Good Morning!!
I would like to share this link to a fundraising campaign set up to help me with my treatments.
My daughter had set up a GoFundMe page which has since been taken down due to no activity after first 30 days.
HelpHOPELive is a nonprofit who helps with medical issues/transplants and a 30 year proven record. We all know how I feel about my stem cell treatments, and the positive effects I have had from them. HOWEVER, until we can bring them to the mainstream, and insurance companies consider coverage of them ... well, for me, it is fund raise or deteriorate to death.
PLEASE, consider sharing and/or donating. All funds go directly and only to medical treatments.
Any amount big or small helps!!! I am forever grateful for the help and continuance of spreading the word on these treatments.
https://helphopelive.org/campaign/10395
Be well ... and in good health!!!
et
Wednesday, February 3, 2016
Tuesday, January 26, 2016
Stay tuned ... It's coming ...
Greetings to all!!
Allow me to wish everyone a Happy, Healthy 2016!!
Stay tuned ... it's almost done.
I have turned the completion of my book into a labor of love.
It has been both healing and very therapeutic as far as my brain injury and my passion for cure.
It should be ready to go to the publisher in 4-6 weeks (mid-March is my goal).
I look forward to sharing my story and the encounters I have had with healthcare issues over the years.
Thank you to all who continue to stop by here and see what is happening.
Again, I apologize for not being more diligent, but focus on more than one thing at a time is no longer part of my repertoire'
Be well!!
et
Allow me to wish everyone a Happy, Healthy 2016!!
Stay tuned ... it's almost done.
I have turned the completion of my book into a labor of love.
It has been both healing and very therapeutic as far as my brain injury and my passion for cure.
It should be ready to go to the publisher in 4-6 weeks (mid-March is my goal).
I look forward to sharing my story and the encounters I have had with healthcare issues over the years.
Thank you to all who continue to stop by here and see what is happening.
Again, I apologize for not being more diligent, but focus on more than one thing at a time is no longer part of my repertoire'
Be well!!
et
Wednesday, October 14, 2015
A MUST WATCH
Greetings ...
As I have always stated, here and in person, for anyone looking into stem cell treatments. PLEASE, PLEASE, PLEASE do your research. I did almost a year of investigating before deciding to do my treatments with StemGenex out of California.
Also, I am happy to report that I see more and more clinical trials involving the use of stem cells on the www.clinicaltrials.gov .... again, do your research!!! What are you will to put yourself and your body through?? Are you physically and emotionally prepared for whatever the outcome may be??
I knew going in, it was a considerable risk. I had my pros and cons list. I knew it was not a cure for me or my Type 1 status. I am happy to report, that considering my accident and all the therapies and relearning and worse, the applying of those tools to my everyday life ... is still a challenge.
I told my daughter just yesterday, that this will be my last fundraising effort to come up with the cash to undergo another treatment. It is not fair for me to keep asking of those I know and love, and many I don't, to consider funding my treatment. I am hoping with all I have left, to get my story published. With that, I hope to not only be able to sustain myself for a few more years, but would very much like to give back and hope to help others to receive treatment and find a way to make my voice be heard on the advocacy front.
I have had some really wonderful outcomes from my previous treatments. The brain, it controls every aspect of our being, and the workings of every organ system we have. So ... my accident and all the chaos that has followed took a toll on some of my first improvements. My last treatment involved placing some of my cells into my sinus passages so that they had a direct line to my brain, along with the help of manitol. A pharmaceutical that allows the crossing of the blood brain barrier. I was astounded to experience some of the healing that has gone on. However, I was also, in the past year diagnosed with full blown psoriatic arthritis. Now, I had osteoarthritis prior to my accident ... so ... you can call it what you want, but my bones often feel as though they have been tossed in a meat grinder ... or as I told a friend, some days I believe it feels as if I was being crucified.
With that being said of my update ... the following link is for an upcoming 60 Minutes AU (Austrailia) finally bringing a man from Canada to the limelight. HE IS NOT A GOOD PERSON!!!
I know of several people who have been taken by this man and his company for money in upwards of $45k a patient .... often with little to no results. I encountered this Regenetek out of Canada back in 2009/10 when I was doing my research for my own treatments. My gut didn't feel right with it ... and man, am I happy I dodged that bullet!!! He has placed his focus on MS patients and the kicker to this story is that HE IS NOT EVEN A DOCTOR ... of which he claims he is. Started as a lumber yard guy, his claims have all proven to be bogus ... Please watch, and be aware of people like this in the world.
http://www.9jumpin.com.au/show/60minutes/
Thanks to all for your continued reading of my thoughts, hopes and wishes for a healthier world.... Ethically!!!
Peace and Light!!
et
As I have always stated, here and in person, for anyone looking into stem cell treatments. PLEASE, PLEASE, PLEASE do your research. I did almost a year of investigating before deciding to do my treatments with StemGenex out of California.
Also, I am happy to report that I see more and more clinical trials involving the use of stem cells on the www.clinicaltrials.gov .... again, do your research!!! What are you will to put yourself and your body through?? Are you physically and emotionally prepared for whatever the outcome may be??
I knew going in, it was a considerable risk. I had my pros and cons list. I knew it was not a cure for me or my Type 1 status. I am happy to report, that considering my accident and all the therapies and relearning and worse, the applying of those tools to my everyday life ... is still a challenge.
I told my daughter just yesterday, that this will be my last fundraising effort to come up with the cash to undergo another treatment. It is not fair for me to keep asking of those I know and love, and many I don't, to consider funding my treatment. I am hoping with all I have left, to get my story published. With that, I hope to not only be able to sustain myself for a few more years, but would very much like to give back and hope to help others to receive treatment and find a way to make my voice be heard on the advocacy front.
I have had some really wonderful outcomes from my previous treatments. The brain, it controls every aspect of our being, and the workings of every organ system we have. So ... my accident and all the chaos that has followed took a toll on some of my first improvements. My last treatment involved placing some of my cells into my sinus passages so that they had a direct line to my brain, along with the help of manitol. A pharmaceutical that allows the crossing of the blood brain barrier. I was astounded to experience some of the healing that has gone on. However, I was also, in the past year diagnosed with full blown psoriatic arthritis. Now, I had osteoarthritis prior to my accident ... so ... you can call it what you want, but my bones often feel as though they have been tossed in a meat grinder ... or as I told a friend, some days I believe it feels as if I was being crucified.
With that being said of my update ... the following link is for an upcoming 60 Minutes AU (Austrailia) finally bringing a man from Canada to the limelight. HE IS NOT A GOOD PERSON!!!
I know of several people who have been taken by this man and his company for money in upwards of $45k a patient .... often with little to no results. I encountered this Regenetek out of Canada back in 2009/10 when I was doing my research for my own treatments. My gut didn't feel right with it ... and man, am I happy I dodged that bullet!!! He has placed his focus on MS patients and the kicker to this story is that HE IS NOT EVEN A DOCTOR ... of which he claims he is. Started as a lumber yard guy, his claims have all proven to be bogus ... Please watch, and be aware of people like this in the world.
http://www.9jumpin.com.au/show/60minutes/
Thanks to all for your continued reading of my thoughts, hopes and wishes for a healthier world.... Ethically!!!
Peace and Light!!
et
Monday, October 12, 2015
Greeting from your long lost host .....
WOW ....
I have not been out here (on the blog for eons) for some time. In large part due to my crappy memory.
Anyway ... Greetings, I am still alive!!!
I come with two motives.
One ~ peeps are still reading me!!!! I have been contacted several times, just in recent weeks, by enquiring minds .... KUDOS to you!!! As I have always stated, do your research, talk to as many people as you can ... ask questions. It's your body, your health!!! I am still more than happy to talk of my experiences with StemGenex ... and that is where my second motive come in.
PLEASE PLEASE PLEASE .... see the attached link for GoFundMe set up by my daughter recently.
I am humbled, a little embarrassed, but still plugging away as sad as I find it on certain days ... a LOT has transpired over the past couple of years and you can all look for it when my book gets published ... I am hoping and praying I can get the story told .... well ... you know, anything could happen.
https://www.gofundme.com/9y5z6m48
So ... I hope this note comes when people are still researching their options. We must start speaking loudly for these treatments .... Our health, Our call!!!
Be well, and continue the quest for better health, quality of life!!
With much appreciation and gratitude for the continued reads.
et
I have not been out here (on the blog for eons) for some time. In large part due to my crappy memory.
Anyway ... Greetings, I am still alive!!!
I come with two motives.
One ~ peeps are still reading me!!!! I have been contacted several times, just in recent weeks, by enquiring minds .... KUDOS to you!!! As I have always stated, do your research, talk to as many people as you can ... ask questions. It's your body, your health!!! I am still more than happy to talk of my experiences with StemGenex ... and that is where my second motive come in.
PLEASE PLEASE PLEASE .... see the attached link for GoFundMe set up by my daughter recently.
I am humbled, a little embarrassed, but still plugging away as sad as I find it on certain days ... a LOT has transpired over the past couple of years and you can all look for it when my book gets published ... I am hoping and praying I can get the story told .... well ... you know, anything could happen.
https://www.gofundme.com/9y5z6m48
So ... I hope this note comes when people are still researching their options. We must start speaking loudly for these treatments .... Our health, Our call!!!
Be well, and continue the quest for better health, quality of life!!
With much appreciation and gratitude for the continued reads.
et
Thursday, November 13, 2014
Going to try and come back
Hello to all!!
It has been a long 3 years ... since my accident and much has transpired. Would you believe that it is all still causing major stress and irritation in my life? My health has declined, my spirit has had many ups and downs. But I'm still doing my best to fight.
It is time for me to put some of my therapies to action and see if I can come back and share my experience and my continued following of the cure.
I still believe we are close. However, and this is the part I hate most .... the politics involved.
So ... with this little intro, I hope everyone is well and those who were followers come back. Some of my biggest "fans" and support system have gone to follow and guide me on the "other side" ....
So which road shall I take .... stay tuned.
Peace and wellness to all
~et~
It has been a long 3 years ... since my accident and much has transpired. Would you believe that it is all still causing major stress and irritation in my life? My health has declined, my spirit has had many ups and downs. But I'm still doing my best to fight.
It is time for me to put some of my therapies to action and see if I can come back and share my experience and my continued following of the cure.
I still believe we are close. However, and this is the part I hate most .... the politics involved.
So ... with this little intro, I hope everyone is well and those who were followers come back. Some of my biggest "fans" and support system have gone to follow and guide me on the "other side" ....
So which road shall I take .... stay tuned.
Peace and wellness to all
~et~
Saturday, May 11, 2013
One of my favorites
Hi ..
While packing my belongings I came across some long put away CDs ...
and began to listen while attempting to look fluid. James Taylor is probably one of the only artists I have ever seen ... (many times, 1st in 1977 @ Harvard Stadium .. (anyone remember this?) and he had a whole LOT more hair); he sounds better in person than on any album!!!
This particular tune has been a favorite of mine for many, many years. Along with that, JT's music speaks from the heart ... and for that, I have always found him soothing in times of ... well ... in a lot of times. :P
http://www.youtube.com/watch?v=uokWBMU02Ug
Recorded in Rotterdam ... in one of my favorite countries too!!!
ENJOY .... and a wonderful weekend to all!!!
If you love 'em, tell 'em!!!
Peace and Light
~et~
While packing my belongings I came across some long put away CDs ...
and began to listen while attempting to look fluid. James Taylor is probably one of the only artists I have ever seen ... (many times, 1st in 1977 @ Harvard Stadium .. (anyone remember this?) and he had a whole LOT more hair); he sounds better in person than on any album!!!
This particular tune has been a favorite of mine for many, many years. Along with that, JT's music speaks from the heart ... and for that, I have always found him soothing in times of ... well ... in a lot of times. :P
http://www.youtube.com/watch?v=uokWBMU02Ug
Recorded in Rotterdam ... in one of my favorite countries too!!!
ENJOY .... and a wonderful weekend to all!!!
If you love 'em, tell 'em!!!
Peace and Light
~et~
Friday, May 3, 2013
This is SUCH a promising story
I love this story!!
This is facinating science/medicine and I wish Hannah all the best life has to offer!!!
http://www.nytimes.com/2013/04/30/science/groundbreaking-surgery-for-girl-born-without-windpipe.html?pagewanted=all&_r=1&
and with this posting, I too, am moving forward to attempt a new life ... a new way of life, and it is far from over due for me to move on. Threads have been severed, my time has come to finish them and wear my threads proudly.
Enjoy the weekend!!
Peace and Light
~et~
This is facinating science/medicine and I wish Hannah all the best life has to offer!!!
http://www.nytimes.com/2013/04/30/science/groundbreaking-surgery-for-girl-born-without-windpipe.html?pagewanted=all&_r=1&
and with this posting, I too, am moving forward to attempt a new life ... a new way of life, and it is far from over due for me to move on. Threads have been severed, my time has come to finish them and wear my threads proudly.
Enjoy the weekend!!
Peace and Light
~et~
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