http://www.marketwatch.com/story/international-stem-cell-institute-launches-major-adipose-adult-stem-cell-therapy-program-the-new-frontier-of-medicine-is-your-fat-2010-08-26
(Not sure what I don't do here, but cut and paste the above article in your web browser)
Fundraising is not going as I had hoped. I really can't do this on my own due to my lack of physical energy but with work, home, dad .... sounds like I'm whining doesn't it?
My plan this week is to get a couple of more donation containers out there. I am in process of drafting a letter to the JDRF to see if there is anyway that there may be some sort of grant available? Why ... I ask this question repeatedly with no real answer other than the almight buck .... I find it frustrating and down right discusting given our self-proclaimed "best healthcare in the world" mantra. As I have lived with this my entire life (all of the life I can recall) I will attest that I believe that we are holding back on the people of America.
This treatment will cost $10K currently, with perhaps another treatment needed in 6-12 months .... now ... given that in a years time, lets take last year for instance, I paid out 14K and some change on my medical appointments, supplies, medications, and needed additives such as batteries and tape. Come on people .... it isn't rocket science. Any moron can do the math. I am not a high tech worker, I am not college educated to the point of degree, I work my ass off day in and day out ... for what? basically ... just to stay alive!!! Sort of gives me no real choice in my activities of lesiure does it? Good thing I learned at a very early age, that being rich does not always involve money ... but in times like this, or in hindsight, to help my mother raise us 6 kids when 2 of us in the household suffered from a chronic disease. Yes, my father hasn't worked in almost 46/47 years. I can tell you, his attitude made me want to be VERY different. I could sit back, do pretty much nothing, allow the government to fund me, and just sit back and wait, wait to cost the American people a shitload of $$. I don't like that attitude and never have. I try and have tried, very hard in my life to keep my disease almost secret. The less people who knew, the less I had to explain, the more chance I had of being treated like others. As a kid, nothing pissed me off more than to have someone make a nasty toned comment when I was spotted taking a cookie, or having ice cream, etc. BITE ME ... most not having a clue what I dealt with or how the whole diet swap worked, etc. Yet .... "she shouldn't be eating that", "she can't have any sugar" .... oh my god ... look at any ingrediant lable folks, do you have any idea how many forms of sugar there are? how they effect your body or metabolism? Until you do, please don't lecture me on how to compensate to keep my weight stable, my blood sugars in a safe level, or how to get them back up in a fast manner. I know, and yet, even I when faced with these situations, can draw a complete blank these days. Does anyone have any idea how scarey that can be?? Especially when one is alone, and trying to comprehend the situation at hand.
This adipose treatment has the potential to help me in the way that my drastic blood sugar drops will be diminished or stopped on top of other benefits to my body, such as perhaps easing my gastrointestinal paralysis which poses more problem than anyone who hasn't lived with it could ever imagine. It makes insulin to carb ratio a near impossible juggling act. The longer my condition continues in the manner it has, the more prominent the neuropathy I have in my feet will make those "big shoes" I sometime wear a distant thing of the past. Neuropathic pain is some of the most painful, mind blowing (in more than one aspect) form of pain a person can cope with.
Please read with an open mind. I need this sort of help. I beleive deeply that this is where our future lies, not just for diabetics, but for so many diseases. We NEED this sort of medicine in the US. STOP sending us to other countries to get what should rightfully belong right here, right now!!! The research continues, it is not new, only the benefits of such are being brought to the forefront.
Please help me with continued support and spreading the word. Let me prove that this treatment can work for type I's such as myself. I am willing to be that animal, if it should prove wrong ... well shame on me..... but.... I have deep faith in this science and the potential to make life better for so many. Help me to prove this in a timely manner.
I really don't know what else to say.....??
Thank you for your continued love and support!!
Peace and Light
et
Sunday, September 26, 2010
Wednesday, September 22, 2010
Just touching base ...
It has been a couple of weeks, a lot has happened, days have blended together.
On September 12th a cousin on my mom's side passed away rather suddenly after being diagnosed with a form of leukemia, caught pneumonia and passed in a Boston hospital. He was from the Cleveland area of Ohio. I decided that in my mom's memory, I would attend to represent my side of the family. It was a very nice service, I was able to meet all of his children, now adults and with lives of their own. All very nice kids and truly enjoyed the opportunity to see them and get to know them. I also got to see his brothers, one of which I have not seen since I was maybe 12 years old!!! Needless to say, he stated I hadn't changed a bit ..... hahahahahahha ... I don't know any 12 year-olds with wrinkles .... do you?? It was a wonderful visit in spite of the shitty circumstances.
On this whirlwind trip, I discovered that traveling through time zones is not what it use to be even with my pump. I was only gone 3 days and didn't have time to adjust to the time changes and returned to work the very next day after returning on Sunday. My body was and remains to reap havoc! On my last night in Cleveland, my two cousins took me to dinner. Upon our return to the area near my hotel we stopped at a local Friendly's to do coffee and ice cream. Needless to say, I think I lost that hour somewhere and no one knew what the hell my dazed and confused look was all about. Something I am going to have to explain in my cards out this week. I vaguely remember hugging them both at the entrance to my hotel only to get to my room and discover that my BS had dropped to 42. Not a whole lot of recollection from there other than roaming around, no doubt stuffing my face with whatever I had kicking around the hotel room. YES, I did pack emergency glucose remedies, but was so out of it, that I couldn't function beyond stuffing my face and waiting. I know I roamed around for some time stuffing my duffle bag with my dirty clothes, bagging up my shoes, etc. as I had to leave the hotel by no later than 5:30 the next morning .... I know it was after 10 sometime, but as stated earlier, no clue as to when it started to fall apart. Considering how many times I got totally lost in this 3 day span, I am glad that it didn't occur until my final night, and someone else was driving. Just sort of became a reality check that maybe my traveling anywhere alone should be re-thought, unless of course you can spot my deer in the headlight look for what it is and not a form of stupidity in the true sense of the word.
Anyway .... I have been trying to regain my quality, or at least what I had prior this week and it isn't working out so well for me. Been running high and low off and on all week, being back at work, which is really beginning to take a toll on me with all the BS going on, and lack of direction on the upper tier to delegate in a lack of BS manner. Makes one leery if you know what I mean.
FACT: I am never going to truly be a healthy individual; I have no desire to climb any corporate ladder, never have; don't give a rat's ass about titles, yours, mine or anyone Else's; I will never be rich to the point of contentment; and I most likely will never win the powerball!!! I do, however, hold on to such dreams and desires of keeping a decent job, as I do enjoy the challenge of the laws and regulations involved, I do not want title. We all remain the same people, docs put their pants on one leg at a time just like me. I have the same fears and wishes many others have, although somewhat more realistic perhaps. I wish .... for a reprieve in my up and down status, a calm, a sense of tranquility, for just a time, to enjoy my home, my family, etc. I fear, that my health will become unmanageable, that I will somehow burden my daughter with things she should not have to deal with, with me wanting her to spread her wings, enjoy her career, live life to the absolute fullest and remember me for what I did, and the fun we had making the best of many, many bad situations over the years. For that, to me, is what I have given her .... the strength to overcome in the face of adversity!!! Rock on little girl for you will be the best nurse/NP to hit the continental United States in a long time. Take it as far as you want to go .... and remember that I will always remain with you, if only in spirit.
Attached is this weeks latest update in the local paper. Picture is absolutely horrible, was wicked windy and I of course, look like a direct descendant of "Kramer." LOL ..... but ... PLEASE ... help me reach my goal of extending my life span to a healthy length. Share this article with any one who may know me, know of my fight, know of the struggles that continue to bog me down in my fight to live life as a contributing person in society, or anyone interested in the science of stem cell therapy and what it can do for so many people in this country that suffer from a debilitating disease ..... PLEASE!!! Your thoughts and support mean the world to me. I am open to discuss anything on the topic to the best of knowledge, just contact me.
http://www.chinovalleyreview.com/main.asp?SectionID=74&SubSectionID=114&ArticleID=52585
(if this address doesn't come through here as a link (looks questionable) just cut and paste it into your browser)
In the meantime; peace and light to all!!!!
et
On September 12th a cousin on my mom's side passed away rather suddenly after being diagnosed with a form of leukemia, caught pneumonia and passed in a Boston hospital. He was from the Cleveland area of Ohio. I decided that in my mom's memory, I would attend to represent my side of the family. It was a very nice service, I was able to meet all of his children, now adults and with lives of their own. All very nice kids and truly enjoyed the opportunity to see them and get to know them. I also got to see his brothers, one of which I have not seen since I was maybe 12 years old!!! Needless to say, he stated I hadn't changed a bit ..... hahahahahahha ... I don't know any 12 year-olds with wrinkles .... do you?? It was a wonderful visit in spite of the shitty circumstances.
On this whirlwind trip, I discovered that traveling through time zones is not what it use to be even with my pump. I was only gone 3 days and didn't have time to adjust to the time changes and returned to work the very next day after returning on Sunday. My body was and remains to reap havoc! On my last night in Cleveland, my two cousins took me to dinner. Upon our return to the area near my hotel we stopped at a local Friendly's to do coffee and ice cream. Needless to say, I think I lost that hour somewhere and no one knew what the hell my dazed and confused look was all about. Something I am going to have to explain in my cards out this week. I vaguely remember hugging them both at the entrance to my hotel only to get to my room and discover that my BS had dropped to 42. Not a whole lot of recollection from there other than roaming around, no doubt stuffing my face with whatever I had kicking around the hotel room. YES, I did pack emergency glucose remedies, but was so out of it, that I couldn't function beyond stuffing my face and waiting. I know I roamed around for some time stuffing my duffle bag with my dirty clothes, bagging up my shoes, etc. as I had to leave the hotel by no later than 5:30 the next morning .... I know it was after 10 sometime, but as stated earlier, no clue as to when it started to fall apart. Considering how many times I got totally lost in this 3 day span, I am glad that it didn't occur until my final night, and someone else was driving. Just sort of became a reality check that maybe my traveling anywhere alone should be re-thought, unless of course you can spot my deer in the headlight look for what it is and not a form of stupidity in the true sense of the word.
Anyway .... I have been trying to regain my quality, or at least what I had prior this week and it isn't working out so well for me. Been running high and low off and on all week, being back at work, which is really beginning to take a toll on me with all the BS going on, and lack of direction on the upper tier to delegate in a lack of BS manner. Makes one leery if you know what I mean.
FACT: I am never going to truly be a healthy individual; I have no desire to climb any corporate ladder, never have; don't give a rat's ass about titles, yours, mine or anyone Else's; I will never be rich to the point of contentment; and I most likely will never win the powerball!!! I do, however, hold on to such dreams and desires of keeping a decent job, as I do enjoy the challenge of the laws and regulations involved, I do not want title. We all remain the same people, docs put their pants on one leg at a time just like me. I have the same fears and wishes many others have, although somewhat more realistic perhaps. I wish .... for a reprieve in my up and down status, a calm, a sense of tranquility, for just a time, to enjoy my home, my family, etc. I fear, that my health will become unmanageable, that I will somehow burden my daughter with things she should not have to deal with, with me wanting her to spread her wings, enjoy her career, live life to the absolute fullest and remember me for what I did, and the fun we had making the best of many, many bad situations over the years. For that, to me, is what I have given her .... the strength to overcome in the face of adversity!!! Rock on little girl for you will be the best nurse/NP to hit the continental United States in a long time. Take it as far as you want to go .... and remember that I will always remain with you, if only in spirit.
Attached is this weeks latest update in the local paper. Picture is absolutely horrible, was wicked windy and I of course, look like a direct descendant of "Kramer." LOL ..... but ... PLEASE ... help me reach my goal of extending my life span to a healthy length. Share this article with any one who may know me, know of my fight, know of the struggles that continue to bog me down in my fight to live life as a contributing person in society, or anyone interested in the science of stem cell therapy and what it can do for so many people in this country that suffer from a debilitating disease ..... PLEASE!!! Your thoughts and support mean the world to me. I am open to discuss anything on the topic to the best of knowledge, just contact me.
http://www.chinovalleyreview.com/main.asp?SectionID=74&SubSectionID=114&ArticleID=52585
(if this address doesn't come through here as a link (looks questionable) just cut and paste it into your browser)
In the meantime; peace and light to all!!!!
et
Saturday, September 11, 2010
Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies. ~Erich Fromm
Happy Saturday !!!
I slept until 9:00 AM this morning!! I can't remember the last time I slept past 6, and that is sleeping in. I was awake early, as usual, Hillary went off to work, I vaguely remember her coming in to kiss me good bye. We wished each other a good day, and night, as I will be out helping with an event for the clinic this evening.... and I drifted back off to a hard sleep with my Maggie at my feet. Now I am having a hard time getting "it" motivated to move. As usual, I have a ton to do, and it never truely seems to get accomplished.
I thought I would just drop a quick note in here today. This weeks article in the Chino Valley Review seems to be a hit. As of last night, it was one of the top 5 news articles to be "hit" in the online version. I got an email forwarded to me from a gentleman, apparently from somewhere out of town, very interested in stem cell treatment, and wanting to know where out-of-towners could mail donations. How wonderful is that?!? I am totally amazed that I have been able to touch people I don't know in ways I could have never imagined to new knowledge, advancements, and the life of a diabetic and what is involved over and above the reality of life for those that have no health issues. It is an awesome feeling .... and overwhelming too!!
For those who may want to donate, or those who know of someone else donations can be made to: Arizona State Credit Union #45013118 @ 1335 Gail Gardner Way, Prescott AZ 86305
I spose I should get moving here ... thinking (physically feeling) that my commitments today are going to be tough to get through. I don't like to back out, knowing that on occasion it is required, but for the most part, I do what I say I will do.
Wishing you all a wonderful weekend!!
Continued thanks for the love and support!!
Peace and Light
et
Happy Saturday !!!
I slept until 9:00 AM this morning!! I can't remember the last time I slept past 6, and that is sleeping in. I was awake early, as usual, Hillary went off to work, I vaguely remember her coming in to kiss me good bye. We wished each other a good day, and night, as I will be out helping with an event for the clinic this evening.... and I drifted back off to a hard sleep with my Maggie at my feet. Now I am having a hard time getting "it" motivated to move. As usual, I have a ton to do, and it never truely seems to get accomplished.
I thought I would just drop a quick note in here today. This weeks article in the Chino Valley Review seems to be a hit. As of last night, it was one of the top 5 news articles to be "hit" in the online version. I got an email forwarded to me from a gentleman, apparently from somewhere out of town, very interested in stem cell treatment, and wanting to know where out-of-towners could mail donations. How wonderful is that?!? I am totally amazed that I have been able to touch people I don't know in ways I could have never imagined to new knowledge, advancements, and the life of a diabetic and what is involved over and above the reality of life for those that have no health issues. It is an awesome feeling .... and overwhelming too!!
For those who may want to donate, or those who know of someone else donations can be made to: Arizona State Credit Union #45013118 @ 1335 Gail Gardner Way, Prescott AZ 86305
I spose I should get moving here ... thinking (physically feeling) that my commitments today are going to be tough to get through. I don't like to back out, knowing that on occasion it is required, but for the most part, I do what I say I will do.
Wishing you all a wonderful weekend!!
Continued thanks for the love and support!!
Peace and Light
et
Wednesday, September 8, 2010
Latest status update
Hello My Loyal Followers !!!
Life continues to be chaotic, work is ... well.... ultimate chaos, but I continue to get there day in and day out regardless. My lows continue, only 2 so far this week, 38 and 42. Attached is the link to the article that appears in today's Chino Valley AZ newspaper. It is the most positive thing I have to report thus far. I am sort of hitting road blocks with the fundraisers I had hoped to use. Like the Yankee Candle Co. I got an email yesterday stating that due to the fact I am an "Individual" that they would be unable to assist in my fundraising drive. They only help nonprofit groups with a tax id number for exempt purposes. I was told by my tax accountant that all donations are just that, donations, and therefore considered gifts and need not be claimed as income due to the fact they are going for medical treatment. (I made sure I checked on this as I am in no position to be paying Uncle Sam twice).
Just a quick $$ over view of what I dish out in a year alone. Last year, I paid out $13.5K just to stay in my pump supplies and medications. That doesn't leave a lot leftover when one only makes $16/hour. I have all the expenses others have, mortgage/rent, utilities, food, gas, insurance, etc. There is no "fun money" as my tax woman asked. "What do you do for fun?" Lucky for me I have always been pretty cheaply amused!!! LOL ...... I find joy in simple things, love to people watch, converse in intelligent manner, laugh .... laugh hard, and love to the fullest of my ability. I guess you could say I have a sort of dark side as well. If you don't like me, stay away from me..... that seems pretty simple. I am not out to hurt anyone, am pretty easy going and I love to laugh ... and good thing for me, it is usually at myself.
http://www.chinovalleyreview.com/main.asp?SectionID=74&SubSectionID=114&ArticleID=52528&TM=82931.41
(Cut and paste the above link into your web browser)
Anyway .... enjoy the read .... and please help me to continue to educate and spread the word. My being a "vessel" for the future could prove to be wondrous for so many people!!!
Peace and Light
et
Life continues to be chaotic, work is ... well.... ultimate chaos, but I continue to get there day in and day out regardless. My lows continue, only 2 so far this week, 38 and 42. Attached is the link to the article that appears in today's Chino Valley AZ newspaper. It is the most positive thing I have to report thus far. I am sort of hitting road blocks with the fundraisers I had hoped to use. Like the Yankee Candle Co. I got an email yesterday stating that due to the fact I am an "Individual" that they would be unable to assist in my fundraising drive. They only help nonprofit groups with a tax id number for exempt purposes. I was told by my tax accountant that all donations are just that, donations, and therefore considered gifts and need not be claimed as income due to the fact they are going for medical treatment. (I made sure I checked on this as I am in no position to be paying Uncle Sam twice).
Just a quick $$ over view of what I dish out in a year alone. Last year, I paid out $13.5K just to stay in my pump supplies and medications. That doesn't leave a lot leftover when one only makes $16/hour. I have all the expenses others have, mortgage/rent, utilities, food, gas, insurance, etc. There is no "fun money" as my tax woman asked. "What do you do for fun?" Lucky for me I have always been pretty cheaply amused!!! LOL ...... I find joy in simple things, love to people watch, converse in intelligent manner, laugh .... laugh hard, and love to the fullest of my ability. I guess you could say I have a sort of dark side as well. If you don't like me, stay away from me..... that seems pretty simple. I am not out to hurt anyone, am pretty easy going and I love to laugh ... and good thing for me, it is usually at myself.
http://www.chinovalleyreview.com/main.asp?SectionID=74&SubSectionID=114&ArticleID=52528&TM=82931.41
(Cut and paste the above link into your web browser)
Anyway .... enjoy the read .... and please help me to continue to educate and spread the word. My being a "vessel" for the future could prove to be wondrous for so many people!!!
Peace and Light
et
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