Negative, Depressing, Small-minded thinking ...

Good Day Everyone!!!

It seems as it has been a while since my last post. Life has had me busy. Work has required OT which really takes its toll on me. The last two weeks has had me in close to 60 hours/week, and that doesn't include the work I do from home for a private neuropsychologist. Which means that this weekend, my house looks like a tornado has blown through and I just don't have the energy to wipe it all out. Oh, where, oh where did my life go wrong??? I would love to have a maid, yard boy, and even a pool boy .... lol ... but need that pool first!!! I certainly would feel better on a regular basis if I had a body of water to work in.

Ok, well enough of that whining!! Sleep has not been so great this past week. Not because I don't feel well, but because it is monsoon season here in Arizona and my dog has become a rather neurotic, paranoid baby this season where thunder is concerned. As I type, she is across my lap!!! .... and has been in this sort of position since yesterday afternoon. as storms have been off and on, all 70 lbs of her thinking she is a lap dog!!! When HT gets home from work in just a bit, I am hoping to get some stuff done as the dog can go lay with her for "body contact security!"

I have a couple of articles to post here. I am so happy with the progress the folks at Stem Genex are making in bringing this, in my opinion, miracle, to the forefront on so many levels. Check out the latest release from them on MS patients!!! The benefits of this treatment are so much more than anyone could begin to explain. It just reaffirms my belief in what is possible if the politics would just back off here in the US.

Also, the second printing is that of a question I posed on the Diabetes Research Institutes Facebook page last week. It too, has turned into a very informative piece on where the research is in the US, and how they want to tackle the issue. I am happy to say that I support this institute, however, I am not fully convinced that the direction they are stating here in the article is what I would offer my body up for "guinea pig" status. Some say I have been a "guinea pig" in a sense having undergone my stem cell treatment. Perhaps, and I would do it again, even allowing a more in depth sort of administration in the future for just such a response. However, I continue to do my research, reading, and understanding the risks vs. benefits of this venture. I am still a very firm believer that at this particular phase of my life, this is my mission!! To help move the science along so that the next generation of Type I's, and any other disease that can benefit from stem cell treatments, not to mention what it does just to keep us in a better form given what age does to us on the norm, i.e., my skin, and what my daughter refers to as my "lack of hail damage" since my treatment .... LOL..... this sort of irritates her at the tender age of 22.

So ... with that small update on the fact that I am still alive, still working more than I want, still caring for my father, and trying to keep up in the area in which I find true satisfaction, "stemmies," and continuing to read and pose questions to those in positions of research and hoping to open the minds of those such as the person who responded to the DRI question as BS!!! This person, in my opinion has NEVER experienced living with Type I, or any other disease in which lives quality is  a daily challenged. As I stated in my response to this person, I would trade places with you any time to give you 40 years of what you refer to as "don't exist" BS. It is the mind set of people like this that send me into a frame of mind that I can't believe some people feel that it is ok for THEM to play, judge and jury. I am all for freedom of speech, but if you don't understand a topic, learn all you can about it before you start throwing rocks. There are millions of people out there waiting on this sort of science/medicine/technology to save their own, or a loved ones life. How would you feel if we decided we didn't care or believe in what could save yours?? As one of my favorite songs indicates in lyrics "Walk a Mile in my shoes!!"

https://www.facebook.com/notes/diabetes-research-institute/dri-answers-stem-cell-question-part-1/10150729267015052

(The above link may have to have a Facebook account, if you are not on FB, try going to the DRI website directly, I was told it is posted on the website as well with Part 2 to be posted on Thursday 8/4)

http://investorstemcell.com/stem-cell-research/stemgenex%E2%84%A2-says-treatment-for-multiple-sclerosis-lies-within-the-patient/

The above link is a recent release from Stem Genex. They are expanding in such a positive way and hopefully will have some major University connections to brag about soon. Again, I want to be the "guinea pig" here ... LOL ....I have a special reason for wanting to do this, and my daughter and I are believers that I can make a difference in the thinking of those who "don't believe."


I hope you enjoy today's reads and have a wonderful week!!!

Thanks for following!!!
Peace and Light,
et

Today's Stem Cell issues for me

Hi All!!

I hope this post finds everyone doing well, and making the best of every day!!! I try... even when I am not feeling well. I have a couple of topics I want to hit on over the next week or so that have come up in multiple conversations I have had in just this past week.

Topics will include: What I feel is the US's "propaganda" against allowing stem cells to be used freely. I realize that there is a lot of areas in which they still need some research. However, if we continue to use the term "embryonic" which is a term in which makes feathers fly, and not focus on all the wonderful progress that has been made with the cells we hold in our very own bodies, this will never happen and the pharmaceutical companies will continue to suck us dry monetarily, as well as kill us off with all the unproven side effects that come with so many of these drugs.
HIPPA rules - I choose to share my health information on a certain level, of my own free will. This is my choice as there are so many topics that come about when living with a chronic, potentially fatal disease that never gets talked about, even with our doctors. So why not...??? People need to know that they are not alone, that others suffer with some of the same issues they do. If I can help, in some sort of humorous manner, I am more than willing to put myself out there. I too, for many years, thought I was alone in some of the long-term side effects I was/am suffering with. I also have been thinking about "destiny" the last couple of weeks. I believe that God has/had a much bigger plan for me when I was rejected from the Islet cell transplant trial, and for so many levels.

There was another topic ... LOL ... but I lost track and forgot what it was at the moment. My dog is getting pushy to play. When the mama (me) gets home, it's time to play for a while and me sitting here isn't getting that done.

So .... let's focus on autologous stem cells and what they can do for all of us on SO many levels I can't even begin to tell you.

On my own health front, I am still having issues with the swelling from the lymph node and I am not going to allow another doctor to jump in this pot currently based on "menopause" which I do not believe this has any role. I still await an approval from the insurance company on the PET scan. I am wondering how long I should wait before I contact someone in regard to "negligence"? In the meantime, I have a life to live, and I want to make the best of each day, chipping away at all the things I need to get done, and the things I still want to accomplishment.

Ok ... well ... wishing everyone a wonderful evening!!
Off to play some Frisbee with my buddy.

Peace, Light and Serenity
et

This is Amazing

This is AMAZING stuff!!
One step closer to amazing cures.

This article appeared in this mornings Arizona Republic newspaper on the recent cure of a cancerous trachea...... with stem cells from the patients own body. My kind of enthusiasm and passion.


http://www.azcentral.com/arizonarepublic/news/articles/2011/07/08/20110708windpipe0708.html


FYI - I was diagnosed at the Children's Hospital in Boston back in October 1972.

Have a wonderful weekend!!
Peace, Light, and Serenity!!
et

Food for Thought

http://www.msnbc.msn.com/id/43631577/ns/health-aging/

The above article, is in part, some of the benefits I did not expect to experience with my treatment, all falling into this science.
No, I have no desire to live to be 125-150 years old!!! But ... I do have a dream to live a few more, 10-20 years, with a whole lot less deterioration and complications of my Type I diabetes. So, in my opinion, this science, modality, medicine, call it whatever you want (as this is what the US is doing anyway in regard to the application of such) it is all in the language.  If we can get past the political, bureaucratic language that seems to go hand-in-hand in the US, this sort of medicine can come into the forefront .... FOR EVERYONE!!!

Food for thought on this 235th Independence Day!!!

Happy 4th!!!

Peace, Light and Serenity!!
et

A question to my readers

I seem to have a lot of foreign readers (thank you), and my question is particularly to those reading from Russia. Is the science/medical use of stem cells happening in Russia? Can anyone tell me how and where this is being done?

Thanks in advance for any info sent my way!!

Peace, Light and Serenity!
et

In response to the question ...

Is Stem Genex reputable?

In looking through the stats that go along with my blog here, I noticed that there were  inquiries through search engines, in which the question was asked as to if  Stem Genex was reputable...??

My response to this question .... Absolutely, without a doubt!!!

I can honestly tell you, I spent a good 6-7 months weeding through a good many companies, doctors, etc. that claimed to do the impossible in regard to stem cells, and the costs that went along with these procedures. I made many phone calls, asked a lot of questions, my gut helped in several of these encounters.  To keep my mind in check, if it doesn't feel right in your gut then  NO, RED FLAG, TOO GOOD TO BE TRUE, etc. should keep anyone researching for a line of defense in their health care on their toes for legit, and reputable. It can be a difficult time, as I know I wanted to get all excited and just go with it, and then after a phone call, it just didn't feel right, and on many of my calls for information to other providers, the cost usually became a huge red flag, as I know the science, and I had a feeling that something just wasn't right with a couple of these "agencies." The promise was WAY too much, and so was the cost of the promise. Stem Genex, a subsidiary of the International Stem Cell Institute, was upfront with me, and very caring, from the very first contact. It was just a good feeling from the start, and it proved true with the planning of my treatment, and the follow up I have received to see how things are progressing.

I went with the International Stem Cell Institutes's, Stem Genex, because of the caring, straight-forward communication given the nature of the treatments, and those looking to have it done and why. I was, as I have stated many times prior, a believer in the science prior to my treatment. I can without any hesitation, tell you all that my experience with this company undergoing the treatment with a patient advocate at my side the entire time, ready and willing to answer any questions, as well as the treatment I received after treatment in follow up conversations. These people, this company, is genuine, built on passion and personal knowledge of the science. I would recommend Stem Genex, without reservation,  to anyone I knew to undergo this treatment for their issues, whatever they may be.

My mother used to tell me the "best form of advertisement was word-of-mouth." My mouth is big, and when something is worth shouting, I try my best to overcome the negative and shout the positives. So for those inquiring via the Internet as to if this is a legitimate company, I would have to say, YES!!! My experience has been nothing short of miraculous.

Enjoy the weekend!!
Peace, Light and Serenity
et

Happy 4th!!

                                                                      
                      HAPPY 4th America!!

Independence .... Please remember all of those who have sacrificed to allow us this privilege. I like to think of it as my ability to "hold my own." It has also been said I have too much of it,

Independence .... something I feel I was raised to believe I have the power to induce. With this power, I have a lot to consider on this, the second Independence Day, as well as my birthday, without my mother. It was 2 years ago this weekend that I dove into finding and applying to take part in a clinical trial to help extend my life. As we all know, I was rejected from this aspect of looking for a cure. That was a devastating blow to me. However, I did not give up, in fact, I believe that although the stem cell treatment in which I underwent in February of this year, is not a cure, YET, it is and has the potential to be the underlying process in which health can be regained. I experienced, in spite of the health issues I have dealt with since February, beginning with the pneumonia, SO many more positives than negatives with the receipt of this treatment. As with anything that takes a long time to deteriorate, one cannot expect it to rejuvenate in one treatment. So ... I will be planning to undergo it again. I also believe, that had I not had the "stemmies," I would, without a doubt, be in a whole lot worse shape, if not dead already.

As I contemplate the undergoing of the treatment again .... I will continue to advocate for people who can benefit from this treatment, and that, to me, is such a wide array of people with a wide array of afflictions. This is our HOPE for future cures.

Also, I am still in chaos as far as my insurance company denying the request to undergo a biopsy and/or the PET scan. So ... we all know what I am contemplating there. I WILL NOT LAY DOWN, for these sorts of establishments. They are calling the shots on MY life, based on their MONETARY INTAKE, and that is the big picture where I sit currently. I will not lay down and die without a fight, I have overcome way too much in my life, health-wise, as well personal situations, to be taken out on bureaucratic BS!!!

With that being said, it is Independence Day .... stand up for what you believe in, and don't forget those who fought and sacrificed the ultimate for us to have that independence. Happy 4th!!