could use a nap myself.
I have an orthopedic appointment this morning and am thinking that he is going to release me from care, as far as the accident injuries go. My "trigger" thumb, which brought me to him initially after a heavy bout of weed whacking .... LOL .... has been back and irritating me, however, I am going to let it ride for a couple of more weeks seeing as I am feeling a little relief in movement today and would like to hold off on any of the steroid based treatments as they mess with the blood sugars, which are under some change. It aches, but I am moving it slowly and keeping an eye on it. My knee seems to be feeling good, I don't know what long term effects that damage may play, but for now, it seems to be moving freely with the exception of occasional cracking. My neck ... well ... that is some news. I had cervical spine issues prior to the accident with some bone spurs, and injury from the past, but after the direct injections of stem cells/PRP to the area last week, not only has my headache subsided, I can feel a very obvious relief in the knots and tension that went deep. I am booked for another massage this afternoon and am hoping that the therapist sees/feels a difference as well. For the past, almost 4 months now, PT and docs have noticed that the tension and knots that resulted from the accident have gone deep and would take time to work out and heal.
Overall, in the past week, I have been working through the foggy focus issues, which I think seem to be clearer in spite of my lack of true organization in respect to staying on task ... (not sure if that made any sense??? I understood it .... haha) I am still frustrated in that area, but begin therapy with a person who has knowledge with head injury patient and strategy to put in place. I am concerned that all the coughing I have been doing to clear wheezing and breath sounds have had on the incision in my navel, but it looks pretty good so far.
So today, I am off to do my first breathing treatment, then shower and off to the doc, which requires my patience in getting my ass to the docs without major panic/anxiety, and then .... Lunch with 2 co-workers who are just thrilled and excited for this recent treatment, already stating what they have seen. I think it is time for another "Guest Blogger" ..... what do you think. My outlook can give you my perspective, but ... I find if often times is nice to hear what people on the outside are seeing, the folks who know you well enough to notice a real difference, but sometimes bite their tongues as to not hurt feelings. I have a couple of those and I am SO VERY BLESSED as they keep me on track, they keep me real, they acknowledge that I like my control, and that I am a pusher, and that I have really had to alter my outlook and approach since the accident and the frustration I feel. I love them and thank God for them every day!!! That includes the team from Stem Genex, who without their help and guidance would have me still in the depths of depression and frustration due to the effects on my function of intelligence since the accident. I do feel like my personality is coming back slowly, I am still a little slow on the uptake depending on what the topic is and how many people are talking at one time. It is like I can't take all the distractions, which was never an issue prior.
I would like to wish everyone a wonderful day!!!
Be good to you, be good to each other!!!
Peace and Light
et
Monday, March 26, 2012
It's only been 5 days ...
Evening Folks ...
I am so tired ... I don't remember being this tired after my 1st treatment. It could be any number of things. The trip itself was overwhelming on so many levels and I am hoping I can share the big excitement soon. It has only been 5 days since my adipose stem cell treatment and I am going to have to drop my insulin intake when I get in the shower tonight. (Pump change). I have bottomed out on my blood sugars several times with no real reason, I could understand if I had over-bolused or didn't do a square wave/dual wave delivery. So I will adjust my pump and drop my intake by 1/2 unit this evening. Other than that, I am not doing much of anything. I have been sleeping for what seems like days ... 2 I guess. I am still trying to cough up whatever started in my lungs, and there was the antibiotic reaction ... that could be it ... so ... I will just rest for another day or 2.
My headaches have stopped!!!! That right there is worth a million!! I had a headache for 3 months since the accident. The doctor injected my neck directly this treatment as well as my IV drip. It wasn't as bad as I would have anticipated, but, having a constant headache for 3 months, I don't think anything could have been much worse. It was pretty amazing, I was moving my neck within 10 minutes!!! (I have been resting it since). I know this is going to sound like the ultimate oxymoron, but for as bad as I feel, I am feeling better.
I have so much I would like to share, but my energy level and memory is still a little foggy. I think I need to listen to my body more and just do the resting thing for a few days. I will try and get it motivated as soon as I can.
Just thought I would do a little up date. I have an orthopedic appointment on Weds. I am pretty sure he will release me as I have finished my physical therapy and my knee is showing improvement. It's weird, but I think I feel a lot of "activity" in my gut ... my belly button is wicked itchy (this is where they accessed this time) that would indicate healing. LOL .... amazingly, there has been no bruising on the skin surface ... the whole process just continues to blow me away with the capabilities of healing.
Wishing everyone a peaceful night.
Sleep well and sweet dreams.
Peace and Light
et
I am so tired ... I don't remember being this tired after my 1st treatment. It could be any number of things. The trip itself was overwhelming on so many levels and I am hoping I can share the big excitement soon. It has only been 5 days since my adipose stem cell treatment and I am going to have to drop my insulin intake when I get in the shower tonight. (Pump change). I have bottomed out on my blood sugars several times with no real reason, I could understand if I had over-bolused or didn't do a square wave/dual wave delivery. So I will adjust my pump and drop my intake by 1/2 unit this evening. Other than that, I am not doing much of anything. I have been sleeping for what seems like days ... 2 I guess. I am still trying to cough up whatever started in my lungs, and there was the antibiotic reaction ... that could be it ... so ... I will just rest for another day or 2.
My headaches have stopped!!!! That right there is worth a million!! I had a headache for 3 months since the accident. The doctor injected my neck directly this treatment as well as my IV drip. It wasn't as bad as I would have anticipated, but, having a constant headache for 3 months, I don't think anything could have been much worse. It was pretty amazing, I was moving my neck within 10 minutes!!! (I have been resting it since). I know this is going to sound like the ultimate oxymoron, but for as bad as I feel, I am feeling better.
I have so much I would like to share, but my energy level and memory is still a little foggy. I think I need to listen to my body more and just do the resting thing for a few days. I will try and get it motivated as soon as I can.
Just thought I would do a little up date. I have an orthopedic appointment on Weds. I am pretty sure he will release me as I have finished my physical therapy and my knee is showing improvement. It's weird, but I think I feel a lot of "activity" in my gut ... my belly button is wicked itchy (this is where they accessed this time) that would indicate healing. LOL .... amazingly, there has been no bruising on the skin surface ... the whole process just continues to blow me away with the capabilities of healing.
Wishing everyone a peaceful night.
Sleep well and sweet dreams.
Peace and Light
et
Saturday, March 24, 2012
3 Days post-treatment #2
Happy Spring to Everyone!!!
... and with the change of season, there has to be a change in me. I am 3 days post 2nd treatment .... done right here in CA!!!! Read my previous to post to see how this has occurred. There have been multiple, positive advances since my first treatment 13 months ago. 13 .... I can't believe the crap that life has thrown at us in those 13 months alone..... wow.... I'm just sayin'.
The past week was just SO much, that it is going to have to be a major part of my book. The happenings, encounters, topics-of-discussion, the people we met from around the world, and the care I got, was beyond anything I can put here in print. But, trust me .... I will reveal all in the book. Oh, it isn't a "tell all" like that. I will change some names to protect the innocent..... LOL. First, it was storming the morning we left (3/18) and since the accident I am beyond jumpy when it comes to travel. I can't help it ... I just twitch out. As the week came to an end, St. Patrick's Day on the horizon, HT wanting to go out and bail ship again, the tension came to a head. I told her if she couldn't handle being in close proximity with me for more than a day that she should stay behind and I would either go alone, or ask one of the girls to accompany me. I am guessing, had it gone that way, I would have had to do it alone. In any event, it was a little tense at the start, but .... WOW .... the following 3 days are a turning point ... a turning point for both of us, and the only real issue was that we hadn't had the opportunity to actually confront each other on what was happening and how we can't run from it, as it is the proverbial "elephant in the room."
... and so the week began. We arrived in CA about 8 pm on Sunday night. We were both exhausted ... we had talked, laughed, got a little pissed, sentimental, down right angry .... let it all out .... and decided, it was time to let it all go. That night in the hotel we continued our discussion after running up the block to grab a few groceries from the neighborhood Trader Joe's .... LOL ... HT was in love at first encounter .... with CA!! (I'm thinking I am not going to get all I want in this post as I am .... 3 days post and still a wee bit cloudy in the head.) We ate and went for a ride around the city to see where we were at. All good..... and off to sleep we went.
Ok ... well ... I will cut through the dirty details of how I feel currently. The experience was UNBELIEVABLE"! I had my neck injected directly as well in the same manner in which the suggested recommended occipital nerve blocks would have worked ... without side effects of steroids, and within 10 minutes.... YES, 10 minutes, I was rolling my head!!! I haven't been able to do that in 3 months!!! Just as the doctor came around the corner and I said "look at this!!", he responded with "I just injected it." I was then advised by several that perhaps I should give it a rest and allow the little buggers to get to work. Since that time, my headache (you know, that one I have had since the accident) is down to like a 2 from a 5-6/10. That was really pulling me down, the constant headache. OK, 1 plus, that night, I got up at 12:15 feeling a little fuzzy, prick .... 55 .... oh yeah!! #2 - signs coming back earlier rather than too late, and last for tonight, as I am sort of drifting in and out, is the numbers .... check some of these out ... 113,109,135,123,65,134,167,83,161, 51 (caught with symptoms),187, 128, 92 .... all commercial worthy in my opinion. I will continue to map for a drop time in insulin intake. Something some don't get is ... I am not going to, nor have I ever, really, beat myself up over a high that I know I did everything in my power to avoid ... you know ... sometimes, jugglers just can't keep all their balls in the air.
On that note, I will try to post again tomorrow, as the amazing happenings of this treatment trip are far from even being touched yet. It was eye opening in SO very many ways for both HT and myself. To the point that on Tuesday after sleeping in, and then going to hotel early for orientation .... HT was out cold by 6:30 due to the overwhelming stimulation that was in the air.
To all those who may be hesitant about this process and its capabilities .... trust me, this stuff can't be faked!!! This was just proof to me that I made the best choice the first time around going with Stem Genex and it's team, because I was treated like a person, not a number, not a dollar sign, and it was every step of the way. I will post again tomorrow.
Have a good night, be good to yourself, be good to each other!!!
Peace and Light
et
... and with the change of season, there has to be a change in me. I am 3 days post 2nd treatment .... done right here in CA!!!! Read my previous to post to see how this has occurred. There have been multiple, positive advances since my first treatment 13 months ago. 13 .... I can't believe the crap that life has thrown at us in those 13 months alone..... wow.... I'm just sayin'.
The past week was just SO much, that it is going to have to be a major part of my book. The happenings, encounters, topics-of-discussion, the people we met from around the world, and the care I got, was beyond anything I can put here in print. But, trust me .... I will reveal all in the book. Oh, it isn't a "tell all" like that. I will change some names to protect the innocent..... LOL. First, it was storming the morning we left (3/18) and since the accident I am beyond jumpy when it comes to travel. I can't help it ... I just twitch out. As the week came to an end, St. Patrick's Day on the horizon, HT wanting to go out and bail ship again, the tension came to a head. I told her if she couldn't handle being in close proximity with me for more than a day that she should stay behind and I would either go alone, or ask one of the girls to accompany me. I am guessing, had it gone that way, I would have had to do it alone. In any event, it was a little tense at the start, but .... WOW .... the following 3 days are a turning point ... a turning point for both of us, and the only real issue was that we hadn't had the opportunity to actually confront each other on what was happening and how we can't run from it, as it is the proverbial "elephant in the room."
... and so the week began. We arrived in CA about 8 pm on Sunday night. We were both exhausted ... we had talked, laughed, got a little pissed, sentimental, down right angry .... let it all out .... and decided, it was time to let it all go. That night in the hotel we continued our discussion after running up the block to grab a few groceries from the neighborhood Trader Joe's .... LOL ... HT was in love at first encounter .... with CA!! (I'm thinking I am not going to get all I want in this post as I am .... 3 days post and still a wee bit cloudy in the head.) We ate and went for a ride around the city to see where we were at. All good..... and off to sleep we went.
Ok ... well ... I will cut through the dirty details of how I feel currently. The experience was UNBELIEVABLE"! I had my neck injected directly as well in the same manner in which the suggested recommended occipital nerve blocks would have worked ... without side effects of steroids, and within 10 minutes.... YES, 10 minutes, I was rolling my head!!! I haven't been able to do that in 3 months!!! Just as the doctor came around the corner and I said "look at this!!", he responded with "I just injected it." I was then advised by several that perhaps I should give it a rest and allow the little buggers to get to work. Since that time, my headache (you know, that one I have had since the accident) is down to like a 2 from a 5-6/10. That was really pulling me down, the constant headache. OK, 1 plus, that night, I got up at 12:15 feeling a little fuzzy, prick .... 55 .... oh yeah!! #2 - signs coming back earlier rather than too late, and last for tonight, as I am sort of drifting in and out, is the numbers .... check some of these out ... 113,109,135,123,65,134,167,83,161, 51 (caught with symptoms),187, 128, 92 .... all commercial worthy in my opinion. I will continue to map for a drop time in insulin intake. Something some don't get is ... I am not going to, nor have I ever, really, beat myself up over a high that I know I did everything in my power to avoid ... you know ... sometimes, jugglers just can't keep all their balls in the air.
On that note, I will try to post again tomorrow, as the amazing happenings of this treatment trip are far from even being touched yet. It was eye opening in SO very many ways for both HT and myself. To the point that on Tuesday after sleeping in, and then going to hotel early for orientation .... HT was out cold by 6:30 due to the overwhelming stimulation that was in the air.
To all those who may be hesitant about this process and its capabilities .... trust me, this stuff can't be faked!!! This was just proof to me that I made the best choice the first time around going with Stem Genex and it's team, because I was treated like a person, not a number, not a dollar sign, and it was every step of the way. I will post again tomorrow.
Have a good night, be good to yourself, be good to each other!!!
Peace and Light
et
FDA Rulings
Hello my faithful followers!!!
http://www.lef.org/magazine/mag2011/jan2011_Potential-Arthritis-Treatment-Advance-Blocked-by-FDA_01.htm
Just a good read, but I forgot to post it ..... duh ... welcome to my world. :)~
Peace and Light
et
PS: Hoping it will tie in with my next post.
http://www.lef.org/magazine/mag2011/jan2011_Potential-Arthritis-Treatment-Advance-Blocked-by-FDA_01.htm
Just a good read, but I forgot to post it ..... duh ... welcome to my world. :)~
Peace and Light
et
PS: Hoping it will tie in with my next post.
Saturday, March 17, 2012
And the preparation begins ...
I hope everyone had the luck of the Irish with them today ... and for another year. (To be honest, I'm not sure what the hell that means seeing as I am from Irish decent, my luck sucks .... is that Irish...?? :)~
Peace and Light
et
Get Ready ...
Good Morning and a Happy St. Patty's Day to everyone!!!
As many of you know, I was involved in a head-on collision 3 days after my daughter graduated in December. My recovery, i.e., head injury, has not been in a timely manner for me. I am frustrated with the issues I am being forced to face, deal with, re-learn, adjust, allow to let go ... not sure what I am trying to say exactly, but .... I have been placed on "leave without pay status at work" .... adds to the stress levels, my focus, concentration, "hostility" as some would describe it seems at times to be out of my control and I have no choice but to give in to it. Needless to say, the stress levels in my household have been high in the past few months. Given the happenings of the past year alone, I'm thinking this past few months is a good 3-4 chapters in my book, which I have been unable to work on these days. I have a plethora of notes all over the place ... I'm not thinking they are going to come to light when I look at them again, but I can continue to HOPE!!!!
I have not done much posting other than articles since the accident (or at least that is how it feels to me). I feel like I am in some sort of time warp. I can't remember what I did 5 minutes ago, never mind what has transpired in the past 3 months. I can look at notes, doc reports, etc and recall some things, but I am not even remotely close to the person I was on December 10th, and then on December 13th, my life seemed to change .... drastically. I am having a difficult time, and my daughter is having a VERY difficult time dealing with all that has transpired...... and she LIKES scary stuff. I need some sort of change, I need to push forward (I'm so tired) as I want my old personality back. This head crap is hard to describe .... I wish I could be more clear.
So ... tomorrow ... having done all the things various doctors have done and/or suggested, my daughter and I will be heading to California in the morning so that I may undergo the adult stem cell treatment again on Weds. I am very excited about this process .... yet, I have reservation about the travel ... I am still at a "jumpy" status when it comes to driving with stupidity abound and all around (they are calling this a symptoms of PTSD). My blood sugars have been slightly erratic since the accident, but commercial worthy overall.... LOL.... I have had several dangerous lows, being told my brain is healing and this could play a role. I think I may have wandered there, ok, so all the docs have suggested my undergoing the stem cell treatment again, ALL, having seen drastic positive changes in me after my first treatment back in February of 2011. So ... having done what they recommended up to this point and having no real advancement of status change, I will be working with the Stem Genex Team again in the next week. This is so promising and given the advancement I have seen in the science in just the year since my first treatment ..... I have BIG HOPE!!! I am very much looking forward to seeing Ms. Rita and working with the team to better not only my health, but push the progress forward ... (yes, you all know how excited I get in the geeky mode of science and medicine) it is an element in which I take great interest and excitement. I looked into the hyperbarric treatment prior to undergoing treatment this time, however, it is costly, and not covered by my insurance for my current status ... (I would have had to rung my bell a whole lot louder .... ). An area being studied in TBI patients, as well as other diseases. I will just go with the changes made since last treatment, which in my opinion are all positive improvements. I ... Hope, Pray, and Believe!!!
I will try and make a couple of posts next week while in CA ... my daughter, HT and I are going to use this time as a sort of "out with the old, in with the new" sort of mentality. We must ... this is definitely one of those life changing events in which I must dig deep within myself, altered as I feel, and find the strength and hope and faith to go forward. I still feel that if I leave nothing else behind, I will have left people, even if only one, with a sense of inspiration and determination to go on .... make change, encourage change, push for what is right, and make a difference. I have seen so much progress over the years thinking back to when I was first diagnosed .... I didn't really care back then ... I felt doomed in a sense having been told of all the restrictions, complications being "inevitable" and expectancy of life. Well, there have been many challenges, and when you add the juggling of life and it's happenings, along with the juggling required in managing my disease ..... I don't think I have done so bad in spite of some saying that in recent months "she's a train wreck!" I still have tremendous support in my friends and distant family .... but this is something I need to do for me. If nothing else, I can be the vessel for future progress in this area of science and medicine. Nothing would make me happier than to have given of myself to help the future of kids and Type 1, and to somehow have been an example of someone that can get through, even the darkest of times and come out shining!!
So as I go about my day today, packing and preparing to travel and undergo change .... I wish all of you a joyful, peaceful, and happy St. Patrick's Day ... be safe, be good to each other .... be good to yourself!!!
In Peace and Light
et
As many of you know, I was involved in a head-on collision 3 days after my daughter graduated in December. My recovery, i.e., head injury, has not been in a timely manner for me. I am frustrated with the issues I am being forced to face, deal with, re-learn, adjust, allow to let go ... not sure what I am trying to say exactly, but .... I have been placed on "leave without pay status at work" .... adds to the stress levels, my focus, concentration, "hostility" as some would describe it seems at times to be out of my control and I have no choice but to give in to it. Needless to say, the stress levels in my household have been high in the past few months. Given the happenings of the past year alone, I'm thinking this past few months is a good 3-4 chapters in my book, which I have been unable to work on these days. I have a plethora of notes all over the place ... I'm not thinking they are going to come to light when I look at them again, but I can continue to HOPE!!!!
I have not done much posting other than articles since the accident (or at least that is how it feels to me). I feel like I am in some sort of time warp. I can't remember what I did 5 minutes ago, never mind what has transpired in the past 3 months. I can look at notes, doc reports, etc and recall some things, but I am not even remotely close to the person I was on December 10th, and then on December 13th, my life seemed to change .... drastically. I am having a difficult time, and my daughter is having a VERY difficult time dealing with all that has transpired...... and she LIKES scary stuff. I need some sort of change, I need to push forward (I'm so tired) as I want my old personality back. This head crap is hard to describe .... I wish I could be more clear.
So ... tomorrow ... having done all the things various doctors have done and/or suggested, my daughter and I will be heading to California in the morning so that I may undergo the adult stem cell treatment again on Weds. I am very excited about this process .... yet, I have reservation about the travel ... I am still at a "jumpy" status when it comes to driving with stupidity abound and all around (they are calling this a symptoms of PTSD). My blood sugars have been slightly erratic since the accident, but commercial worthy overall.... LOL.... I have had several dangerous lows, being told my brain is healing and this could play a role. I think I may have wandered there, ok, so all the docs have suggested my undergoing the stem cell treatment again, ALL, having seen drastic positive changes in me after my first treatment back in February of 2011. So ... having done what they recommended up to this point and having no real advancement of status change, I will be working with the Stem Genex Team again in the next week. This is so promising and given the advancement I have seen in the science in just the year since my first treatment ..... I have BIG HOPE!!! I am very much looking forward to seeing Ms. Rita and working with the team to better not only my health, but push the progress forward ... (yes, you all know how excited I get in the geeky mode of science and medicine) it is an element in which I take great interest and excitement. I looked into the hyperbarric treatment prior to undergoing treatment this time, however, it is costly, and not covered by my insurance for my current status ... (I would have had to rung my bell a whole lot louder .... ). An area being studied in TBI patients, as well as other diseases. I will just go with the changes made since last treatment, which in my opinion are all positive improvements. I ... Hope, Pray, and Believe!!!
I will try and make a couple of posts next week while in CA ... my daughter, HT and I are going to use this time as a sort of "out with the old, in with the new" sort of mentality. We must ... this is definitely one of those life changing events in which I must dig deep within myself, altered as I feel, and find the strength and hope and faith to go forward. I still feel that if I leave nothing else behind, I will have left people, even if only one, with a sense of inspiration and determination to go on .... make change, encourage change, push for what is right, and make a difference. I have seen so much progress over the years thinking back to when I was first diagnosed .... I didn't really care back then ... I felt doomed in a sense having been told of all the restrictions, complications being "inevitable" and expectancy of life. Well, there have been many challenges, and when you add the juggling of life and it's happenings, along with the juggling required in managing my disease ..... I don't think I have done so bad in spite of some saying that in recent months "she's a train wreck!" I still have tremendous support in my friends and distant family .... but this is something I need to do for me. If nothing else, I can be the vessel for future progress in this area of science and medicine. Nothing would make me happier than to have given of myself to help the future of kids and Type 1, and to somehow have been an example of someone that can get through, even the darkest of times and come out shining!!
So as I go about my day today, packing and preparing to travel and undergo change .... I wish all of you a joyful, peaceful, and happy St. Patrick's Day ... be safe, be good to each other .... be good to yourself!!!
In Peace and Light
et
Wednesday, March 14, 2012
An Amazing Legacy ...
... and on so many fronts.
http://www.utsandiego.com/news/2012/mar/14/robert-p-krause-90-engineer-first-manned-space-fli/
Truly an inspiring man, may he do great things in the next life as well!!
Peace and Light
et
http://www.utsandiego.com/news/2012/mar/14/robert-p-krause-90-engineer-first-manned-space-fli/
Truly an inspiring man, may he do great things in the next life as well!!
Peace and Light
et
Monday, March 5, 2012
you have to check this out!!!
Can you all hear my excitement with this sort of publicity regarding Adult (adipose) stem cell treatments. ..??
This is right up there with the new tissue they grew on a soldier's leg. We have the capability to heal ourselves with a little help from our passionate doctors and scientists ... and those other than the "Regular Joe's" like myself, those with the power and promise, knowledge and know-how need to bring this to the forefront with voices people recognize. When it comes right down to it, we are ALL human beings and we are all suseptable to having a devasting health issue. Let's use our power and voices together to make some noise.
This sort of press gets me all stoked up .... hehehe ... and right now, I need all the stokin' I can get!!!
Enjoy the read!!!
http://www.lef.org/magazine/mag2011/dec2011_Suzanne-Somers-Uses-Stem-Cell-Therapy-Breast-Rejuvenation_01.htm
Here, you will see yet another disease we are struggling to cure and ease of treatments.
Have a wonderful evening.
Peace and Light
et
This is right up there with the new tissue they grew on a soldier's leg. We have the capability to heal ourselves with a little help from our passionate doctors and scientists ... and those other than the "Regular Joe's" like myself, those with the power and promise, knowledge and know-how need to bring this to the forefront with voices people recognize. When it comes right down to it, we are ALL human beings and we are all suseptable to having a devasting health issue. Let's use our power and voices together to make some noise.
This sort of press gets me all stoked up .... hehehe ... and right now, I need all the stokin' I can get!!!
Enjoy the read!!!
http://www.lef.org/magazine/mag2011/dec2011_Suzanne-Somers-Uses-Stem-Cell-Therapy-Breast-Rejuvenation_01.htm
Here, you will see yet another disease we are struggling to cure and ease of treatments.
Have a wonderful evening.
Peace and Light
et
This is progress ....
unitl politics gets involved again .... but .... for now, I am going to be promising as to the outcome for US citizens and any other country working to cure these devastating chronic diseases. My opinion remains that if the cells come from us, how can it be wrong?? We have this ability to heal ourselves ... with a little help from dedicated doctors and scientists.
Enjoy the read!!
http://www.medpagetoday.com/Cardiology/Atherosclerosis/31476
Have a great day!!
Peace and Light
et
Enjoy the read!!
http://www.medpagetoday.com/Cardiology/Atherosclerosis/31476
Have a great day!!
Peace and Light
et
Saturday, March 3, 2012
Very Cool Read ....
.... but .... totally gross ... even for me. :)
http://bodyodd.msnbc.msn.com/_news/2012/03/01/10541318-this-is-the-only-time-bad-breath-is-a-good-thing
Enjoy the rest of the weekend.
Peace and Light
et
http://bodyodd.msnbc.msn.com/_news/2012/03/01/10541318-this-is-the-only-time-bad-breath-is-a-good-thing
Enjoy the rest of the weekend.
Peace and Light
et
Friday, March 2, 2012
How to handle life's changes
Happy Friday my faithful followers!!!
I am ... well .... still a little empty headed. I have been out of work all week, which has me stressed out. All the docs involved, and the PT folks all seem to have the same conclusion. It is going to take time, neurologist says 6 months to a year, PT folks cut me loose on Weds stating that they have done all they can do for me physically, and yes, I am looking fairly fit for an old broad of 48. However, I would really like to cut the fog from my brain and be more focused and clear. That is what I am finding the MOST frustrating right now. I can cope ... although I am still distressed about the right sided weakness, and what is causing it. I underwent a nerve conduction test/EMG this past Tuesday, that was not my idea of pleasant, and for some reason I had after effects which I don't remember having when I had one done prior in the 90's. My body seemed to twitch for hours after the test, and my right side was even more weak than when we started the exam. Perhaps I will get some news on this today when I pick up paperwork from my PCP.
On a more positive note, several of my doctors made reference to the adult stem cell procedure in which I underwent back in February and could I do that again. Well .... knowing that they are cautious about promoting things that are NOT FDA approved, I took this as a viable dent in the thought process. All of them, from neurologist, orthopedic doc, endocrinologist, and my PCP .... ALL of them having seen the positive response and benefits I had after just one treatment. That .... on top of the year of stressful situations in which life handed me, I certainly have put these little fighter cells to the test over the past 12 months. So ... with that being said, and with the generosity of so many who think of me as "special", I am scheduled to undergo the stem cell treatment again on March 22nd!!!! ..... and I cannot begin to tell you all how much I am praying that along with improving my diabetes status, which has been remarkably stable, until the accident, that this will help my brain heal .... faster than 6-12 months!!! So I am doing my best to practice my newly revamped breathing techniques to cut the stress and anxiety, and to cleanse my body of all those bad drugs that were prescribed early on after the accident, most of which, sad to say, never touched any of my pain. It has been 2-3 weeks now since I have taken anything for anxiety .... and I will tell you that to keep breathing in some of these situations, like forcing myself to drive, can be a challenge at best as the stupid drivers just continues to baffle me!!!
I also lost a very special person this week, my cousin, Greg, passed away suddenly on Weds. and I was just shocked and heartbroken when I received this news. One of those family relationships that was a blessing in that we both went our separate ways, across the miles, across the country, yet, with random phone calls over the years, never skipping a beat, always picking up right where we left off with our humor and outlook on the world..... and being able to laugh!!! That, as many of you know, is something I truly cherish and can't always be accomplished as some people are like "out of sight, out of mind." Well, when life gets so busy that we suddenly are forced to think about those left behind .... it weighs on my heart to have lost another person, of which, I guess I have had more than most, really gets the underlying meanings of life even through the trials and tribulations and wasn't afraid to share that with me. Because we all have faults, yet, we also have the ability to reach out, to comfort, to share .... to love, and to laugh.
On that note, I would like to wish everyone a peaceful and meaningful weekend.
Take care of yourself, take care of the human side, share it when you feel it, say it when you have too.
James Taylor says in best in his tune, "Shower the people you love with love" "Show them the way that you feel." James took his struggles and helped me with his music ... all of which I find comforting and calming in times of trouble.
Peace and Light
et
I am ... well .... still a little empty headed. I have been out of work all week, which has me stressed out. All the docs involved, and the PT folks all seem to have the same conclusion. It is going to take time, neurologist says 6 months to a year, PT folks cut me loose on Weds stating that they have done all they can do for me physically, and yes, I am looking fairly fit for an old broad of 48. However, I would really like to cut the fog from my brain and be more focused and clear. That is what I am finding the MOST frustrating right now. I can cope ... although I am still distressed about the right sided weakness, and what is causing it. I underwent a nerve conduction test/EMG this past Tuesday, that was not my idea of pleasant, and for some reason I had after effects which I don't remember having when I had one done prior in the 90's. My body seemed to twitch for hours after the test, and my right side was even more weak than when we started the exam. Perhaps I will get some news on this today when I pick up paperwork from my PCP.
On a more positive note, several of my doctors made reference to the adult stem cell procedure in which I underwent back in February and could I do that again. Well .... knowing that they are cautious about promoting things that are NOT FDA approved, I took this as a viable dent in the thought process. All of them, from neurologist, orthopedic doc, endocrinologist, and my PCP .... ALL of them having seen the positive response and benefits I had after just one treatment. That .... on top of the year of stressful situations in which life handed me, I certainly have put these little fighter cells to the test over the past 12 months. So ... with that being said, and with the generosity of so many who think of me as "special", I am scheduled to undergo the stem cell treatment again on March 22nd!!!! ..... and I cannot begin to tell you all how much I am praying that along with improving my diabetes status, which has been remarkably stable, until the accident, that this will help my brain heal .... faster than 6-12 months!!! So I am doing my best to practice my newly revamped breathing techniques to cut the stress and anxiety, and to cleanse my body of all those bad drugs that were prescribed early on after the accident, most of which, sad to say, never touched any of my pain. It has been 2-3 weeks now since I have taken anything for anxiety .... and I will tell you that to keep breathing in some of these situations, like forcing myself to drive, can be a challenge at best as the stupid drivers just continues to baffle me!!!
I also lost a very special person this week, my cousin, Greg, passed away suddenly on Weds. and I was just shocked and heartbroken when I received this news. One of those family relationships that was a blessing in that we both went our separate ways, across the miles, across the country, yet, with random phone calls over the years, never skipping a beat, always picking up right where we left off with our humor and outlook on the world..... and being able to laugh!!! That, as many of you know, is something I truly cherish and can't always be accomplished as some people are like "out of sight, out of mind." Well, when life gets so busy that we suddenly are forced to think about those left behind .... it weighs on my heart to have lost another person, of which, I guess I have had more than most, really gets the underlying meanings of life even through the trials and tribulations and wasn't afraid to share that with me. Because we all have faults, yet, we also have the ability to reach out, to comfort, to share .... to love, and to laugh.
On that note, I would like to wish everyone a peaceful and meaningful weekend.
Take care of yourself, take care of the human side, share it when you feel it, say it when you have too.
James Taylor says in best in his tune, "Shower the people you love with love" "Show them the way that you feel." James took his struggles and helped me with his music ... all of which I find comforting and calming in times of trouble.
Peace and Light
et
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