Hi everyone ... I hope this post finds everyone enjoying their Sunday.
It has been a LONG weekend for me. I think it is in part due to the fact I am sort of preoccupied with the multiple situations going on at one time in my life (so what else is new, right?). My blood sugar remains exceptionally stable in spite of this, only a couple of spikes (I am pretty sure this was my own stupidity, not having bolused square-wave after correcting a low), a constant juggling act!!! Sometime I feel like all my balls are in the air, and other times, I feel like someone tossed in some extra balls and I just can't keep them all up....LOL.
I have been typing as I had two tapes do for my side job. I wanted to get some other work done, but it just wasn't in me and therefore I will be using some more of my PTO. One day .... (BIG DREAM HERE) I hope to actually take some time off from all work and go someplace I can totally disappear ... in the sense that I can park my happy ass on a shoreline with my hat, sunglasses and a trashy book for a change ... hehehehe ... sad part is, I'm not really into trashy reading. I need to find my ocean spot and cleanse my soul. (Many of you know I use the ocean like some go to church). The sounds, smells, and calming effect of the tides has a way of giving me some new perspective. You know, that I am only a small part of the big picture and I need to regenerate ... in more ways than one. Anyway .... it has been pretty quiet around here with just me, the dog, and my thoughts for the future. HT works most weekends and is house sitting, so I haven't seen her since Friday morning. I have much hope for my future despite the recent medical hits and uncertainty. I hope to be able to share some "career" changing happenings this week. This offer has made me one happy pup!! It has been some news that is keeping me positive currently as my ability to touch others and make a real difference on the educational front has me on cloud 9. Who would have ever thought this about me ... LOL .... ??? It humbles me to think that so many of you out there, and on my "home front" that there is something special about me ... I am really just doing the best I can with situations that present themselves and want others to have the same opportunities to overcome. I certainly hope that my quest for good health and the methods in which I chose to accomplish this, is making a difference. Don't give up hope on this science and the power of the human spirit.... it is all part of the play book.
Yesterday I purchased 5 good size boxes .... yes, one for each sibling ... my goal is within the next few weeks I am able to get through the crap crawling the walls in my home, pack up what they may want to fight over, donate the rest, and get my home and my life back, or maybe ... just begin to live a life of my own. This has been a very weird transition period as I can't remember when I didn't have someone to take care of. Now I only have myself ... and of course, I will always be the mom to my baby girl, but she is about to venture off on her own and with that, comes my need to sort of disconnect the cord .. LOL ... I will never cut it, and she has stated the same.... LOL.
Ok kids ... I have tasks to complete, and "multi" wasn't part of yesterdays happenings. I think I made a bigger mess than was already here. It is one thing to see all these boxes, it is a completely different scenario to spread what is in the boxes around. I just keep telling myself ... this too shall pass so plug on.
Enjoy the day!!!
Peace and Light
et
Sunday, September 25, 2011
Friday, September 23, 2011
Again ... we take the good with the bad ...
G'Evening web world!!!
Ok .. .going to try and make this a quick, news packed post, like always, flying over more than one. At the end of the post, check out this weeks latest press release regarding celebrity stem cell treatments. So many great things are starting to happen. I SO am looking forward to undergoing the treatment again, if all goes well perhaps sometime in January 2012. I can't tell you how much I am hoping for 2012 to be the ultimate in life changing years. Maybe it's age, I am after all 48 years old now!!!! I think I have more than exceeded that doctor who stated in 1972 that "this kid will be lucky if she sees 21." Thats 27 flipping more than they predicted ..... ahhhhh if I only knew then, what I know now. However, there are many aspects of my life I wouldn't change for a minute, like being the mother of one of the most incredible creatures I have ever encountered .... she amazes me every single day. This is making the "cutting of the cord" a little more difficult lately as she has a young man in her life. I had no idea that this was what happens when a daughter moves on. It rips at my heart, but in a good way. I know this is sort of like growing pains all over again ... LOL.... for me!!! He has been very supportive of her in many aspects of our chaotic existence in recent years, months, weeks, ..... life.... isn't it grand!!!
On my health front, overall, I am feeling pretty good. I have been exhausted the past month. Not sleeping great, my house is a rubble zone, which doesn't promote good sleep..... LOL ... even poor Maggie looks at me as if to say "what are going to do with all this shit??" "I want my pillow back!!" .... lol ... if she could speak ... oh, the stories she could tell you. Yesterday, I finally got some sort of answer on the lymph node. I will be undergoing surgery to remove it on 10/17. Apparently, this surgeon DID see something on the first CT scan, yet my report stated "No abnormal findings." .....all I could think was WTF!!! He was then able to pull my ultrasounds from the hospital database and .... wait for it ..... COMPARE THEM!!! Well, imagine my awe when he states that it has grown and that he would remove it and then have "whatever it is analyzed." So ... I'm not really thrilled about the situation, I guess it needs to come out given my history with these cancerous cells .... the issue I went through several years back has also shown potential for bad growth. Do me a favor folks .... don't let something that seems like no big deal, like a mole, or for women to undergo a yearly pap and other related exams. I would also recommend this to my male cohorts. Something that you overlook everyday ... no big deal, turns into something you didn't expect. Anyway ... biopsies were done yesterday, again .... I wait.
So with that fill in .... I hope everyone enjoyed the first day of fall!! This has got to be the best season!! The smell of baking apples, cider, crisp smell in the air first thing in the morning, the smell of firewood .... in my kitchen the scent of cinnamon and spice...... because even the ocean can be enjoyed 365 days a year, but fall is a short span. Enjoy !!!! To those who follow back in New England .... enjoy some of that fresh cider with a "spice" for me!!
I have work to do from home in the morning while doing some multitasking ... LOL ... or at least attempting. These days I am lucky to focus on one thing for any length of time before my mind roams to some other area that is going to need attention ... and SOON. Graduation is only 10 weeks away!!
On that note: I hope you find the link to the press release from Stem Genex on the celebrity stem cell treatment. http://www.prweb.com/releases/2011/9/prweb8814052.htm
Enjoy the weekend one and all!!
Peace and Light
et
Ok .. .going to try and make this a quick, news packed post, like always, flying over more than one. At the end of the post, check out this weeks latest press release regarding celebrity stem cell treatments. So many great things are starting to happen. I SO am looking forward to undergoing the treatment again, if all goes well perhaps sometime in January 2012. I can't tell you how much I am hoping for 2012 to be the ultimate in life changing years. Maybe it's age, I am after all 48 years old now!!!! I think I have more than exceeded that doctor who stated in 1972 that "this kid will be lucky if she sees 21." Thats 27 flipping more than they predicted ..... ahhhhh if I only knew then, what I know now. However, there are many aspects of my life I wouldn't change for a minute, like being the mother of one of the most incredible creatures I have ever encountered .... she amazes me every single day. This is making the "cutting of the cord" a little more difficult lately as she has a young man in her life. I had no idea that this was what happens when a daughter moves on. It rips at my heart, but in a good way. I know this is sort of like growing pains all over again ... LOL.... for me!!! He has been very supportive of her in many aspects of our chaotic existence in recent years, months, weeks, ..... life.... isn't it grand!!!
On my health front, overall, I am feeling pretty good. I have been exhausted the past month. Not sleeping great, my house is a rubble zone, which doesn't promote good sleep..... LOL ... even poor Maggie looks at me as if to say "what are going to do with all this shit??" "I want my pillow back!!" .... lol ... if she could speak ... oh, the stories she could tell you. Yesterday, I finally got some sort of answer on the lymph node. I will be undergoing surgery to remove it on 10/17. Apparently, this surgeon DID see something on the first CT scan, yet my report stated "No abnormal findings." .....all I could think was WTF!!! He was then able to pull my ultrasounds from the hospital database and .... wait for it ..... COMPARE THEM!!! Well, imagine my awe when he states that it has grown and that he would remove it and then have "whatever it is analyzed." So ... I'm not really thrilled about the situation, I guess it needs to come out given my history with these cancerous cells .... the issue I went through several years back has also shown potential for bad growth. Do me a favor folks .... don't let something that seems like no big deal, like a mole, or for women to undergo a yearly pap and other related exams. I would also recommend this to my male cohorts. Something that you overlook everyday ... no big deal, turns into something you didn't expect. Anyway ... biopsies were done yesterday, again .... I wait.
So with that fill in .... I hope everyone enjoyed the first day of fall!! This has got to be the best season!! The smell of baking apples, cider, crisp smell in the air first thing in the morning, the smell of firewood .... in my kitchen the scent of cinnamon and spice...... because even the ocean can be enjoyed 365 days a year, but fall is a short span. Enjoy !!!! To those who follow back in New England .... enjoy some of that fresh cider with a "spice" for me!!
I have work to do from home in the morning while doing some multitasking ... LOL ... or at least attempting. These days I am lucky to focus on one thing for any length of time before my mind roams to some other area that is going to need attention ... and SOON. Graduation is only 10 weeks away!!
On that note: I hope you find the link to the press release from Stem Genex on the celebrity stem cell treatment. http://www.prweb.com/releases/2011/9/prweb8814052.htm
Enjoy the weekend one and all!!
Peace and Light
et
Tuesday, September 20, 2011
Up ... and then down again
G'Evening,
I am totally exhausted, from so many things. HT and I did the Best Fest this past weekend, and I am still paying for being on my ass for 8 hours, then on my feet for another 7, and then Saturday as well. It was really fun, and there were a ton of people from all over the state up here in Prescott celebrating the 100 year Centennial of AZ on February 14, 2012. I guess there is going to be several months of state wide celebrations. Prescott was the first territorial capital of AZ. Ok ... LOL .... that is about all the wild west history I can share ... I am a New Englander at heart.
Then there was Monday, back to work. I am exhausted ... did I say that already...? The usual 8 hours of what I do, which can be stressful for multiple reasons. Came home, BS dropped, went to bed. Did it again today, didn't want to get out of bed, but I made it to work. Good thing is after last night, I dropped my basal rate down another 1/2 unit an hour. I haven't been about the 150 range in a couple of weeks except for a pump issue I had 3 days ago. I seem to be needing less insulin to carb coverage as well.
Monday evening I listened to a voice mail I had from my GYN, we have issues there again. Going back to the whole lymph node issue, insurance still refuses, so I am being sent to a surgeon to see about just having whatever the 2x3cm mass is removed and biopsied after the fact. I will now also being visiting the GYN for yet another round of biopsies there as well. I am not looking forward to a potential rerun of THAT health hit. I just know the "stress" that they claim feeds these sort of bad cells has not been good. I am now concerned that the lymph node/mass could somehow be related to the other.....? I have my list of questions for both docs as an irregular mole was also found in the area of the mass. I have a history of skin dysplasia as well. All, or both of these health issues revolve around potential cancer cells, they are on the verge of becoming, cervical cancer, melanoma, etc. All being difficult to catch without early detection and regular follow up visits. Again, my knowledge, need to continue to learn, understand and perhaps share the experience with others so they know that they are not alone. I often times have felt very alone, especially with this latest "bad" result on my test. My mother was around to talk to when I went through the last bout, which was far from a pleasant ride, including laser surgery and a 6 week round of topical chemo. I just was not prepared for this hit, not with the potential beginning of a new part-time position that would make me the happiest stemmie recipient on the planet. An opportunity to share all the wonderful things that have happened since.
Basically, I know I need to relax, try and remain calm and optimistic, and just wait to see what happens with the appointments on Thursday. I have already taken the entire day off now due to the biopsy process. I will do some work from home..... in my sweats with a heating pad!!!
Fall is coming to AZ .... the mornings and evenings are cool, the days still warm, but more outside weather, my favorite time out here. Hoping to spend some quality time with Maggie this weekend, bath, oil change ... lol .... sounds exciting don't it?? That is my idea of quality time, being out with the dog ... and having my oil changed. There will be some more box dissection and disposal as well. I only have 9 weeks to get this place in shape for my baby-girls graduation .... with her nursing degree!!!! It has to happen ... especially now that we have only each other here, and of course those dear friends in which we now call family.
Wishing everyone a peaceful nights rest, and/or a wonderful Weds.
Peace and Light
et
I am totally exhausted, from so many things. HT and I did the Best Fest this past weekend, and I am still paying for being on my ass for 8 hours, then on my feet for another 7, and then Saturday as well. It was really fun, and there were a ton of people from all over the state up here in Prescott celebrating the 100 year Centennial of AZ on February 14, 2012. I guess there is going to be several months of state wide celebrations. Prescott was the first territorial capital of AZ. Ok ... LOL .... that is about all the wild west history I can share ... I am a New Englander at heart.
Then there was Monday, back to work. I am exhausted ... did I say that already...? The usual 8 hours of what I do, which can be stressful for multiple reasons. Came home, BS dropped, went to bed. Did it again today, didn't want to get out of bed, but I made it to work. Good thing is after last night, I dropped my basal rate down another 1/2 unit an hour. I haven't been about the 150 range in a couple of weeks except for a pump issue I had 3 days ago. I seem to be needing less insulin to carb coverage as well.
Monday evening I listened to a voice mail I had from my GYN, we have issues there again. Going back to the whole lymph node issue, insurance still refuses, so I am being sent to a surgeon to see about just having whatever the 2x3cm mass is removed and biopsied after the fact. I will now also being visiting the GYN for yet another round of biopsies there as well. I am not looking forward to a potential rerun of THAT health hit. I just know the "stress" that they claim feeds these sort of bad cells has not been good. I am now concerned that the lymph node/mass could somehow be related to the other.....? I have my list of questions for both docs as an irregular mole was also found in the area of the mass. I have a history of skin dysplasia as well. All, or both of these health issues revolve around potential cancer cells, they are on the verge of becoming, cervical cancer, melanoma, etc. All being difficult to catch without early detection and regular follow up visits. Again, my knowledge, need to continue to learn, understand and perhaps share the experience with others so they know that they are not alone. I often times have felt very alone, especially with this latest "bad" result on my test. My mother was around to talk to when I went through the last bout, which was far from a pleasant ride, including laser surgery and a 6 week round of topical chemo. I just was not prepared for this hit, not with the potential beginning of a new part-time position that would make me the happiest stemmie recipient on the planet. An opportunity to share all the wonderful things that have happened since.
Basically, I know I need to relax, try and remain calm and optimistic, and just wait to see what happens with the appointments on Thursday. I have already taken the entire day off now due to the biopsy process. I will do some work from home..... in my sweats with a heating pad!!!
Fall is coming to AZ .... the mornings and evenings are cool, the days still warm, but more outside weather, my favorite time out here. Hoping to spend some quality time with Maggie this weekend, bath, oil change ... lol .... sounds exciting don't it?? That is my idea of quality time, being out with the dog ... and having my oil changed. There will be some more box dissection and disposal as well. I only have 9 weeks to get this place in shape for my baby-girls graduation .... with her nursing degree!!!! It has to happen ... especially now that we have only each other here, and of course those dear friends in which we now call family.
Wishing everyone a peaceful nights rest, and/or a wonderful Weds.
Peace and Light
et
Saturday, September 17, 2011
Lots of positive happenings
Hi Everyone!!
Just a quickie update for today. I will detail tomorrow as it has been a busy week. Hillary and I are working one of the alcohol tents for Arizona's Centennial Celebration kick off being held this weekend. We did last night and were absolutely wiped when we got home at 11:00. We will do it again tonight from 5-10. It is through the Eagles, who sponsored my fundraising event back in November so we both feel a good about giving back to the community. So tomorrow, I will try and get "it" in gear so I can get some more boxes empty and dumpster bound.
I received my father's remains back this week .... that was a very weird encounter, just felt odd. I will be doing my "executor" duties to finish this chapter of my life. I plan to weed through what is left of these so called worldly possessions that my brothers seem to think are some sort of gold mine, NOT AT ALL!!! I will sort through and send boxes out hopefully by the end of the year so that we can bring in the new year with a new outlook, a new beginning, and perhaps a couple of expanded career options. All this is overdue for both my daughter, and myself.
With that being said .... I have to finish up some laundry and go to the store.
PS: I think it is time to review the BG logs as I think it is time to kick the basal rate down again. This too, is great news given the stress levels I have been under, and the continued fight of my first "stemmie" treatment. With the lift of some of the stress, and the soon to be loss of the remaining stress contributors ..... I see good things in my future.
Have a wonderful weekend!!!
Peace and Light
et
Just a quickie update for today. I will detail tomorrow as it has been a busy week. Hillary and I are working one of the alcohol tents for Arizona's Centennial Celebration kick off being held this weekend. We did last night and were absolutely wiped when we got home at 11:00. We will do it again tonight from 5-10. It is through the Eagles, who sponsored my fundraising event back in November so we both feel a good about giving back to the community. So tomorrow, I will try and get "it" in gear so I can get some more boxes empty and dumpster bound.
I received my father's remains back this week .... that was a very weird encounter, just felt odd. I will be doing my "executor" duties to finish this chapter of my life. I plan to weed through what is left of these so called worldly possessions that my brothers seem to think are some sort of gold mine, NOT AT ALL!!! I will sort through and send boxes out hopefully by the end of the year so that we can bring in the new year with a new outlook, a new beginning, and perhaps a couple of expanded career options. All this is overdue for both my daughter, and myself.
With that being said .... I have to finish up some laundry and go to the store.
PS: I think it is time to review the BG logs as I think it is time to kick the basal rate down again. This too, is great news given the stress levels I have been under, and the continued fight of my first "stemmie" treatment. With the lift of some of the stress, and the soon to be loss of the remaining stress contributors ..... I see good things in my future.
Have a wonderful weekend!!!
Peace and Light
et
Saturday, September 10, 2011
September already ....
Happy Saturday to everyone!!
I can't believe that September has arrived, the weather seems to be cooling down, we have had some rain this past week, but I am still just at a phase of being overwhelmed to the point I have no clue where the time has gone over the past few weeks. It's been just one blur after another. The entire situation in which my father passed away still weighs on me, and I have awoken at night in this daze as to where all this "rubble" in my home has come from. We have been able to start the weeding out process .... but it is hard to face after going to work and/or school all day or in Hilly's case, just coming in from a day of school yesterday and an all night shift. Everyone keeps telling us, "just take the time, a year or so, put it aside," .... well .... that would be all well and good if I had any sort of storage, shed, or garage. It has to be done, and the sooner I can get it done, and boxes packed for my brothers, the sooner I can forget about the hurtful, selfish behaviors and move on with my own life .... for Hillary, I know she feels bad about the entire situation, however, she is an adult now, can make her own conclusions, make her own call on what and who is part of her life. I, on the other hand, have had my 48 years to look back on recently, and have come to the conclusion that in a "reality" outlook, my brothers never really did support me in my life knowing the disease process, etc. Perhaps they really don't....?? It would seem that the whole "apple doesn't fall far from the tree" theory would place my brothers in the same thought processes as my father. That if we "deny it exists, then we need not really deal with it." It was odd, one of the moments in which keeps playing in my head is the Tuesday night we were in the ER with my dad. He kept insisting that I go home as I had been there since getting out of work, and had not eaten. It was the first time I ever recall him not only making comment of the fact, but would appear he understood now. Not long ago, he was telling me to "be careful, you might throw up your insulin." ..... Not the most intelligent comment from someone who lived in the same house as me for almost 20 years. Anyway .... lots of "moments" keep running though my mind, waking me at night, fogging my thoughts at work, perhaps part of the natural grieving process, but I am thinking this is a little different in that my entire life is about to change, and due to the family BS, I will only have those who have truly supported me in this venture over the past few years to share what comes next. I find it sad, disappointing, and probably a few other words that are just not coming to the forefront, that my own siblings could be so cold hearted, selfish, and with the nerve to blame me for not being fair to them. It totally blows me away!!! I thought I had come to this conclusion when they told me that they would not care for my dad, in any way due to their "childhood feelings." .... LMAO .... I am sorry, but I really do think this is one of the lamest excuses for "grown ups" I have ever heard. At least I can say this about my friends, and extended family, we have always spoke "up front", I don't usually hold any punches in my opinions or how I feel, you usually know where you stand with me ... and likewise ..... so how blessed am I??? To have people like this in my life to enjoy this journey with me, share some of the deepest thoughts of my being, laugh, cry, agree to disagree, and still ..... love and respect. This .... in my opinion, is one of my lifes best gifts, I have some of the greatest people in my life, some having been around for 20-30 years, coming and going, yet always being able to pick up right where we left off, and still continue to move forward in life. How much more can I ask for.....?? I am sorry that my brothers, all of us having been raised in the same home, same parents, same outlook, morals, etc ... primarily run by my mother, could come to be adults with such an outlook on who they are, where they came from, and one lesson I don't think too many, if any, rarely think about ..... I am happy that they seem to be successful in their careers, have nice homes, seem like they manage to get by, some better than the others but ...... when the shit hits the fan (pardon the expression), and life hits you with that slap in the face, you could lose all that wealth in a split second .... I certainly hope they know who they are and where they came from then .... as I do believe that I have learned many lessons over the years, especially since my diagnosis in 1972. I have always felt different in my outlook of the world, maybe we need to have near death experiences as children, as it would seem that as adults, not everyone "gets it." One brother in particular, who I have always considered myself close with in spite of differences over the years, has had a stroke, a heart attack, stents placed .... and no doubt the infamous family trait of high blood pressure and elevated cholesterol, and by looking at his feet and legs, a serious circulation issue (similar to his father).... can sit here drinking heavily, and smoking one after another, and tell me .... what life is all about!!! I certainly hope that for his sake, his grandchildren think he is all that and more, as I think, and remember as a child, my grandfather not being my favorite person as he smelled of beer, cigarette smoke, and was nasty on so many levels. He seems to love his grandchildren very much, however, I wonder if he ever thinks about the picture he portrays in their eyes??? Not my business really .... but .... as siblings .... I was brought up to believe we loved each other, would support and band together in times of need, or death .... seems I was wrong .... and on SO many levels.
This is another one I must put behind me, deal with it, and get on with life. MY LIFE!!! In the past few years, and now, since my treatment and positive responses, my goal is to help others in similar situations. This area of medicine/science can help so many, and it is my passion to share what I do know, continue to learn where the area is going, and educate those looking to know more. I want to be part of finding a cure for Type I, but I also want to encourage others, especially those with neuromuscular and bone issues to look into this.... it is amazing, almost miraculous in what it can do for us. For me, it is something I totally enjoy, my daughter says it makes me "spastic" in my excitement and enthusiasm when she sees me talking to someone interested in knowing what I have been through, and the changes I have experienced. That really does make the deep pain of having a sibling say "don't know anything about it, and I don't care," so much easier to take, as I can't make anyone care, I can't change anyone's behaviors or outlooks but my own. I only have control over my actions and outlooks. However, I will always be willing to share my experiences with anyone who wants to know more, and for that, I am totally grateful for the blessings in which have been placed in my life.
Perhaps today's post is a lot of babbling .... I do apologize .... I have had some low blood sugars these past 2-3 weeks in which I am not spotting them, I am trying hard to put this all into perspective given the situations that have arisen, but ... I must remain diligent, I finally have an appointment with a surgeon on the 22nd to just remove this lymph node (mass), another issue which has been causing disruption .... I'm emotionally and physically exhausted and don't feel like I got any time to actually process any of this BS before having to get back to my life. Just goes to prove .... "life stands still for no one."
With that being said .... go out and live your life today. Do something that makes you happy, brings you peace, relax and take in the sights and sounds that should make us all reflect and prosper.
Wishing all of you a wonderful weekend!!!
Be well ~ Peace and Light
et
I can't believe that September has arrived, the weather seems to be cooling down, we have had some rain this past week, but I am still just at a phase of being overwhelmed to the point I have no clue where the time has gone over the past few weeks. It's been just one blur after another. The entire situation in which my father passed away still weighs on me, and I have awoken at night in this daze as to where all this "rubble" in my home has come from. We have been able to start the weeding out process .... but it is hard to face after going to work and/or school all day or in Hilly's case, just coming in from a day of school yesterday and an all night shift. Everyone keeps telling us, "just take the time, a year or so, put it aside," .... well .... that would be all well and good if I had any sort of storage, shed, or garage. It has to be done, and the sooner I can get it done, and boxes packed for my brothers, the sooner I can forget about the hurtful, selfish behaviors and move on with my own life .... for Hillary, I know she feels bad about the entire situation, however, she is an adult now, can make her own conclusions, make her own call on what and who is part of her life. I, on the other hand, have had my 48 years to look back on recently, and have come to the conclusion that in a "reality" outlook, my brothers never really did support me in my life knowing the disease process, etc. Perhaps they really don't....?? It would seem that the whole "apple doesn't fall far from the tree" theory would place my brothers in the same thought processes as my father. That if we "deny it exists, then we need not really deal with it." It was odd, one of the moments in which keeps playing in my head is the Tuesday night we were in the ER with my dad. He kept insisting that I go home as I had been there since getting out of work, and had not eaten. It was the first time I ever recall him not only making comment of the fact, but would appear he understood now. Not long ago, he was telling me to "be careful, you might throw up your insulin." ..... Not the most intelligent comment from someone who lived in the same house as me for almost 20 years. Anyway .... lots of "moments" keep running though my mind, waking me at night, fogging my thoughts at work, perhaps part of the natural grieving process, but I am thinking this is a little different in that my entire life is about to change, and due to the family BS, I will only have those who have truly supported me in this venture over the past few years to share what comes next. I find it sad, disappointing, and probably a few other words that are just not coming to the forefront, that my own siblings could be so cold hearted, selfish, and with the nerve to blame me for not being fair to them. It totally blows me away!!! I thought I had come to this conclusion when they told me that they would not care for my dad, in any way due to their "childhood feelings." .... LMAO .... I am sorry, but I really do think this is one of the lamest excuses for "grown ups" I have ever heard. At least I can say this about my friends, and extended family, we have always spoke "up front", I don't usually hold any punches in my opinions or how I feel, you usually know where you stand with me ... and likewise ..... so how blessed am I??? To have people like this in my life to enjoy this journey with me, share some of the deepest thoughts of my being, laugh, cry, agree to disagree, and still ..... love and respect. This .... in my opinion, is one of my lifes best gifts, I have some of the greatest people in my life, some having been around for 20-30 years, coming and going, yet always being able to pick up right where we left off, and still continue to move forward in life. How much more can I ask for.....?? I am sorry that my brothers, all of us having been raised in the same home, same parents, same outlook, morals, etc ... primarily run by my mother, could come to be adults with such an outlook on who they are, where they came from, and one lesson I don't think too many, if any, rarely think about ..... I am happy that they seem to be successful in their careers, have nice homes, seem like they manage to get by, some better than the others but ...... when the shit hits the fan (pardon the expression), and life hits you with that slap in the face, you could lose all that wealth in a split second .... I certainly hope they know who they are and where they came from then .... as I do believe that I have learned many lessons over the years, especially since my diagnosis in 1972. I have always felt different in my outlook of the world, maybe we need to have near death experiences as children, as it would seem that as adults, not everyone "gets it." One brother in particular, who I have always considered myself close with in spite of differences over the years, has had a stroke, a heart attack, stents placed .... and no doubt the infamous family trait of high blood pressure and elevated cholesterol, and by looking at his feet and legs, a serious circulation issue (similar to his father).... can sit here drinking heavily, and smoking one after another, and tell me .... what life is all about!!! I certainly hope that for his sake, his grandchildren think he is all that and more, as I think, and remember as a child, my grandfather not being my favorite person as he smelled of beer, cigarette smoke, and was nasty on so many levels. He seems to love his grandchildren very much, however, I wonder if he ever thinks about the picture he portrays in their eyes??? Not my business really .... but .... as siblings .... I was brought up to believe we loved each other, would support and band together in times of need, or death .... seems I was wrong .... and on SO many levels.
This is another one I must put behind me, deal with it, and get on with life. MY LIFE!!! In the past few years, and now, since my treatment and positive responses, my goal is to help others in similar situations. This area of medicine/science can help so many, and it is my passion to share what I do know, continue to learn where the area is going, and educate those looking to know more. I want to be part of finding a cure for Type I, but I also want to encourage others, especially those with neuromuscular and bone issues to look into this.... it is amazing, almost miraculous in what it can do for us. For me, it is something I totally enjoy, my daughter says it makes me "spastic" in my excitement and enthusiasm when she sees me talking to someone interested in knowing what I have been through, and the changes I have experienced. That really does make the deep pain of having a sibling say "don't know anything about it, and I don't care," so much easier to take, as I can't make anyone care, I can't change anyone's behaviors or outlooks but my own. I only have control over my actions and outlooks. However, I will always be willing to share my experiences with anyone who wants to know more, and for that, I am totally grateful for the blessings in which have been placed in my life.
Perhaps today's post is a lot of babbling .... I do apologize .... I have had some low blood sugars these past 2-3 weeks in which I am not spotting them, I am trying hard to put this all into perspective given the situations that have arisen, but ... I must remain diligent, I finally have an appointment with a surgeon on the 22nd to just remove this lymph node (mass), another issue which has been causing disruption .... I'm emotionally and physically exhausted and don't feel like I got any time to actually process any of this BS before having to get back to my life. Just goes to prove .... "life stands still for no one."
With that being said .... go out and live your life today. Do something that makes you happy, brings you peace, relax and take in the sights and sounds that should make us all reflect and prosper.
Wishing all of you a wonderful weekend!!!
Be well ~ Peace and Light
et
Saturday, September 3, 2011
I must be getting boring ...
Happy Labor Day to Everyone!!!
Not a whole lot going on that is different. I have been trying to deal and cope with the latest life changing happening. I look around my home and am overwhelmed by the material that I have had to bring here so that we can go through it. We have already made multiple donations to various organizations in the area, had a yard sale to try and make enough to tend to final expenses (we all know the others aren't going to contribute), and I went back to work this past week, which has me completely exhausted. I have been nonstop since the Tuesday we took my dad to the emergency room. My stomach is on the rampage today, blood sugars have been stable, with a few lows, not being picked up until between 44 and 60. (Hillary made mention of the fact that she hopes it is only the stress and not the failure of my stemmies). I ache all over from all the moving we have done, and I am emotionally numb.
I, or I should say Hillary and I, have spent so long caring for, tending to, and looking out for someone this will be a huge adjustment for both of us. She has already had a couple of "moments" having started back to classes and usually stopping by to have lunch a couple of times a week with her grandfather to tell him of her happenings. He was very proud of her, and ALWAYS let her know it. Something that perhaps I didn't get, but am very happy that it was something he could do later in life. I do believe this is a normal thing for most of my parents generation. For as difficult as he could be, I will have to adjust to not having that duty to tend too, and that will be huge for me. Hillary will graduate in December, and then it is unsure of what our future may hold. I do know, that we can spend a little more time tending to us, focusing on our passions, mine being the stem cell process and where it is going ..... and how fast can we get it here, legitimately and within reach of the everyday patient, NOT just the well-to-do (which by-the-way, I am NOT).
I just wanted to drop in and see what was going on. It would appear that I am either getting boring, or people are just reading with no response .... LOL .... usually I am pretty good at stirring some sort of response. I must be slipping.
Wishing everyone a happy and safe Labor Day weekend!!!
Peace and Light
et
Not a whole lot going on that is different. I have been trying to deal and cope with the latest life changing happening. I look around my home and am overwhelmed by the material that I have had to bring here so that we can go through it. We have already made multiple donations to various organizations in the area, had a yard sale to try and make enough to tend to final expenses (we all know the others aren't going to contribute), and I went back to work this past week, which has me completely exhausted. I have been nonstop since the Tuesday we took my dad to the emergency room. My stomach is on the rampage today, blood sugars have been stable, with a few lows, not being picked up until between 44 and 60. (Hillary made mention of the fact that she hopes it is only the stress and not the failure of my stemmies). I ache all over from all the moving we have done, and I am emotionally numb.
I, or I should say Hillary and I, have spent so long caring for, tending to, and looking out for someone this will be a huge adjustment for both of us. She has already had a couple of "moments" having started back to classes and usually stopping by to have lunch a couple of times a week with her grandfather to tell him of her happenings. He was very proud of her, and ALWAYS let her know it. Something that perhaps I didn't get, but am very happy that it was something he could do later in life. I do believe this is a normal thing for most of my parents generation. For as difficult as he could be, I will have to adjust to not having that duty to tend too, and that will be huge for me. Hillary will graduate in December, and then it is unsure of what our future may hold. I do know, that we can spend a little more time tending to us, focusing on our passions, mine being the stem cell process and where it is going ..... and how fast can we get it here, legitimately and within reach of the everyday patient, NOT just the well-to-do (which by-the-way, I am NOT).
I just wanted to drop in and see what was going on. It would appear that I am either getting boring, or people are just reading with no response .... LOL .... usually I am pretty good at stirring some sort of response. I must be slipping.
Wishing everyone a happy and safe Labor Day weekend!!!
Peace and Light
et
Wednesday, August 31, 2011
Stress overload
I hope this posting finds all my readers well and happy, and continuing on the quest for more knowledge.
It has been a very stressful, emotionally and physically, two weeks since the passing of my father. His passing, although not completely unexpected, did come suddenly and by means other than the expected. My daughter found him down, we met at the ER and it was within 24 hours he had past, both of us by his side. Then came the family BS .... I have 5 brothers, 3 of which have had no contact with my father since my mother's passing, or prior, and yet 2 of them had the nerve to show up here in AZ, "swoop in like vultures", according to my daughter's observance, offer very little physical or emotional support, for one day (and not a complete day). They then camped out across town with a cousin/friend and proceeded to feed their Budweiser delusions as to how I wasn't being fair to "my brothers." Well, I nearly lost it!!! and then I blew up verbally 2 days prior to their departure. They had nothing nice to say while they were here, seemed disappointed that my parents "didn't have anything" and what they did have was dispersed prior to my mother's passing with the exception of a few "worldly possessions" of my dads. In the end, I was called numerous nasty names, was the recipient of some very hurtful comments, and I walked away stating (loudly)that I hope they don't have to die without the love of their children. Fact is, my parents did the best they knew how to do given the times and circumstances.
All this has been wearing on my body. The emotional and physical stress has caused some lows, which I haven't had for a while, and no real awareness. (I'm hoping this is just stress related) If not for a couple of friends, HT and a few of her friends, we NEVER would have gotten the move completed by weeks end. We tried to sell some of the bigger stuff, made multiple donations as per my mothers request, and the rest, 70 years of photos and some holiday stuff is now crawling the walls in my home. I, too, will handle this task with the help of my daughter, the two of us being the only steady in my parents life for the past 10+ years, yet I'm not being fair to my siblings.
With that being said, I have come to the conclusion that it is time for me to focus on my life, and my passion for the stem cell science/medicine/treatment will be my focus. As for my so-called siblings .... I did what they didn't have the manhood, or emotional maturity to handle, flat out refused to do at the time the death topic came into play, and therefore, their "childhood issues" or the fact that they stated to me that they would not care for my father "'cause he was an a-hole to us as kids" is not my issue, it is theirs and I REFUSE to accept their guilt as a reason for the bashing as I too, grew up in the same household. They can say whatever they want, but my daughter and I know the truth, we know the history, we know more than my brothers probably would be pleased with. We did not seek to ease our pain in a case of beer x 20+ for the week. Seems a little overwhelming for even a good size party, never mind 2 guys (3 for 3 days). Some serious soul searching should take place, I have done that many times, and my disillusion with "family" has come to a harsh ending in which "forgive and forget" will not only take time, I am not sure it can be undone. It slapped me right in the face that my brothers seem to not care about where they came from, my health issues, were addressed as "I don't know anything about that, and I don't care." ...... Hmmmmm ..... I get more response and admiration from strangers in the way I live my life, and the manner in which I am trying to not only prolong my life given the situation, but live it as I go along. Education, knowledge, is power, and I saw nothing but ego and arrogance in this past visit. I think it is pretty safe to say we won't be having visitors anytime soon, if ever. All the times I thought that when this time in our lives came, we would band together .... holy cow!!! What was I smoking???? and those rose colored glasses should now be shattered. I know my family is of dysfunctional makeup, but .... has no one heard the phrase, "Break the chain"? This cycle should have been broken a long time ago, I can only hope that my daughter has learned some valuable lessons of life in relationships and the give and take of those in play. Human nature never ceases to amaze me.
I hope you were able to check out the Stem Genex newsletter and the articles that were some pretty interesting reading.
I ask for a little time to adjust to what is about to be the biggest life change I have undergone since my divorce back in 1994. Life as I know it has changed drastically, again, and I need to play out my hand in the most appropriate and meaningful way ..... for me!!! I deserve to be good to me and focus on the passions that make me full.
Peace and Light to all
et
It has been a very stressful, emotionally and physically, two weeks since the passing of my father. His passing, although not completely unexpected, did come suddenly and by means other than the expected. My daughter found him down, we met at the ER and it was within 24 hours he had past, both of us by his side. Then came the family BS .... I have 5 brothers, 3 of which have had no contact with my father since my mother's passing, or prior, and yet 2 of them had the nerve to show up here in AZ, "swoop in like vultures", according to my daughter's observance, offer very little physical or emotional support, for one day (and not a complete day). They then camped out across town with a cousin/friend and proceeded to feed their Budweiser delusions as to how I wasn't being fair to "my brothers." Well, I nearly lost it!!! and then I blew up verbally 2 days prior to their departure. They had nothing nice to say while they were here, seemed disappointed that my parents "didn't have anything" and what they did have was dispersed prior to my mother's passing with the exception of a few "worldly possessions" of my dads. In the end, I was called numerous nasty names, was the recipient of some very hurtful comments, and I walked away stating (loudly)that I hope they don't have to die without the love of their children. Fact is, my parents did the best they knew how to do given the times and circumstances.
All this has been wearing on my body. The emotional and physical stress has caused some lows, which I haven't had for a while, and no real awareness. (I'm hoping this is just stress related) If not for a couple of friends, HT and a few of her friends, we NEVER would have gotten the move completed by weeks end. We tried to sell some of the bigger stuff, made multiple donations as per my mothers request, and the rest, 70 years of photos and some holiday stuff is now crawling the walls in my home. I, too, will handle this task with the help of my daughter, the two of us being the only steady in my parents life for the past 10+ years, yet I'm not being fair to my siblings.
With that being said, I have come to the conclusion that it is time for me to focus on my life, and my passion for the stem cell science/medicine/treatment will be my focus. As for my so-called siblings .... I did what they didn't have the manhood, or emotional maturity to handle, flat out refused to do at the time the death topic came into play, and therefore, their "childhood issues" or the fact that they stated to me that they would not care for my father "'cause he was an a-hole to us as kids" is not my issue, it is theirs and I REFUSE to accept their guilt as a reason for the bashing as I too, grew up in the same household. They can say whatever they want, but my daughter and I know the truth, we know the history, we know more than my brothers probably would be pleased with. We did not seek to ease our pain in a case of beer x 20+ for the week. Seems a little overwhelming for even a good size party, never mind 2 guys (3 for 3 days). Some serious soul searching should take place, I have done that many times, and my disillusion with "family" has come to a harsh ending in which "forgive and forget" will not only take time, I am not sure it can be undone. It slapped me right in the face that my brothers seem to not care about where they came from, my health issues, were addressed as "I don't know anything about that, and I don't care." ...... Hmmmmm ..... I get more response and admiration from strangers in the way I live my life, and the manner in which I am trying to not only prolong my life given the situation, but live it as I go along. Education, knowledge, is power, and I saw nothing but ego and arrogance in this past visit. I think it is pretty safe to say we won't be having visitors anytime soon, if ever. All the times I thought that when this time in our lives came, we would band together .... holy cow!!! What was I smoking???? and those rose colored glasses should now be shattered. I know my family is of dysfunctional makeup, but .... has no one heard the phrase, "Break the chain"? This cycle should have been broken a long time ago, I can only hope that my daughter has learned some valuable lessons of life in relationships and the give and take of those in play. Human nature never ceases to amaze me.
I hope you were able to check out the Stem Genex newsletter and the articles that were some pretty interesting reading.
I ask for a little time to adjust to what is about to be the biggest life change I have undergone since my divorce back in 1994. Life as I know it has changed drastically, again, and I need to play out my hand in the most appropriate and meaningful way ..... for me!!! I deserve to be good to me and focus on the passions that make me full.
Peace and Light to all
et
Monday, August 29, 2011
It has been a long week
Hello to all !!
I hope that all who read the Stem Genex Newsletter found something of interest. This is an upcoming area that the FDA and those who call the shots just can't ignore. It's working, in so many areas, improving the lives of so many, how can they possibly push it under the rug??? I have to say that based on when I started my research into this science, it is finally at a point where we, as the people, can find the treatments. However, we still have a long way to go. I have been so pleased that my blog has reached people who are looking for this sort of treatment, and that I have been able to talk with them about what I experienced. This is an "opportunity" I didn't have when I was looking for treatment, and a reputable organization to work with. I have found that, and will continue to advocate for such.
On another note, I have some stressful, disturbing blogging info to post on, as it has been 12 days from chaos, having lost my father on August 18th, and not to the reason we had expected. It was fast, he was kept comfortable, and this happening brought out, yet again, the ultimate best in my so-called siblings. It is my opinion, and that of many who have witnessed the situation over the past 5 years, that my daughter and I did what my brothers didn't have the "manhood" or emotional maturity to handle, and therefore, throwing derogatory comments of negativity is their method of making themselves feel better, so be it. I am all too aware people grieve differently, this is not grieving, this is pure and total guilt, and I will not allow it to eat me as I know the actions I took, and will continue to take as I move forward, are never with the intention to get something for nothing, or to avoid the basic human contact, regardless. I may have been frustrated and irritated with my father's outlook on life, and he could certainly be difficult, but, past is past, and neither Hillary, nor myself, ever turned our back on him, or left him alone. We included him .... and as a result, most of our friends, were very much aware of the "grandfather" .... Hillary found him down, and in her professional mode, handled herself amazingly, we were with him until the end, he managed to tell us he loved us, and he knew we were there and would do our best to take care of the aftermath. Needless to say, my blood sugars have responded with several lows over the past week or so, in part, I believe, due to stress levels and all the physical moving we have had to do to get the apartment empty, which was completed yesterday.
So .... this is part of why I have not made many posts in the past couple of weeks. Life has had me very occupied.
Wishing all Peace and Light
et
I hope that all who read the Stem Genex Newsletter found something of interest. This is an upcoming area that the FDA and those who call the shots just can't ignore. It's working, in so many areas, improving the lives of so many, how can they possibly push it under the rug??? I have to say that based on when I started my research into this science, it is finally at a point where we, as the people, can find the treatments. However, we still have a long way to go. I have been so pleased that my blog has reached people who are looking for this sort of treatment, and that I have been able to talk with them about what I experienced. This is an "opportunity" I didn't have when I was looking for treatment, and a reputable organization to work with. I have found that, and will continue to advocate for such.
On another note, I have some stressful, disturbing blogging info to post on, as it has been 12 days from chaos, having lost my father on August 18th, and not to the reason we had expected. It was fast, he was kept comfortable, and this happening brought out, yet again, the ultimate best in my so-called siblings. It is my opinion, and that of many who have witnessed the situation over the past 5 years, that my daughter and I did what my brothers didn't have the "manhood" or emotional maturity to handle, and therefore, throwing derogatory comments of negativity is their method of making themselves feel better, so be it. I am all too aware people grieve differently, this is not grieving, this is pure and total guilt, and I will not allow it to eat me as I know the actions I took, and will continue to take as I move forward, are never with the intention to get something for nothing, or to avoid the basic human contact, regardless. I may have been frustrated and irritated with my father's outlook on life, and he could certainly be difficult, but, past is past, and neither Hillary, nor myself, ever turned our back on him, or left him alone. We included him .... and as a result, most of our friends, were very much aware of the "grandfather" .... Hillary found him down, and in her professional mode, handled herself amazingly, we were with him until the end, he managed to tell us he loved us, and he knew we were there and would do our best to take care of the aftermath. Needless to say, my blood sugars have responded with several lows over the past week or so, in part, I believe, due to stress levels and all the physical moving we have had to do to get the apartment empty, which was completed yesterday.
So .... this is part of why I have not made many posts in the past couple of weeks. Life has had me very occupied.
Wishing all Peace and Light
et
Friday, August 26, 2011
Newsletter Link
http://campaign.r20.constantcontact.com/render?llr=mhorzzcab&v=00186bjBp797gv9gFB6hirQEX6wHGH_X2P4lDOyI7fGv_CAP3bmjdvO6owe1yfWXiVfbzI0czko7e_5Jv4ireb00Hpjaylj3S39d7oyR7zW8BD9DeGq6id4Uz80TavVi62ecuxBQME2jxI%3D
The link above is the this months Stem Genex Newsletter, I am the headline article, followed by two VERY promising and informative articles involving the military and TX Governor, Rick Perry. The more awareness we promote, the better chance we have of bringing stem cell treatment to those who need and want it ... HERE!
Enjoy the read!!!
Peace and Light
et
I need to update on some stressful few weeks, but for now, lets celebrate knowledge!!!
The link above is the this months Stem Genex Newsletter, I am the headline article, followed by two VERY promising and informative articles involving the military and TX Governor, Rick Perry. The more awareness we promote, the better chance we have of bringing stem cell treatment to those who need and want it ... HERE!
Enjoy the read!!!
Peace and Light
et
I need to update on some stressful few weeks, but for now, lets celebrate knowledge!!!
Friday, August 5, 2011
Some exciting stuff for me
Hi Everyone and Happy Friday!!!
Not a whole lot going on that is new. I do have some exciting news (or at least it is my idea of exciting). First, I am home today with what I thought I had a hold of, a sinus infection. My head is killing me!! With this monsoon season in full flow here in AZ there is a lot of blowing dust, dirt, etc., then stirred up with a down pour of rain that releases tons of God only knows what, filling the air. It isn't anything like the rains I remember from back east. There is no refreshing smell of wet grass or flowers after a rain, it is wet dirt at best. This area also throws lots of spores from the dirt and dust which can cause some pretty nasty upper respiratory infections, and something they call Valley Fever, which is something I would really like to avoid. I also had a doctor appointment this week in which the provider asked me "why hasn't it been biopsied yet?" regarding my lymph node issue, which after her examination, has been bothering me for the last 3 days. She is requesting past operative reports and seems sincere in getting this little issue taken care of .... she is one of only 2 providers I have dealt with in the past 3-4 months of this that seems totally irked with the mentality of most of the health care community in which they have placed their passion. Just goes to prove, some still have their ethics and compassion. We will see where this goes, and how fast. I follow up next week.
So the week has been pretty long in the sense of fighting the sinus pain, dealing with the same individuals who refuse to do their jobs and yet continue to have one, and try and accommodate the duties I have in and out of the workplace. I saw to my Dad a couple of times this past week, he continues to be a major source of stress for me and I am trying to fit in going over and getting things ready to move and/or get rid of. Sounds sort of harsh, but, unfortunately, I will get no help with this mission or the payment of his final bills, etc from the so-called siblings. With that being said, let's move on to what I feel is exciting and gets me all pumped up .....LOL.
Earlier this week I got a call from the Stem Genex gentleman (who was not part of my treatment at the time), he asked if I would talk to another patient in regard to how my treatment went. I, of course, said yes!! I wished at the time, I had been able to speak with someone who had undergone the treatment, or had dealt with any particular company. I am now in a position to offer my experience as I am not afraid to do so. I want anyone, and everyone, to know that I was treated VERY well, well within ethical guidelines, and the personal touch was more than comforting. If I can offer that to another patient, especially those suffering from Type I, I want to do it. My daughter and I have actually spoken about this divulging of information and the way that HIPPA can prevent people from getting this sort of information. So ... if this is the only legacy I leave behind, I am willing to put myself out there to do so. So I thought that was pretty exciting!! Also, and this is something that has had me all excited this week ... The informational news letter put out by the ISCI / Stem Genex and is full of up-to-date info on where the science is, etc. is going to spot light ME!!! In 2 weeks, I will be the patient spot light on my story (condensed version) and my response to treatment in just the 1st six months. I am so excited as the woman I spoke with last night who conducted the interview was SO intriguing and interesting, we could have been on the phone all night!!! She really was, yet another, strong, intelligent woman placed in my direct path on this leg of my journey. I have a feeling, or shall I say, it is my real hope, that one day soon I can put myself right into this area of medicine either as the "guinea pig" producing the data to those who can REALLY put it to use, or, that I am available to patients who want, as I, to live longer, healthier, and prove the US regulatory agencies holding us back WRONG!!
Again, all the political happening in the past couple of weeks has me reeling. Loss in the stock market yesterday hit my 401K hard, and that is about all I have as any sort of "investment" to help in my future. I don't have to tell most of you, that I am not a rich woman, monetarily speaking. I work hard to keep a roof over our head, I have all the basic expenses most have, plus, even with health insurance, I have medical expenses, both appointments and supplies in which total a whopping 7k + a year, and that doesn't always include any deductible. (I'm thinking this is a big reason I can't find a date .... LOL). So with that info, how can I possibly do anything exciting such as a vacation!!?? I try to make the time, and lucky for me and the child, we are a cheap date, and so easily amused. These sorts of expenses never seem to be taken into consideration, in regard to "getting ahead." A perfect example, is my daughters applications for Federal aide to assist her with her college education. She doesn't usually qualify ..... imagine that.... a young, white woman, who is fully employed (full-time) and putting herself through college (yes, full time) with very little help. She took out a loan last year that was made more difficult then our mortgage was. Yes, she is also a home owner, and she is only 22 years old!!! I could take this post to a whole other level in regard to not only our health care, but our declining educational status. WE ARE NOT THE SUPER POWER that the big guys in Washington want us to believe and if you are that "brain washed" to believe we are .... then you should dig a little deeper as you will be in for a very rude awakening ... and my guess, is it won't be too long now before it all blows up on the American people. That is those that are still alive when the pharmaceuticals, over priced health care, and the environment get done with us. Talk about a legalized way of thinning out our own population ..... LOL .....
I wish ... and on a daily basis, wish I knew what I could do as one person to make that difference. I can't, it will take a whole band of voices to get things like this changed. It has to change, this is not the model in which I believe this country was built, and it continues to fail us, as citizens, every day.
I can't wait to see what is compiled for the news letter, and will certainly post a link this this information when it comes out. I know I have been getting the ISCI news letter since I found them over a year ago, it comes to my email, so anyone who wants in that way, can sign up to stay up to date by visiting the website. Lots of things are changing, and even I need to get caught up, this is such an exciting time for this science / medicine!!! Please join me in bringing a change to the outlook behind stem cells.
Thanks and have a wonderful weekend!!!
Peace and Light
et
Not a whole lot going on that is new. I do have some exciting news (or at least it is my idea of exciting). First, I am home today with what I thought I had a hold of, a sinus infection. My head is killing me!! With this monsoon season in full flow here in AZ there is a lot of blowing dust, dirt, etc., then stirred up with a down pour of rain that releases tons of God only knows what, filling the air. It isn't anything like the rains I remember from back east. There is no refreshing smell of wet grass or flowers after a rain, it is wet dirt at best. This area also throws lots of spores from the dirt and dust which can cause some pretty nasty upper respiratory infections, and something they call Valley Fever, which is something I would really like to avoid. I also had a doctor appointment this week in which the provider asked me "why hasn't it been biopsied yet?" regarding my lymph node issue, which after her examination, has been bothering me for the last 3 days. She is requesting past operative reports and seems sincere in getting this little issue taken care of .... she is one of only 2 providers I have dealt with in the past 3-4 months of this that seems totally irked with the mentality of most of the health care community in which they have placed their passion. Just goes to prove, some still have their ethics and compassion. We will see where this goes, and how fast. I follow up next week.
So the week has been pretty long in the sense of fighting the sinus pain, dealing with the same individuals who refuse to do their jobs and yet continue to have one, and try and accommodate the duties I have in and out of the workplace. I saw to my Dad a couple of times this past week, he continues to be a major source of stress for me and I am trying to fit in going over and getting things ready to move and/or get rid of. Sounds sort of harsh, but, unfortunately, I will get no help with this mission or the payment of his final bills, etc from the so-called siblings. With that being said, let's move on to what I feel is exciting and gets me all pumped up .....LOL.
Earlier this week I got a call from the Stem Genex gentleman (who was not part of my treatment at the time), he asked if I would talk to another patient in regard to how my treatment went. I, of course, said yes!! I wished at the time, I had been able to speak with someone who had undergone the treatment, or had dealt with any particular company. I am now in a position to offer my experience as I am not afraid to do so. I want anyone, and everyone, to know that I was treated VERY well, well within ethical guidelines, and the personal touch was more than comforting. If I can offer that to another patient, especially those suffering from Type I, I want to do it. My daughter and I have actually spoken about this divulging of information and the way that HIPPA can prevent people from getting this sort of information. So ... if this is the only legacy I leave behind, I am willing to put myself out there to do so. So I thought that was pretty exciting!! Also, and this is something that has had me all excited this week ... The informational news letter put out by the ISCI / Stem Genex and is full of up-to-date info on where the science is, etc. is going to spot light ME!!! In 2 weeks, I will be the patient spot light on my story (condensed version) and my response to treatment in just the 1st six months. I am so excited as the woman I spoke with last night who conducted the interview was SO intriguing and interesting, we could have been on the phone all night!!! She really was, yet another, strong, intelligent woman placed in my direct path on this leg of my journey. I have a feeling, or shall I say, it is my real hope, that one day soon I can put myself right into this area of medicine either as the "guinea pig" producing the data to those who can REALLY put it to use, or, that I am available to patients who want, as I, to live longer, healthier, and prove the US regulatory agencies holding us back WRONG!!
Again, all the political happening in the past couple of weeks has me reeling. Loss in the stock market yesterday hit my 401K hard, and that is about all I have as any sort of "investment" to help in my future. I don't have to tell most of you, that I am not a rich woman, monetarily speaking. I work hard to keep a roof over our head, I have all the basic expenses most have, plus, even with health insurance, I have medical expenses, both appointments and supplies in which total a whopping 7k + a year, and that doesn't always include any deductible. (I'm thinking this is a big reason I can't find a date .... LOL). So with that info, how can I possibly do anything exciting such as a vacation!!?? I try to make the time, and lucky for me and the child, we are a cheap date, and so easily amused. These sorts of expenses never seem to be taken into consideration, in regard to "getting ahead." A perfect example, is my daughters applications for Federal aide to assist her with her college education. She doesn't usually qualify ..... imagine that.... a young, white woman, who is fully employed (full-time) and putting herself through college (yes, full time) with very little help. She took out a loan last year that was made more difficult then our mortgage was. Yes, she is also a home owner, and she is only 22 years old!!! I could take this post to a whole other level in regard to not only our health care, but our declining educational status. WE ARE NOT THE SUPER POWER that the big guys in Washington want us to believe and if you are that "brain washed" to believe we are .... then you should dig a little deeper as you will be in for a very rude awakening ... and my guess, is it won't be too long now before it all blows up on the American people. That is those that are still alive when the pharmaceuticals, over priced health care, and the environment get done with us. Talk about a legalized way of thinning out our own population ..... LOL .....
I wish ... and on a daily basis, wish I knew what I could do as one person to make that difference. I can't, it will take a whole band of voices to get things like this changed. It has to change, this is not the model in which I believe this country was built, and it continues to fail us, as citizens, every day.
I can't wait to see what is compiled for the news letter, and will certainly post a link this this information when it comes out. I know I have been getting the ISCI news letter since I found them over a year ago, it comes to my email, so anyone who wants in that way, can sign up to stay up to date by visiting the website. Lots of things are changing, and even I need to get caught up, this is such an exciting time for this science / medicine!!! Please join me in bringing a change to the outlook behind stem cells.
Thanks and have a wonderful weekend!!!
Peace and Light
et
Sunday, July 31, 2011
Negative, Depressing, Small-minded thinking ...
Good Day Everyone!!!
It seems as it has been a while since my last post. Life has had me busy. Work has required OT which really takes its toll on me. The last two weeks has had me in close to 60 hours/week, and that doesn't include the work I do from home for a private neuropsychologist. Which means that this weekend, my house looks like a tornado has blown through and I just don't have the energy to wipe it all out. Oh, where, oh where did my life go wrong??? I would love to have a maid, yard boy, and even a pool boy .... lol ... but need that pool first!!! I certainly would feel better on a regular basis if I had a body of water to work in.
Ok, well enough of that whining!! Sleep has not been so great this past week. Not because I don't feel well, but because it is monsoon season here in Arizona and my dog has become a rather neurotic, paranoid baby this season where thunder is concerned. As I type, she is across my lap!!! .... and has been in this sort of position since yesterday afternoon. as storms have been off and on, all 70 lbs of her thinking she is a lap dog!!! When HT gets home from work in just a bit, I am hoping to get some stuff done as the dog can go lay with her for "body contact security!"
I have a couple of articles to post here. I am so happy with the progress the folks at Stem Genex are making in bringing this, in my opinion, miracle, to the forefront on so many levels. Check out the latest release from them on MS patients!!! The benefits of this treatment are so much more than anyone could begin to explain. It just reaffirms my belief in what is possible if the politics would just back off here in the US.
Also, the second printing is that of a question I posed on the Diabetes Research Institutes Facebook page last week. It too, has turned into a very informative piece on where the research is in the US, and how they want to tackle the issue. I am happy to say that I support this institute, however, I am not fully convinced that the direction they are stating here in the article is what I would offer my body up for "guinea pig" status. Some say I have been a "guinea pig" in a sense having undergone my stem cell treatment. Perhaps, and I would do it again, even allowing a more in depth sort of administration in the future for just such a response. However, I continue to do my research, reading, and understanding the risks vs. benefits of this venture. I am still a very firm believer that at this particular phase of my life, this is my mission!! To help move the science along so that the next generation of Type I's, and any other disease that can benefit from stem cell treatments, not to mention what it does just to keep us in a better form given what age does to us on the norm, i.e., my skin, and what my daughter refers to as my "lack of hail damage" since my treatment .... LOL..... this sort of irritates her at the tender age of 22.
So ... with that small update on the fact that I am still alive, still working more than I want, still caring for my father, and trying to keep up in the area in which I find true satisfaction, "stemmies," and continuing to read and pose questions to those in positions of research and hoping to open the minds of those such as the person who responded to the DRI question as BS!!! This person, in my opinion has NEVER experienced living with Type I, or any other disease in which lives quality is a daily challenged. As I stated in my response to this person, I would trade places with you any time to give you 40 years of what you refer to as "don't exist" BS. It is the mind set of people like this that send me into a frame of mind that I can't believe some people feel that it is ok for THEM to play, judge and jury. I am all for freedom of speech, but if you don't understand a topic, learn all you can about it before you start throwing rocks. There are millions of people out there waiting on this sort of science/medicine/technology to save their own, or a loved ones life. How would you feel if we decided we didn't care or believe in what could save yours?? As one of my favorite songs indicates in lyrics "Walk a Mile in my shoes!!"
https://www.facebook.com/notes/diabetes-research-institute/dri-answers-stem-cell-question-part-1/10150729267015052
(The above link may have to have a Facebook account, if you are not on FB, try going to the DRI website directly, I was told it is posted on the website as well with Part 2 to be posted on Thursday 8/4)
http://investorstemcell.com/stem-cell-research/stemgenex%E2%84%A2-says-treatment-for-multiple-sclerosis-lies-within-the-patient/
The above link is a recent release from Stem Genex. They are expanding in such a positive way and hopefully will have some major University connections to brag about soon. Again, I want to be the "guinea pig" here ... LOL ....I have a special reason for wanting to do this, and my daughter and I are believers that I can make a difference in the thinking of those who "don't believe."
I hope you enjoy today's reads and have a wonderful week!!!
Thanks for following!!!
Peace and Light,
et
It seems as it has been a while since my last post. Life has had me busy. Work has required OT which really takes its toll on me. The last two weeks has had me in close to 60 hours/week, and that doesn't include the work I do from home for a private neuropsychologist. Which means that this weekend, my house looks like a tornado has blown through and I just don't have the energy to wipe it all out. Oh, where, oh where did my life go wrong??? I would love to have a maid, yard boy, and even a pool boy .... lol ... but need that pool first!!! I certainly would feel better on a regular basis if I had a body of water to work in.
Ok, well enough of that whining!! Sleep has not been so great this past week. Not because I don't feel well, but because it is monsoon season here in Arizona and my dog has become a rather neurotic, paranoid baby this season where thunder is concerned. As I type, she is across my lap!!! .... and has been in this sort of position since yesterday afternoon. as storms have been off and on, all 70 lbs of her thinking she is a lap dog!!! When HT gets home from work in just a bit, I am hoping to get some stuff done as the dog can go lay with her for "body contact security!"
I have a couple of articles to post here. I am so happy with the progress the folks at Stem Genex are making in bringing this, in my opinion, miracle, to the forefront on so many levels. Check out the latest release from them on MS patients!!! The benefits of this treatment are so much more than anyone could begin to explain. It just reaffirms my belief in what is possible if the politics would just back off here in the US.
Also, the second printing is that of a question I posed on the Diabetes Research Institutes Facebook page last week. It too, has turned into a very informative piece on where the research is in the US, and how they want to tackle the issue. I am happy to say that I support this institute, however, I am not fully convinced that the direction they are stating here in the article is what I would offer my body up for "guinea pig" status. Some say I have been a "guinea pig" in a sense having undergone my stem cell treatment. Perhaps, and I would do it again, even allowing a more in depth sort of administration in the future for just such a response. However, I continue to do my research, reading, and understanding the risks vs. benefits of this venture. I am still a very firm believer that at this particular phase of my life, this is my mission!! To help move the science along so that the next generation of Type I's, and any other disease that can benefit from stem cell treatments, not to mention what it does just to keep us in a better form given what age does to us on the norm, i.e., my skin, and what my daughter refers to as my "lack of hail damage" since my treatment .... LOL..... this sort of irritates her at the tender age of 22.
So ... with that small update on the fact that I am still alive, still working more than I want, still caring for my father, and trying to keep up in the area in which I find true satisfaction, "stemmies," and continuing to read and pose questions to those in positions of research and hoping to open the minds of those such as the person who responded to the DRI question as BS!!! This person, in my opinion has NEVER experienced living with Type I, or any other disease in which lives quality is a daily challenged. As I stated in my response to this person, I would trade places with you any time to give you 40 years of what you refer to as "don't exist" BS. It is the mind set of people like this that send me into a frame of mind that I can't believe some people feel that it is ok for THEM to play, judge and jury. I am all for freedom of speech, but if you don't understand a topic, learn all you can about it before you start throwing rocks. There are millions of people out there waiting on this sort of science/medicine/technology to save their own, or a loved ones life. How would you feel if we decided we didn't care or believe in what could save yours?? As one of my favorite songs indicates in lyrics "Walk a Mile in my shoes!!"
https://www.facebook.com/notes/diabetes-research-institute/dri-answers-stem-cell-question-part-1/10150729267015052
(The above link may have to have a Facebook account, if you are not on FB, try going to the DRI website directly, I was told it is posted on the website as well with Part 2 to be posted on Thursday 8/4)
http://investorstemcell.com/stem-cell-research/stemgenex%E2%84%A2-says-treatment-for-multiple-sclerosis-lies-within-the-patient/
The above link is a recent release from Stem Genex. They are expanding in such a positive way and hopefully will have some major University connections to brag about soon. Again, I want to be the "guinea pig" here ... LOL ....I have a special reason for wanting to do this, and my daughter and I are believers that I can make a difference in the thinking of those who "don't believe."
I hope you enjoy today's reads and have a wonderful week!!!
Thanks for following!!!
Peace and Light,
et
Thursday, July 14, 2011
Today's Stem Cell issues for me
Hi All!!
I hope this post finds everyone doing well, and making the best of every day!!! I try... even when I am not feeling well. I have a couple of topics I want to hit on over the next week or so that have come up in multiple conversations I have had in just this past week.
Topics will include: What I feel is the US's "propaganda" against allowing stem cells to be used freely. I realize that there is a lot of areas in which they still need some research. However, if we continue to use the term "embryonic" which is a term in which makes feathers fly, and not focus on all the wonderful progress that has been made with the cells we hold in our very own bodies, this will never happen and the pharmaceutical companies will continue to suck us dry monetarily, as well as kill us off with all the unproven side effects that come with so many of these drugs.
HIPPA rules - I choose to share my health information on a certain level, of my own free will. This is my choice as there are so many topics that come about when living with a chronic, potentially fatal disease that never gets talked about, even with our doctors. So why not...??? People need to know that they are not alone, that others suffer with some of the same issues they do. If I can help, in some sort of humorous manner, I am more than willing to put myself out there. I too, for many years, thought I was alone in some of the long-term side effects I was/am suffering with. I also have been thinking about "destiny" the last couple of weeks. I believe that God has/had a much bigger plan for me when I was rejected from the Islet cell transplant trial, and for so many levels.
There was another topic ... LOL ... but I lost track and forgot what it was at the moment. My dog is getting pushy to play. When the mama (me) gets home, it's time to play for a while and me sitting here isn't getting that done.
So .... let's focus on autologous stem cells and what they can do for all of us on SO many levels I can't even begin to tell you.
On my own health front, I am still having issues with the swelling from the lymph node and I am not going to allow another doctor to jump in this pot currently based on "menopause" which I do not believe this has any role. I still await an approval from the insurance company on the PET scan. I am wondering how long I should wait before I contact someone in regard to "negligence"? In the meantime, I have a life to live, and I want to make the best of each day, chipping away at all the things I need to get done, and the things I still want to accomplishment.
Ok ... well ... wishing everyone a wonderful evening!!
Off to play some Frisbee with my buddy.
Peace, Light and Serenity
et
I hope this post finds everyone doing well, and making the best of every day!!! I try... even when I am not feeling well. I have a couple of topics I want to hit on over the next week or so that have come up in multiple conversations I have had in just this past week.
Topics will include: What I feel is the US's "propaganda" against allowing stem cells to be used freely. I realize that there is a lot of areas in which they still need some research. However, if we continue to use the term "embryonic" which is a term in which makes feathers fly, and not focus on all the wonderful progress that has been made with the cells we hold in our very own bodies, this will never happen and the pharmaceutical companies will continue to suck us dry monetarily, as well as kill us off with all the unproven side effects that come with so many of these drugs.
HIPPA rules - I choose to share my health information on a certain level, of my own free will. This is my choice as there are so many topics that come about when living with a chronic, potentially fatal disease that never gets talked about, even with our doctors. So why not...??? People need to know that they are not alone, that others suffer with some of the same issues they do. If I can help, in some sort of humorous manner, I am more than willing to put myself out there. I too, for many years, thought I was alone in some of the long-term side effects I was/am suffering with. I also have been thinking about "destiny" the last couple of weeks. I believe that God has/had a much bigger plan for me when I was rejected from the Islet cell transplant trial, and for so many levels.
There was another topic ... LOL ... but I lost track and forgot what it was at the moment. My dog is getting pushy to play. When the mama (me) gets home, it's time to play for a while and me sitting here isn't getting that done.
So .... let's focus on autologous stem cells and what they can do for all of us on SO many levels I can't even begin to tell you.
On my own health front, I am still having issues with the swelling from the lymph node and I am not going to allow another doctor to jump in this pot currently based on "menopause" which I do not believe this has any role. I still await an approval from the insurance company on the PET scan. I am wondering how long I should wait before I contact someone in regard to "negligence"? In the meantime, I have a life to live, and I want to make the best of each day, chipping away at all the things I need to get done, and the things I still want to accomplishment.
Ok ... well ... wishing everyone a wonderful evening!!
Off to play some Frisbee with my buddy.
Peace, Light and Serenity
et
Friday, July 8, 2011
This is Amazing
This is AMAZING stuff!!
One step closer to amazing cures.
This article appeared in this mornings Arizona Republic newspaper on the recent cure of a cancerous trachea...... with stem cells from the patients own body. My kind of enthusiasm and passion.
http://www.azcentral.com/arizonarepublic/news/articles/2011/07/08/20110708windpipe0708.html
FYI - I was diagnosed at the Children's Hospital in Boston back in October 1972.
Have a wonderful weekend!!
Peace, Light, and Serenity!!
et
One step closer to amazing cures.
This article appeared in this mornings Arizona Republic newspaper on the recent cure of a cancerous trachea...... with stem cells from the patients own body. My kind of enthusiasm and passion.
http://www.azcentral.com/arizonarepublic/news/articles/2011/07/08/20110708windpipe0708.html
FYI - I was diagnosed at the Children's Hospital in Boston back in October 1972.
Have a wonderful weekend!!
Peace, Light, and Serenity!!
et
Monday, July 4, 2011
Food for Thought
http://www.msnbc.msn.com/id/43631577/ns/health-aging/
The above article, is in part, some of the benefits I did not expect to experience with my treatment, all falling into this science.
No, I have no desire to live to be 125-150 years old!!! But ... I do have a dream to live a few more, 10-20 years, with a whole lot less deterioration and complications of my Type I diabetes. So, in my opinion, this science, modality, medicine, call it whatever you want (as this is what the US is doing anyway in regard to the application of such) it is all in the language. If we can get past the political, bureaucratic language that seems to go hand-in-hand in the US, this sort of medicine can come into the forefront .... FOR EVERYONE!!!
Food for thought on this 235th Independence Day!!!
Happy 4th!!!
Peace, Light and Serenity!!
et
Sunday, July 3, 2011
A question to my readers
I seem to have a lot of foreign readers (thank you), and my question is particularly to those reading from Russia. Is the science/medical use of stem cells happening in Russia? Can anyone tell me how and where this is being done?
Thanks in advance for any info sent my way!!
Peace, Light and Serenity!
et
Thanks in advance for any info sent my way!!
Peace, Light and Serenity!
et
Saturday, July 2, 2011
In response to the question ...
Is Stem Genex reputable?
In looking through the stats that go along with my blog here, I noticed that there were inquiries through search engines, in which the question was asked as to if Stem Genex was reputable...??
My response to this question .... Absolutely, without a doubt!!!
I can honestly tell you, I spent a good 6-7 months weeding through a good many companies, doctors, etc. that claimed to do the impossible in regard to stem cells, and the costs that went along with these procedures. I made many phone calls, asked a lot of questions, my gut helped in several of these encounters. To keep my mind in check, if it doesn't feel right in your gut then NO, RED FLAG, TOO GOOD TO BE TRUE, etc. should keep anyone researching for a line of defense in their health care on their toes for legit, and reputable. It can be a difficult time, as I know I wanted to get all excited and just go with it, and then after a phone call, it just didn't feel right, and on many of my calls for information to other providers, the cost usually became a huge red flag, as I know the science, and I had a feeling that something just wasn't right with a couple of these "agencies." The promise was WAY too much, and so was the cost of the promise. Stem Genex, a subsidiary of the International Stem Cell Institute, was upfront with me, and very caring, from the very first contact. It was just a good feeling from the start, and it proved true with the planning of my treatment, and the follow up I have received to see how things are progressing.
I went with the International Stem Cell Institutes's, Stem Genex, because of the caring, straight-forward communication given the nature of the treatments, and those looking to have it done and why. I was, as I have stated many times prior, a believer in the science prior to my treatment. I can without any hesitation, tell you all that my experience with this company undergoing the treatment with a patient advocate at my side the entire time, ready and willing to answer any questions, as well as the treatment I received after treatment in follow up conversations. These people, this company, is genuine, built on passion and personal knowledge of the science. I would recommend Stem Genex, without reservation, to anyone I knew to undergo this treatment for their issues, whatever they may be.
My mother used to tell me the "best form of advertisement was word-of-mouth." My mouth is big, and when something is worth shouting, I try my best to overcome the negative and shout the positives. So for those inquiring via the Internet as to if this is a legitimate company, I would have to say, YES!!! My experience has been nothing short of miraculous.
Enjoy the weekend!!
Peace, Light and Serenity
et
In looking through the stats that go along with my blog here, I noticed that there were inquiries through search engines, in which the question was asked as to if Stem Genex was reputable...??
My response to this question .... Absolutely, without a doubt!!!
I can honestly tell you, I spent a good 6-7 months weeding through a good many companies, doctors, etc. that claimed to do the impossible in regard to stem cells, and the costs that went along with these procedures. I made many phone calls, asked a lot of questions, my gut helped in several of these encounters. To keep my mind in check, if it doesn't feel right in your gut then NO, RED FLAG, TOO GOOD TO BE TRUE, etc. should keep anyone researching for a line of defense in their health care on their toes for legit, and reputable. It can be a difficult time, as I know I wanted to get all excited and just go with it, and then after a phone call, it just didn't feel right, and on many of my calls for information to other providers, the cost usually became a huge red flag, as I know the science, and I had a feeling that something just wasn't right with a couple of these "agencies." The promise was WAY too much, and so was the cost of the promise. Stem Genex, a subsidiary of the International Stem Cell Institute, was upfront with me, and very caring, from the very first contact. It was just a good feeling from the start, and it proved true with the planning of my treatment, and the follow up I have received to see how things are progressing.
I went with the International Stem Cell Institutes's, Stem Genex, because of the caring, straight-forward communication given the nature of the treatments, and those looking to have it done and why. I was, as I have stated many times prior, a believer in the science prior to my treatment. I can without any hesitation, tell you all that my experience with this company undergoing the treatment with a patient advocate at my side the entire time, ready and willing to answer any questions, as well as the treatment I received after treatment in follow up conversations. These people, this company, is genuine, built on passion and personal knowledge of the science. I would recommend Stem Genex, without reservation, to anyone I knew to undergo this treatment for their issues, whatever they may be.
My mother used to tell me the "best form of advertisement was word-of-mouth." My mouth is big, and when something is worth shouting, I try my best to overcome the negative and shout the positives. So for those inquiring via the Internet as to if this is a legitimate company, I would have to say, YES!!! My experience has been nothing short of miraculous.
Enjoy the weekend!!
Peace, Light and Serenity
et
Happy 4th!!
HAPPY 4th America!!
Independence .... Please remember all of those who have sacrificed to allow us this privilege. I like to think of it as my ability to "hold my own." It has also been said I have too much of it,
Independence .... something I feel I was raised to believe I have the power to induce. With this power, I have a lot to consider on this, the second Independence Day, as well as my birthday, without my mother. It was 2 years ago this weekend that I dove into finding and applying to take part in a clinical trial to help extend my life. As we all know, I was rejected from this aspect of looking for a cure. That was a devastating blow to me. However, I did not give up, in fact, I believe that although the stem cell treatment in which I underwent in February of this year, is not a cure, YET, it is and has the potential to be the underlying process in which health can be regained. I experienced, in spite of the health issues I have dealt with since February, beginning with the pneumonia, SO many more positives than negatives with the receipt of this treatment. As with anything that takes a long time to deteriorate, one cannot expect it to rejuvenate in one treatment. So ... I will be planning to undergo it again. I also believe, that had I not had the "stemmies," I would, without a doubt, be in a whole lot worse shape, if not dead already.
As I contemplate the undergoing of the treatment again .... I will continue to advocate for people who can benefit from this treatment, and that, to me, is such a wide array of people with a wide array of afflictions. This is our HOPE for future cures.
Also, I am still in chaos as far as my insurance company denying the request to undergo a biopsy and/or the PET scan. So ... we all know what I am contemplating there. I WILL NOT LAY DOWN, for these sorts of establishments. They are calling the shots on MY life, based on their MONETARY INTAKE, and that is the big picture where I sit currently. I will not lay down and die without a fight, I have overcome way too much in my life, health-wise, as well personal situations, to be taken out on bureaucratic BS!!!
With that being said, it is Independence Day .... stand up for what you believe in, and don't forget those who fought and sacrificed the ultimate for us to have that independence. Happy 4th!!
Saturday, June 25, 2011
Another very promising article
Thanks to a cousin for sharing this very interesting article.
Would love to hear some feedback on this article. It is the first I had heard of anything like this.
http://www.bloomberg.com/news/2011-06-24/generic-tuberculosis-medicine-shows-promise-for-reversing-type-1-diabetes.html
Peace, Light and Serenity
et
PS: I forgot to mention there was yet another snag in the scan. It was scheduled on Tuesday and cancelled on Weds due to an apparent oversight on someones part, the insurance company denied the test, scan and/or biopsy. Am thinking that perhaps the insurance company will also be a target of a suit if it is possible, and without a doubt if there is something life altering found.
Would love to hear some feedback on this article. It is the first I had heard of anything like this.
http://www.bloomberg.com/news/2011-06-24/generic-tuberculosis-medicine-shows-promise-for-reversing-type-1-diabetes.html
Peace, Light and Serenity
et
PS: I forgot to mention there was yet another snag in the scan. It was scheduled on Tuesday and cancelled on Weds due to an apparent oversight on someones part, the insurance company denied the test, scan and/or biopsy. Am thinking that perhaps the insurance company will also be a target of a suit if it is possible, and without a doubt if there is something life altering found.
Tuesday, June 21, 2011
Just some trivia info
Good Morning again ...
I just have to tell you all .. today, 6/21/11, the first day of summer, the sun moving into "Crab" mode ( I am born under this sign) .... and ..... as of today I believe my page will hit the 5000 hit mark!!! I sit here and shake my head in amazement as I had no idea when I started this blogging process that anyone, never mind people would hit it 5000 times to date. This really makes me ponder ... LOL ... who are all these readers, what keeps them coming back? I know some read anonymously, that is fine, I have my 14 registered followers, who for the most part, also read anonymously unless they leave a comment. THANK YOU!!!
Again, it just blows me away that anyone really cares about my ranting and raving, and how it affects my life, and health care ... but, I really think that if my ranting peaks only a few minds, than I have done a great service on a small level. I am, however, only one voice. A "big mouth" as my mom called me at times, especially if I was passionately upset .... lol .... if I believe in something, I can get loud, and I do consider myself passionate about the things I have been voicing in recent months. I am going to set up my cause this month on the FB page as "stemmies" .... I need more stemmies ... we all need stemmies!!! We need to get this science to the forefront of medicine, and keep the costs from the government and those that see nothing but $$ and not potential cures and treatments.
Ok ... well ... I wish there was a way for me to figure out who my 5000th reader would be .... just to recognize you here on the blog. Something fun for a change ... yes, I can be the ultimate goof-ball ... or as my daughte is always reminding me ... I am certainly proud to "fly my freak flag!!" :D
A wonderful 1st day of Summer to everyone!!!
Peace, Light, and Tranquility
et
I just have to tell you all .. today, 6/21/11, the first day of summer, the sun moving into "Crab" mode ( I am born under this sign) .... and ..... as of today I believe my page will hit the 5000 hit mark!!! I sit here and shake my head in amazement as I had no idea when I started this blogging process that anyone, never mind people would hit it 5000 times to date. This really makes me ponder ... LOL ... who are all these readers, what keeps them coming back? I know some read anonymously, that is fine, I have my 14 registered followers, who for the most part, also read anonymously unless they leave a comment. THANK YOU!!!
Again, it just blows me away that anyone really cares about my ranting and raving, and how it affects my life, and health care ... but, I really think that if my ranting peaks only a few minds, than I have done a great service on a small level. I am, however, only one voice. A "big mouth" as my mom called me at times, especially if I was passionately upset .... lol .... if I believe in something, I can get loud, and I do consider myself passionate about the things I have been voicing in recent months. I am going to set up my cause this month on the FB page as "stemmies" .... I need more stemmies ... we all need stemmies!!! We need to get this science to the forefront of medicine, and keep the costs from the government and those that see nothing but $$ and not potential cures and treatments.
Ok ... well ... I wish there was a way for me to figure out who my 5000th reader would be .... just to recognize you here on the blog. Something fun for a change ... yes, I can be the ultimate goof-ball ... or as my daughte is always reminding me ... I am certainly proud to "fly my freak flag!!" :D
A wonderful 1st day of Summer to everyone!!!
Peace, Light, and Tranquility
et
Points to Ponder today ...
Good Morning my faithful followers!!!
This attached link to an article on the MSNBC website this morning ..... something to ponder.
The UN ... worldwide ... what is wrong with this picture?? Why is this happening?? Why do we allow this to continue?? Good people are dying everyday because they don't fall into the proper economic class ... RICH!!
Would love to hear others comments on this topic as it is a real issue. If you are healthy, lucky you, if you have health issues/problems/disease, I feel your pain. If you are healthy consider this ... do you have any idea that it only takes a moment, only a moment, a split second and you could lose everything, and I'm not referring to just your health. Look at the costs, you have a nest egg, lucky you!!! Watch how fast it can get depleted ... watch how fast those who claim to love you run in the other direction for fear you may such their nest egg dry .... this has to stop. Everyone needs and deserves medical care.
http://www.msnbc.msn.com/id/43473027/ns/health-health_care/
Enjoy the read and have a wonderful day!!!
I am back to work this morning ... hope this goes well. I need to learn a new method of keeping calm in stressful situations, unfortunately, the entire organization is at a stress level out of control.
Thanks again to all who follow, send love and prayers!!!
Peace, Light, and Tranquility
et
This attached link to an article on the MSNBC website this morning ..... something to ponder.
The UN ... worldwide ... what is wrong with this picture?? Why is this happening?? Why do we allow this to continue?? Good people are dying everyday because they don't fall into the proper economic class ... RICH!!
Would love to hear others comments on this topic as it is a real issue. If you are healthy, lucky you, if you have health issues/problems/disease, I feel your pain. If you are healthy consider this ... do you have any idea that it only takes a moment, only a moment, a split second and you could lose everything, and I'm not referring to just your health. Look at the costs, you have a nest egg, lucky you!!! Watch how fast it can get depleted ... watch how fast those who claim to love you run in the other direction for fear you may such their nest egg dry .... this has to stop. Everyone needs and deserves medical care.
http://www.msnbc.msn.com/id/43473027/ns/health-health_care/
Enjoy the read and have a wonderful day!!!
I am back to work this morning ... hope this goes well. I need to learn a new method of keeping calm in stressful situations, unfortunately, the entire organization is at a stress level out of control.
Thanks again to all who follow, send love and prayers!!!
Peace, Light, and Tranquility
et
Subscribe to:
Posts (Atom)