Good Morning!!
I would like to share this link to a fundraising campaign set up to help me with my treatments.
My daughter had set up a GoFundMe page which has since been taken down due to no activity after first 30 days.
HelpHOPELive is a nonprofit who helps with medical issues/transplants and a 30 year proven record. We all know how I feel about my stem cell treatments, and the positive effects I have had from them. HOWEVER, until we can bring them to the mainstream, and insurance companies consider coverage of them ... well, for me, it is fund raise or deteriorate to death.
PLEASE, consider sharing and/or donating. All funds go directly and only to medical treatments.
Any amount big or small helps!!! I am forever grateful for the help and continuance of spreading the word on these treatments.
https://helphopelive.org/campaign/10395
Be well ... and in good health!!!
et
Wednesday, February 3, 2016
Tuesday, January 26, 2016
Stay tuned ... It's coming ...
Greetings to all!!
Allow me to wish everyone a Happy, Healthy 2016!!
Stay tuned ... it's almost done.
I have turned the completion of my book into a labor of love.
It has been both healing and very therapeutic as far as my brain injury and my passion for cure.
It should be ready to go to the publisher in 4-6 weeks (mid-March is my goal).
I look forward to sharing my story and the encounters I have had with healthcare issues over the years.
Thank you to all who continue to stop by here and see what is happening.
Again, I apologize for not being more diligent, but focus on more than one thing at a time is no longer part of my repertoire'
Be well!!
et
Allow me to wish everyone a Happy, Healthy 2016!!
Stay tuned ... it's almost done.
I have turned the completion of my book into a labor of love.
It has been both healing and very therapeutic as far as my brain injury and my passion for cure.
It should be ready to go to the publisher in 4-6 weeks (mid-March is my goal).
I look forward to sharing my story and the encounters I have had with healthcare issues over the years.
Thank you to all who continue to stop by here and see what is happening.
Again, I apologize for not being more diligent, but focus on more than one thing at a time is no longer part of my repertoire'
Be well!!
et
Wednesday, October 14, 2015
A MUST WATCH
Greetings ...
As I have always stated, here and in person, for anyone looking into stem cell treatments. PLEASE, PLEASE, PLEASE do your research. I did almost a year of investigating before deciding to do my treatments with StemGenex out of California.
Also, I am happy to report that I see more and more clinical trials involving the use of stem cells on the www.clinicaltrials.gov .... again, do your research!!! What are you will to put yourself and your body through?? Are you physically and emotionally prepared for whatever the outcome may be??
I knew going in, it was a considerable risk. I had my pros and cons list. I knew it was not a cure for me or my Type 1 status. I am happy to report, that considering my accident and all the therapies and relearning and worse, the applying of those tools to my everyday life ... is still a challenge.
I told my daughter just yesterday, that this will be my last fundraising effort to come up with the cash to undergo another treatment. It is not fair for me to keep asking of those I know and love, and many I don't, to consider funding my treatment. I am hoping with all I have left, to get my story published. With that, I hope to not only be able to sustain myself for a few more years, but would very much like to give back and hope to help others to receive treatment and find a way to make my voice be heard on the advocacy front.
I have had some really wonderful outcomes from my previous treatments. The brain, it controls every aspect of our being, and the workings of every organ system we have. So ... my accident and all the chaos that has followed took a toll on some of my first improvements. My last treatment involved placing some of my cells into my sinus passages so that they had a direct line to my brain, along with the help of manitol. A pharmaceutical that allows the crossing of the blood brain barrier. I was astounded to experience some of the healing that has gone on. However, I was also, in the past year diagnosed with full blown psoriatic arthritis. Now, I had osteoarthritis prior to my accident ... so ... you can call it what you want, but my bones often feel as though they have been tossed in a meat grinder ... or as I told a friend, some days I believe it feels as if I was being crucified.
With that being said of my update ... the following link is for an upcoming 60 Minutes AU (Austrailia) finally bringing a man from Canada to the limelight. HE IS NOT A GOOD PERSON!!!
I know of several people who have been taken by this man and his company for money in upwards of $45k a patient .... often with little to no results. I encountered this Regenetek out of Canada back in 2009/10 when I was doing my research for my own treatments. My gut didn't feel right with it ... and man, am I happy I dodged that bullet!!! He has placed his focus on MS patients and the kicker to this story is that HE IS NOT EVEN A DOCTOR ... of which he claims he is. Started as a lumber yard guy, his claims have all proven to be bogus ... Please watch, and be aware of people like this in the world.
http://www.9jumpin.com.au/show/60minutes/
Thanks to all for your continued reading of my thoughts, hopes and wishes for a healthier world.... Ethically!!!
Peace and Light!!
et
As I have always stated, here and in person, for anyone looking into stem cell treatments. PLEASE, PLEASE, PLEASE do your research. I did almost a year of investigating before deciding to do my treatments with StemGenex out of California.
Also, I am happy to report that I see more and more clinical trials involving the use of stem cells on the www.clinicaltrials.gov .... again, do your research!!! What are you will to put yourself and your body through?? Are you physically and emotionally prepared for whatever the outcome may be??
I knew going in, it was a considerable risk. I had my pros and cons list. I knew it was not a cure for me or my Type 1 status. I am happy to report, that considering my accident and all the therapies and relearning and worse, the applying of those tools to my everyday life ... is still a challenge.
I told my daughter just yesterday, that this will be my last fundraising effort to come up with the cash to undergo another treatment. It is not fair for me to keep asking of those I know and love, and many I don't, to consider funding my treatment. I am hoping with all I have left, to get my story published. With that, I hope to not only be able to sustain myself for a few more years, but would very much like to give back and hope to help others to receive treatment and find a way to make my voice be heard on the advocacy front.
I have had some really wonderful outcomes from my previous treatments. The brain, it controls every aspect of our being, and the workings of every organ system we have. So ... my accident and all the chaos that has followed took a toll on some of my first improvements. My last treatment involved placing some of my cells into my sinus passages so that they had a direct line to my brain, along with the help of manitol. A pharmaceutical that allows the crossing of the blood brain barrier. I was astounded to experience some of the healing that has gone on. However, I was also, in the past year diagnosed with full blown psoriatic arthritis. Now, I had osteoarthritis prior to my accident ... so ... you can call it what you want, but my bones often feel as though they have been tossed in a meat grinder ... or as I told a friend, some days I believe it feels as if I was being crucified.
With that being said of my update ... the following link is for an upcoming 60 Minutes AU (Austrailia) finally bringing a man from Canada to the limelight. HE IS NOT A GOOD PERSON!!!
I know of several people who have been taken by this man and his company for money in upwards of $45k a patient .... often with little to no results. I encountered this Regenetek out of Canada back in 2009/10 when I was doing my research for my own treatments. My gut didn't feel right with it ... and man, am I happy I dodged that bullet!!! He has placed his focus on MS patients and the kicker to this story is that HE IS NOT EVEN A DOCTOR ... of which he claims he is. Started as a lumber yard guy, his claims have all proven to be bogus ... Please watch, and be aware of people like this in the world.
http://www.9jumpin.com.au/show/60minutes/
Thanks to all for your continued reading of my thoughts, hopes and wishes for a healthier world.... Ethically!!!
Peace and Light!!
et
Monday, October 12, 2015
Greeting from your long lost host .....
WOW ....
I have not been out here (on the blog for eons) for some time. In large part due to my crappy memory.
Anyway ... Greetings, I am still alive!!!
I come with two motives.
One ~ peeps are still reading me!!!! I have been contacted several times, just in recent weeks, by enquiring minds .... KUDOS to you!!! As I have always stated, do your research, talk to as many people as you can ... ask questions. It's your body, your health!!! I am still more than happy to talk of my experiences with StemGenex ... and that is where my second motive come in.
PLEASE PLEASE PLEASE .... see the attached link for GoFundMe set up by my daughter recently.
I am humbled, a little embarrassed, but still plugging away as sad as I find it on certain days ... a LOT has transpired over the past couple of years and you can all look for it when my book gets published ... I am hoping and praying I can get the story told .... well ... you know, anything could happen.
https://www.gofundme.com/9y5z6m48
So ... I hope this note comes when people are still researching their options. We must start speaking loudly for these treatments .... Our health, Our call!!!
Be well, and continue the quest for better health, quality of life!!
With much appreciation and gratitude for the continued reads.
et
I have not been out here (on the blog for eons) for some time. In large part due to my crappy memory.
Anyway ... Greetings, I am still alive!!!
I come with two motives.
One ~ peeps are still reading me!!!! I have been contacted several times, just in recent weeks, by enquiring minds .... KUDOS to you!!! As I have always stated, do your research, talk to as many people as you can ... ask questions. It's your body, your health!!! I am still more than happy to talk of my experiences with StemGenex ... and that is where my second motive come in.
PLEASE PLEASE PLEASE .... see the attached link for GoFundMe set up by my daughter recently.
I am humbled, a little embarrassed, but still plugging away as sad as I find it on certain days ... a LOT has transpired over the past couple of years and you can all look for it when my book gets published ... I am hoping and praying I can get the story told .... well ... you know, anything could happen.
https://www.gofundme.com/9y5z6m48
So ... I hope this note comes when people are still researching their options. We must start speaking loudly for these treatments .... Our health, Our call!!!
Be well, and continue the quest for better health, quality of life!!
With much appreciation and gratitude for the continued reads.
et
Thursday, November 13, 2014
Going to try and come back
Hello to all!!
It has been a long 3 years ... since my accident and much has transpired. Would you believe that it is all still causing major stress and irritation in my life? My health has declined, my spirit has had many ups and downs. But I'm still doing my best to fight.
It is time for me to put some of my therapies to action and see if I can come back and share my experience and my continued following of the cure.
I still believe we are close. However, and this is the part I hate most .... the politics involved.
So ... with this little intro, I hope everyone is well and those who were followers come back. Some of my biggest "fans" and support system have gone to follow and guide me on the "other side" ....
So which road shall I take .... stay tuned.
Peace and wellness to all
~et~
It has been a long 3 years ... since my accident and much has transpired. Would you believe that it is all still causing major stress and irritation in my life? My health has declined, my spirit has had many ups and downs. But I'm still doing my best to fight.
It is time for me to put some of my therapies to action and see if I can come back and share my experience and my continued following of the cure.
I still believe we are close. However, and this is the part I hate most .... the politics involved.
So ... with this little intro, I hope everyone is well and those who were followers come back. Some of my biggest "fans" and support system have gone to follow and guide me on the "other side" ....
So which road shall I take .... stay tuned.
Peace and wellness to all
~et~
Saturday, May 11, 2013
One of my favorites
Hi ..
While packing my belongings I came across some long put away CDs ...
and began to listen while attempting to look fluid. James Taylor is probably one of the only artists I have ever seen ... (many times, 1st in 1977 @ Harvard Stadium .. (anyone remember this?) and he had a whole LOT more hair); he sounds better in person than on any album!!!
This particular tune has been a favorite of mine for many, many years. Along with that, JT's music speaks from the heart ... and for that, I have always found him soothing in times of ... well ... in a lot of times. :P
http://www.youtube.com/watch?v=uokWBMU02Ug
Recorded in Rotterdam ... in one of my favorite countries too!!!
ENJOY .... and a wonderful weekend to all!!!
If you love 'em, tell 'em!!!
Peace and Light
~et~
While packing my belongings I came across some long put away CDs ...
and began to listen while attempting to look fluid. James Taylor is probably one of the only artists I have ever seen ... (many times, 1st in 1977 @ Harvard Stadium .. (anyone remember this?) and he had a whole LOT more hair); he sounds better in person than on any album!!!
This particular tune has been a favorite of mine for many, many years. Along with that, JT's music speaks from the heart ... and for that, I have always found him soothing in times of ... well ... in a lot of times. :P
http://www.youtube.com/watch?v=uokWBMU02Ug
Recorded in Rotterdam ... in one of my favorite countries too!!!
ENJOY .... and a wonderful weekend to all!!!
If you love 'em, tell 'em!!!
Peace and Light
~et~
Friday, May 3, 2013
This is SUCH a promising story
I love this story!!
This is facinating science/medicine and I wish Hannah all the best life has to offer!!!
http://www.nytimes.com/2013/04/30/science/groundbreaking-surgery-for-girl-born-without-windpipe.html?pagewanted=all&_r=1&
and with this posting, I too, am moving forward to attempt a new life ... a new way of life, and it is far from over due for me to move on. Threads have been severed, my time has come to finish them and wear my threads proudly.
Enjoy the weekend!!
Peace and Light
~et~
This is facinating science/medicine and I wish Hannah all the best life has to offer!!!
http://www.nytimes.com/2013/04/30/science/groundbreaking-surgery-for-girl-born-without-windpipe.html?pagewanted=all&_r=1&
and with this posting, I too, am moving forward to attempt a new life ... a new way of life, and it is far from over due for me to move on. Threads have been severed, my time has come to finish them and wear my threads proudly.
Enjoy the weekend!!
Peace and Light
~et~
Tuesday, April 30, 2013
It's all free-falling from here
Good Evening ... world;
What a difference 24 hours can make in ones life.
I got hit a multiple of times ... sort of like getting hit behind the knees ( who remembers doing this to others? haha) I'm still moving and I know I am sitting down.
I can't begin to explain some of the happenings in just the past week ... then add today, which apparently began at 7:50 with a process server. Then a brain therapy session, (i'm still not sure what the hell we are suppose to be accomplishing here)
I'm going to hit the pillows after a deep, deep shut off of my brain and hope for a better day tomorrow.
My mantra through this entire "ride" has been, if the opportunity is given to me to awake each morning, the least I can do is give the world my best shot. However ..... (you'll all just have to wait for the series) ... my right hand (dominant mind you) may be permanently damaged in my function. Hmmmm .... chock up another one for the "systems."
On that note ... I am going to lay my head down and envision big, warm, solid arms to hold me in rest.
Peace and Light to all!!
Be good to each other ... please.
~ et ~
What a difference 24 hours can make in ones life.
I got hit a multiple of times ... sort of like getting hit behind the knees ( who remembers doing this to others? haha) I'm still moving and I know I am sitting down.
I can't begin to explain some of the happenings in just the past week ... then add today, which apparently began at 7:50 with a process server. Then a brain therapy session, (i'm still not sure what the hell we are suppose to be accomplishing here)
I'm going to hit the pillows after a deep, deep shut off of my brain and hope for a better day tomorrow.
My mantra through this entire "ride" has been, if the opportunity is given to me to awake each morning, the least I can do is give the world my best shot. However ..... (you'll all just have to wait for the series) ... my right hand (dominant mind you) may be permanently damaged in my function. Hmmmm .... chock up another one for the "systems."
On that note ... I am going to lay my head down and envision big, warm, solid arms to hold me in rest.
Peace and Light to all!!
Be good to each other ... please.
~ et ~
Sunday, April 28, 2013
I'm wondering ....
Hello,
Found this cool, interesting (for the parts I got) article on the inflamatory response.
All I can wonder is ... especially if you see BOTH of my poor lil hands today :(
They resemble midgit catchers mitts .... it has been another morning of dropping s$%^!!
http://www.sciencedaily.com/releases/2012/04/120402162546.htm
I SO NEED to pump up my "stemmie" supply!!! I hate it when it is your own body rendering attack.
Wishing all a peaceful and stress free week!!!
Peace and Light
~ et ~
Found this cool, interesting (for the parts I got) article on the inflamatory response.
All I can wonder is ... especially if you see BOTH of my poor lil hands today :(
They resemble midgit catchers mitts .... it has been another morning of dropping s$%^!!
http://www.sciencedaily.com/releases/2012/04/120402162546.htm
I SO NEED to pump up my "stemmie" supply!!! I hate it when it is your own body rendering attack.
Wishing all a peaceful and stress free week!!!
Peace and Light
~ et ~
Saturday, April 27, 2013
I'm thinking the time has come ...
Hey All!
Now, for most, the below task would be fairly simple.
I just tossed the flipping thing as my right hand, my right eye, my brain ....
I have no clue what is wired to what these days ...
In any event, I have done nothing but drop things today ... (may have overdone yesterday) and my right hand/forearm/ and today, all the way up into my shoulder .... which means only one thing ....
I can't wait for justice to prevail, I will be calling my all time favorite ortho guy on Monday. I guess it's time for me to pay through the nose for someone to talk to me in that southern charm tone ... LOL .... yeah, Go ahead, cut into me, make me scream in pain, lol ... just allow me to use a better portion of my hand before the nerve damage takes over and I lose function all together. I trust this man explicitly .... I am right-handed after all, and these past few months, each day I lose more of the function, and the burning pulling of something in there that shoots clean up to my shoulder, escepally at night.
Anyway ... I'm going to kick my task list to non-existent today and just be my new found ADD-self!!!
At least I am laughing .... I have too, I can't believe some of the completely stupid things I am finding myself doing .... peanut butter in the freezer ... something else that should have been in cupboard, was in the closet .... crazy and frustrating as I waste a lot of time roaming around looking for stuff .... at least I get my exercise. So .... let's play ... you can chime in with your "humorous comments" .... wonder how many of you would say the same things I tell me and then bust out laughing .....
Now, for most, the below task would be fairly simple.
I just tossed the flipping thing as my right hand, my right eye, my brain ....
I have no clue what is wired to what these days ...
In any event, I have done nothing but drop things today ... (may have overdone yesterday) and my right hand/forearm/ and today, all the way up into my shoulder .... which means only one thing ....
I can't wait for justice to prevail, I will be calling my all time favorite ortho guy on Monday. I guess it's time for me to pay through the nose for someone to talk to me in that southern charm tone ... LOL .... yeah, Go ahead, cut into me, make me scream in pain, lol ... just allow me to use a better portion of my hand before the nerve damage takes over and I lose function all together. I trust this man explicitly .... I am right-handed after all, and these past few months, each day I lose more of the function, and the burning pulling of something in there that shoots clean up to my shoulder, escepally at night.
Anyway ... I'm going to kick my task list to non-existent today and just be my new found ADD-self!!!
At least I am laughing .... I have too, I can't believe some of the completely stupid things I am finding myself doing .... peanut butter in the freezer ... something else that should have been in cupboard, was in the closet .... crazy and frustrating as I waste a lot of time roaming around looking for stuff .... at least I get my exercise. So .... let's play ... you can chime in with your "humorous comments" .... wonder how many of you would say the same things I tell me and then bust out laughing .....
Riding the wave ....
Peace, Light and a Great weekend to all.
et
Tuesday, April 23, 2013
This STOKES my enthusiasm
Hi ~
I just wanted to post this news article on my friends with StemGenex ....
Collaboration is how it gets done folks.
http://www.prnewswire.com/news-releases-test/stemgenex-on-exciting-new-adult-stem-cell-based-therapies-for-auto-immune-diseases-204279071.html
Just makes me feel good, restores some of my fallen faith in humanity. Enjoy the read ~
Peace, Light and Love
et
I just wanted to post this news article on my friends with StemGenex ....
Collaboration is how it gets done folks.
http://www.prnewswire.com/news-releases-test/stemgenex-on-exciting-new-adult-stem-cell-based-therapies-for-auto-immune-diseases-204279071.html
Just makes me feel good, restores some of my fallen faith in humanity. Enjoy the read ~
Peace, Light and Love
et
Friday, April 19, 2013
Prayers for my hometown
Please pray for Boston, my hometown.
Yes, I was born and bred in the Boston burbs.
Today's situation has my loved ones, and friends in a lock down mode, within less than a mile of what is happening today. The entire situation just breaks my heart. I have many, many memories of our Boston Marathon outings, the family fun. I worked, played, and have many friends and loved ones right in this area of current danger ..... The victims of this tragedy are in my thoughts and prayers for strength and faith that they will survive these horrible acts.
My heart is in Boston, as you can take the girl out of the city, but you can't take the city out of her heart.
In Peace and Light
et
Yes, I was born and bred in the Boston burbs.
Today's situation has my loved ones, and friends in a lock down mode, within less than a mile of what is happening today. The entire situation just breaks my heart. I have many, many memories of our Boston Marathon outings, the family fun. I worked, played, and have many friends and loved ones right in this area of current danger ..... The victims of this tragedy are in my thoughts and prayers for strength and faith that they will survive these horrible acts.
My heart is in Boston, as you can take the girl out of the city, but you can't take the city out of her heart.
In Peace and Light
et
Thursday, April 18, 2013
I don't get too excited about much these days
Greetings to my readers, and trolls alike.
This link is to the DRI - BioHub webcast a couple of weeks ago.
Not only did I really enjoy the webcast live, I am going to look forward to watching it again.
This is such an amazing collaboration of passion and science.
http://www.diabetesresearch.org/BioHub-Webcast?srctid=1&erid=1301700&trid=e7b69380-ce0d-4c3e-ae26-fbf0662cbdcc
Enjoy the read!!
In continued peace and light
et
This link is to the DRI - BioHub webcast a couple of weeks ago.
Not only did I really enjoy the webcast live, I am going to look forward to watching it again.
This is such an amazing collaboration of passion and science.
http://www.diabetesresearch.org/BioHub-Webcast?srctid=1&erid=1301700&trid=e7b69380-ce0d-4c3e-ae26-fbf0662cbdcc
Enjoy the read!!
In continued peace and light
et
Sunday, April 14, 2013
Please, don't define my life as "tragic"
Good Sunday to all!!
Again, I apoligize for lack of posting. I am doing my very best to move forward, in life, in recovery from my injuries, as well as trying to maintain some sort of control in regard to my T1.
In conversation with a family member the other day, and a friend or 2 over the past few months, it has been stated that my life appears "tragic" to many. I can't help myself but chuckle at statements like this. My life is not tragic, but any means of the definition ... at least not in my opinion. As a middle schooler, others made similar comments to my daughter, regarding life with me .... again, and she stated this, "she lives with it ... it does not define her!" Out of the mouths of babes.
In relation to the past 12-14 months ... my life has taken a turn that I had never imagined for myself. A complete transformation of sorts ... but in my heart and soul, I am the same person I have always been, just with a weeeeeee bit more challenge. I am doing my best to work my way through all these changes ... and to be honest with you, it is sort of a liberating experience. I am allowing myself the time, and the failures of such, to make my way. I don't know how to put a price on the things I have lost ... that is not my main objective ... I DO, however, want those holding the cards, even though these individuals have done and been in the wrong, i.e., at fault .... to do what is right. I am skeptical at best.
I have learned even more about who I am, and what I am capable of and my compass to aim me in the appropriate direction so that I may move forward in a positive, serene, sort of manner. I know what I like, I know how to enjoy those around me ... and have chosen to surround myself with those who WANT to know me and what makes me get up in the morning .... lol .... I guess what some call "tragic", I call character strengths ... hehehe ... I am looking forward to being able to put my book project into some sort of tangible sort of income and look to helping move the stem cell science to the front of today's healthcare issues. I am sick to death, no pun intended, of the wrong sorts of folks calling the shots on my life ... last time I checked, I did reside in a "free country" .... and I don't feel my take on it, is completely off base.
Anyway ... I am going to take today and tomorrow rather easy ... just trying to finalize some of the last things to rid my surroundings of. I am no different from you, I put my pants on the same way, cope with the same sort of self-doubt, and questions about the future many do, I just do it with obstacles of Type 1, the chronic, potentially fatal disease in which I have lived and dealt with my entire life ... or at least 40 of the last 50, and a brain injury inflicted on me by an individual who thought his actions apparently are of no fault of his own, and that my status has nothing to do with him or his actions. I move forward ... regardless of my "status". I have some really great people in my corner, excellent therapists, going beyond what I believe if the scope of involvement, wanting "what's right" .... and looking out to make sure I am, at least taken care of in terms of covering my expenses in the medical area alone, never mind the "pain and suffering" of it all. I don't know how to put a price on anything like that.
I am off to do some packing of my worldly possesions ... hehehe ... wishing you all a comforting, happy, and relaxing sort of day.
Peace and light
et
Again, I apoligize for lack of posting. I am doing my very best to move forward, in life, in recovery from my injuries, as well as trying to maintain some sort of control in regard to my T1.
In conversation with a family member the other day, and a friend or 2 over the past few months, it has been stated that my life appears "tragic" to many. I can't help myself but chuckle at statements like this. My life is not tragic, but any means of the definition ... at least not in my opinion. As a middle schooler, others made similar comments to my daughter, regarding life with me .... again, and she stated this, "she lives with it ... it does not define her!" Out of the mouths of babes.
In relation to the past 12-14 months ... my life has taken a turn that I had never imagined for myself. A complete transformation of sorts ... but in my heart and soul, I am the same person I have always been, just with a weeeeeee bit more challenge. I am doing my best to work my way through all these changes ... and to be honest with you, it is sort of a liberating experience. I am allowing myself the time, and the failures of such, to make my way. I don't know how to put a price on the things I have lost ... that is not my main objective ... I DO, however, want those holding the cards, even though these individuals have done and been in the wrong, i.e., at fault .... to do what is right. I am skeptical at best.
I have learned even more about who I am, and what I am capable of and my compass to aim me in the appropriate direction so that I may move forward in a positive, serene, sort of manner. I know what I like, I know how to enjoy those around me ... and have chosen to surround myself with those who WANT to know me and what makes me get up in the morning .... lol .... I guess what some call "tragic", I call character strengths ... hehehe ... I am looking forward to being able to put my book project into some sort of tangible sort of income and look to helping move the stem cell science to the front of today's healthcare issues. I am sick to death, no pun intended, of the wrong sorts of folks calling the shots on my life ... last time I checked, I did reside in a "free country" .... and I don't feel my take on it, is completely off base.
Anyway ... I am going to take today and tomorrow rather easy ... just trying to finalize some of the last things to rid my surroundings of. I am no different from you, I put my pants on the same way, cope with the same sort of self-doubt, and questions about the future many do, I just do it with obstacles of Type 1, the chronic, potentially fatal disease in which I have lived and dealt with my entire life ... or at least 40 of the last 50, and a brain injury inflicted on me by an individual who thought his actions apparently are of no fault of his own, and that my status has nothing to do with him or his actions. I move forward ... regardless of my "status". I have some really great people in my corner, excellent therapists, going beyond what I believe if the scope of involvement, wanting "what's right" .... and looking out to make sure I am, at least taken care of in terms of covering my expenses in the medical area alone, never mind the "pain and suffering" of it all. I don't know how to put a price on anything like that.
I am off to do some packing of my worldly possesions ... hehehe ... wishing you all a comforting, happy, and relaxing sort of day.
Peace and light
et
Monday, April 1, 2013
Interesting Article on Gene research and Type 1
I am not going to knock where the science is moving forward faster.
It is a collaborative effort on so many levels, and world-wide attention is bringing
some of the US scientists to light ...
Enjoy the read.
http://www.abc.net.au/news/2013-03-08/wa-researchers-crack-diabetes-testing-code/4560306?section=wa
Peace and Light
et
It is a collaborative effort on so many levels, and world-wide attention is bringing
some of the US scientists to light ...
Enjoy the read.
http://www.abc.net.au/news/2013-03-08/wa-researchers-crack-diabetes-testing-code/4560306?section=wa
Peace and Light
et
Sunday, March 31, 2013
Already in Clinical Trials
This is going to be one to watch.
This could be very promising, and is very interesting.
http://www.rctherapy.net/diabetes-alternative-treatments/
Hope everyone enjoyed a day of uplifting peace.
Peace, Love and Light
et
This could be very promising, and is very interesting.
http://www.rctherapy.net/diabetes-alternative-treatments/
Hope everyone enjoyed a day of uplifting peace.
Peace, Love and Light
et
Tuesday, March 26, 2013
One step forward .... to a big leap!!!
Hi,
Check out this video from the DRI and the information on the BioHub which is an amazing collaboration of science and medicine. THANK YOU to the DRI .... I like to refer to them as my "Dream Team" .... a passion to find a cure.
http://www.diabetesresearch.org/BioHub
Amazing, inspiring, and with my continued hope.
Peace and Light
et
Check out this video from the DRI and the information on the BioHub which is an amazing collaboration of science and medicine. THANK YOU to the DRI .... I like to refer to them as my "Dream Team" .... a passion to find a cure.
http://www.diabetesresearch.org/BioHub
Amazing, inspiring, and with my continued hope.
Peace and Light
et
Sunday, March 24, 2013
WSJ Article
I am not a science fiction fan, not a trekkie, etc.
This is beyond.....and so totally amazing!!!
Enjoy the read.
http://online.wsj.com/article/SB10001424127887323699704578328251335196648.html
peace and light
et
This is beyond.....and so totally amazing!!!
Enjoy the read.
http://online.wsj.com/article/SB10001424127887323699704578328251335196648.html
peace and light
et
There is a season ....
Hello,
Happy Palm Sunday to those who celebrate the faith.
It is, as written, a season of rebirth .... Spring brings new growth, a new outlook.
The dead, die off, the shedding of skin, the leaving of the nest, etc ... all sorts of metaphoric type statements. You get the idea.
I'm sorry I haven't made many "personal" posts in the past months ... not even sure how many it's been.
Here ... is just a tidbit of what my life consists of these days:
Vision therapy
Cognitive therapy
Psychotherapy - to learn and cope with all the life-changing things that occurred in this accident.
Not to mention - I must remain as compliant as possible with doctors I saw all along, my endocrine, my neurologist, my "lady" doc, and an occasional PCP visit. Oh wait, let's add on the loss of my job, my health insurance, my home, my income as of 2 weeks ago, and my baby girl moving away. This happening sent a couple of my providers into a major tizzy. Oh NO ... she is all alone with only the supervision of her dog!!!! The "SYSTEM" in which we are too reside ... sucks!!! From the top down. I have, in a nutshell, become a statistic .... people are being expected to do things, big things, everyday committments, with NOTHING, and it isn't a place I plan to hold for much longer. I am at a point in my life, like the season, in which I must let go of all the things I have NO control over ... and start anew. I must let go of those who hinder my recovery, hold on to bad vibes in those I have, again, no control over, and most, is of no fault of my own.
I am SO completely and totally blessed with the souls that inhibit my life .... and the memories of those who had, but now are only memories, guiding me in a sense, from the other side. It is a place in which I am not afraid to venture, I am not ready yet, but for which I have already been there and back ... it is clear, that my presence on this plane is not complete. I must find my direction, and I am SO very grateful to the people who love me, care about me, and the therapists who have placed in my path to help me learn a new way to get by. Maybe not the way I hoped of a year or so ago .... but .... have I ever really had a plan???? Not really. In hindsight ... been winging it my entire life. Maybe now, I will have a goal, a place in which I hope to land, and reap a quiet, inner reward of peace and contentment.
and .... there goes the illustrious new "brain fart" (a daily irritating occurrence)... the thoughts are gone. So with that, I wish peace, love, contentment, light and a positive outlook. Miracles can and do happen .... we must believe and use the knowledge, compassion, love and light to move forward to better and more beautiful things this spring season.
Have a peaceful day!!!!
Be good to you, be good to each other.
With love and light
et
Happy Palm Sunday to those who celebrate the faith.
It is, as written, a season of rebirth .... Spring brings new growth, a new outlook.
The dead, die off, the shedding of skin, the leaving of the nest, etc ... all sorts of metaphoric type statements. You get the idea.
I'm sorry I haven't made many "personal" posts in the past months ... not even sure how many it's been.
Here ... is just a tidbit of what my life consists of these days:
Vision therapy
Cognitive therapy
Psychotherapy - to learn and cope with all the life-changing things that occurred in this accident.
Not to mention - I must remain as compliant as possible with doctors I saw all along, my endocrine, my neurologist, my "lady" doc, and an occasional PCP visit. Oh wait, let's add on the loss of my job, my health insurance, my home, my income as of 2 weeks ago, and my baby girl moving away. This happening sent a couple of my providers into a major tizzy. Oh NO ... she is all alone with only the supervision of her dog!!!! The "SYSTEM" in which we are too reside ... sucks!!! From the top down. I have, in a nutshell, become a statistic .... people are being expected to do things, big things, everyday committments, with NOTHING, and it isn't a place I plan to hold for much longer. I am at a point in my life, like the season, in which I must let go of all the things I have NO control over ... and start anew. I must let go of those who hinder my recovery, hold on to bad vibes in those I have, again, no control over, and most, is of no fault of my own.
I am SO completely and totally blessed with the souls that inhibit my life .... and the memories of those who had, but now are only memories, guiding me in a sense, from the other side. It is a place in which I am not afraid to venture, I am not ready yet, but for which I have already been there and back ... it is clear, that my presence on this plane is not complete. I must find my direction, and I am SO very grateful to the people who love me, care about me, and the therapists who have placed in my path to help me learn a new way to get by. Maybe not the way I hoped of a year or so ago .... but .... have I ever really had a plan???? Not really. In hindsight ... been winging it my entire life. Maybe now, I will have a goal, a place in which I hope to land, and reap a quiet, inner reward of peace and contentment.
and .... there goes the illustrious new "brain fart" (a daily irritating occurrence)... the thoughts are gone. So with that, I wish peace, love, contentment, light and a positive outlook. Miracles can and do happen .... we must believe and use the knowledge, compassion, love and light to move forward to better and more beautiful things this spring season.
Have a peaceful day!!!!
Be good to you, be good to each other.
With love and light
et
Wednesday, March 13, 2013
Absolutely NO direction
Hi Everyone,
Well ... I really do wish I could write more :(
I have no real direction ... concept of time, most times, down right lost, empty.
So ... I don't know how I am doing it, as I am beyond exhausted ... I'm not sure I have ever felt as I do in recent months. At least, when I had a "terrible life experience" ... ( this sort of comment makes me laugh, thinking only I knew what went on behind closed doors ), I had my brain to help guide my heart. My brain, doesn't play well without some serious direction ... really....?? This is what I ask myeslf as well.
Anyway ... today, I am blank ... my head is full ... as in congested, and I can't afford, on any level to get sick where I would have to seek the ER .... not on my agenda!!!!!!! It's not written in my planner .... no where .... if it ain't there ... it ain't happenin' .... I have a hard time even LOL these days. I have to do some packing ... today is auction day :/ .... not sure what tomorrow holds ... but then, I just want to get through today ... rest, fluids, and a couple (hopefully) of needed to do tasks here in the house.
Thanks to all who continue to follow me, my antics, the research which is making great progress in coming to the forefront of the science/medical brain children. I am grateful to these souls, world-wide for their efforts and passions of finding cures ... not just Band-Aids, i.e., pill pushers .... at exuberant costs to us poor, hard-working stiffs. We really should look hard at socialized medicine ... an honest pro-con approach. Then sum it up .... wonder if I will live long enough to see something positive come from this great nation.
Have a wonderful day!!
Peace and Light
et
Well ... I really do wish I could write more :(
I have no real direction ... concept of time, most times, down right lost, empty.
So ... I don't know how I am doing it, as I am beyond exhausted ... I'm not sure I have ever felt as I do in recent months. At least, when I had a "terrible life experience" ... ( this sort of comment makes me laugh, thinking only I knew what went on behind closed doors ), I had my brain to help guide my heart. My brain, doesn't play well without some serious direction ... really....?? This is what I ask myeslf as well.
Anyway ... today, I am blank ... my head is full ... as in congested, and I can't afford, on any level to get sick where I would have to seek the ER .... not on my agenda!!!!!!! It's not written in my planner .... no where .... if it ain't there ... it ain't happenin' .... I have a hard time even LOL these days. I have to do some packing ... today is auction day :/ .... not sure what tomorrow holds ... but then, I just want to get through today ... rest, fluids, and a couple (hopefully) of needed to do tasks here in the house.
Thanks to all who continue to follow me, my antics, the research which is making great progress in coming to the forefront of the science/medical brain children. I am grateful to these souls, world-wide for their efforts and passions of finding cures ... not just Band-Aids, i.e., pill pushers .... at exuberant costs to us poor, hard-working stiffs. We really should look hard at socialized medicine ... an honest pro-con approach. Then sum it up .... wonder if I will live long enough to see something positive come from this great nation.
Have a wonderful day!!
Peace and Light
et
Subscribe to:
Posts (Atom)